scholarly journals “IT'S A MARATHON NOT A SPRINT” – SETTING THE PACE IN DEVELOPMENT OF A REGIONAL PALLIATIVE CARE RESEARCH SPECIALTY GROUP

2014 ◽  
Vol 4 (Suppl 1) ◽  
pp. A99.1-A99
Author(s):  
Fiona Lindsay ◽  
Farida Malik
2021 ◽  
pp. 026921632097603
Author(s):  
Anna Roach ◽  
Debbie Braybrook ◽  
Steve Marshall

Background: The importance of actively involving patient and public members throughout the different stages of palliative care and health research projects is widely acknowledged, however patient and public involvement work rarely considers insight from children and young people. Although this is becoming increasingly recognised in other areas of research, there is currently no structured guidance on how to best involve children and young people in palliative care research. Aim: To plan and deliver a Young People’s Advisory Group in palliative care and health research at a secondary school. Findings: Attending an after-school ‘Health and Social Research Methods Club’ for 11 weeks benefitted children and researchers. Children were taught about data collection methods, data analysis and ethics in health research and used these skills to provide valuable feedback which has been implemented in current palliative care research projects. Children took part in considered discussions around palliative care topics and enjoyed attending the group. Conclusion: This project has equipped researchers with skills and provided a structured template for future Young People’s Advisory Groups, ensuring the unique voices of children and young people are considered and valued in future palliative care research.


2021 ◽  
Author(s):  
Rebecca Gemmell ◽  
Alison Allam ◽  
Margaret Perkins ◽  
Joanne Droney

2021 ◽  
Author(s):  
Arpan A. Patel ◽  
Christopher Woodrell ◽  
Nneka N. Ufere ◽  
Lissi Hansen ◽  
Puneeta Tandon ◽  
...  

2016 ◽  
Vol 9 (1) ◽  
Author(s):  
Emma Nicholson ◽  
Tara Murphy ◽  
Philip Larkin ◽  
Charles Normand ◽  
Suzanne Guerin

2013 ◽  
Vol 18 (7) ◽  
pp. 326-331 ◽  
Author(s):  
Jane Andrew ◽  
Bridget Johnston ◽  
Constantina Papadopoulou

2004 ◽  
Vol 2 (1) ◽  
pp. 1-2 ◽  
Author(s):  
WILLIAM BREITBART

Stresa, a small town on the shores of the Lago Maggiore, about one hour north of Milan, Italy, was the site of the Third Research Forum of the European Association for Palliative Care (EAPC). From June 3 through 6, 2004, researchers from all across Europe, as well as investigators from North America, Australia, Japan, and Israel, gathered to review the state of palliative care research and set an agenda for the future. The setting was bucolic and tranquil; the official language was English; the accents were diverse; the accommodations were grand; the ambiance was intimate and insouciant; the dinners were elegant; the dress was stylish; the organization was impeccable; and the scholarship was of the highest level. All this, perhaps, was to be expected of an EAPC event, hosted by an Executive Scientific Committee and Research Committee headed by Franco De Conno of the Instituto di Tumori of Milano, Italy, and his colleagues. What was unexpected, however, was the prominence of research on psychosocial, existential, and spiritual aspects of palliative care at this critically important, international, palliative care research forum. Clearly, 2004 marks an important milestone for the entry of research in psychosocial and existential issues into the mainstream of academic palliative care. Palliative and Supportive Care, having just successfully completed its inaugural year of publication in 2003, is now extraordinarily and uniquely well placed to be the preeminent international palliative care journal for research in the psychosocial, existential, and spiritual aspects of palliative care.


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