scholarly journals Psychometric validation of the needs assessment tool: progressive disease in interstitial lung disease

Thorax ◽  
2017 ◽  
Vol 73 (9) ◽  
pp. 880-883 ◽  
Author(s):  
Miriam J Johnson ◽  
Armita Jamali ◽  
Joy Ross ◽  
Caroline Fairhurst ◽  
Jason Boland ◽  
...  

The inter-rater/test–retest reliability and construct validity of a palliative care needs assessment tool in interstitial lung disease (NAT:PD-ILD) were tested using NAT:PD-ILD-guided video-recorded consultations, and NAT:PD-ILD-guided consultations, and patient and carer-report outcomes (St George’s Respiratory Questionnaire (SGRQ)-ILD, Carer Strain Index (CSI)/Carer Support Needs Assessment Tool (CSNAT)). 11/16 items reached at least fair inter-rater agreement; 5 items reached at least moderate test–retest agreement. 4/6 patient constructs demonstrated agreement with SGRQ-I scores (Kendall’s tau-b, 0.24–20.36; P<0.05). 4/7 carer constructs agreed with the CSI/CSNAT items (kappa, 0.23–20.53). The NAT:PD-ILD is reliable and valid. Clinical effectiveness and implementation are to be evaluated.

2016 ◽  
Vol 19 (5) ◽  
pp. 549-555 ◽  
Author(s):  
Jason W. Boland ◽  
Carla Reigada ◽  
Janelle Yorke ◽  
Simon P. Hart ◽  
Sabrina Bajwah ◽  
...  

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Hui-Lin Cheng ◽  
Doris Yin Ping Leung ◽  
Po Shan Ko ◽  
Ming Wai Chung ◽  
Wai Man Lam ◽  
...  

Abstract Background Among the few existing needs assessment tools for family carers, the 14-item Carer Support Needs Assessment Tool (CSNAT) is the only brief and holistic needs screening tool designed for everyday use in palliative care practices. The aim of this study was to evaluate the reliability, validity, and acceptability of the traditional Chinese version of the CSNAT in palliative care settings in Hong Kong. Methods This adopted a cross-sectional and correlation design with repeated measures. The participants were 125 family carers of palliative cancer patients and 10 healthcare providers (HCPs) that were recruited from two local hospitals. The evaluation of psychometric properties included the following: (1) content validity through HCPs including frontline physicians, nurses, social workers, and clinical psychologists; (2) construct validity between the CSNAT items and those of the validated tools that measured caregiver burden, social support, and caregiving self-efficacy; and (3) one-week test-retest reliability in a sub-sample of 81 caregivers. The acceptability of the tool was assessed by the carers using several closed-ended questions. Results The content validity index of the CSNAT at the scale level was 0.98. Each item of the CSNAT was significantly and moderately correlated with caregiver burden (Spearman’s r = 0.24 to 0.50) and caregiving self-efficacy (r = − 0.21 to − 0.52), but not for social support. All CSNAT items had fair to moderate test-retest reliability (weighted kappa = 0.21 to 0.48), with the exception of two items “managing your relatives’ symptoms, including giving medicines” and “having time for yourself in the day”. Regarding the acceptability of the CSNAT, almost all HCPs were willing to use the CSNAT for carer assessment and support. 89.6% of the carers demonstrated a comprehensibility of the CSNAT tool and 92.9% felt comfortable answering the questions. Around 90% of the carers agreed to use the tool for screening, discussing needs, and making referrals. Conclusion The traditional Chinese version of the CSNAT is a tool with high validity and acceptability and adequate reliability that measures family carers’ support needs, which should be considered for wide application in local palliative care practices.


Thorax ◽  
2016 ◽  
Vol 71 (Suppl 3) ◽  
pp. A266.1-A266
Author(s):  
C Reigada ◽  
C Fairhurst ◽  
J Yorke ◽  
J Ross ◽  
J Boland ◽  
...  

Thorax ◽  
2017 ◽  
Vol 72 (11) ◽  
pp. 1049-1051 ◽  
Author(s):  
C Reigada ◽  
A Papadopoulos ◽  
J W Boland ◽  
J Yorke ◽  
J Ross ◽  
...  

2020 ◽  
Vol 14 (2) ◽  
pp. 309-317
Author(s):  
Michelle L. Manning ◽  
Harsimran Singh ◽  
Keaton Stoner ◽  
Steph Habif

Background: With the rapid development of new insulin delivery technology, measuring patient experience has become especially pertinent. The current study reports on item development, psychometric validation, and intended use of the newly developed Diabetes Impact and Device Satisfaction (DIDS) Scale. Method: The DIDS Scale was informed by a comprehensive literature review, and field tested as part of two focus groups. The finalized measure was used at baseline and 6 months post-assessment with a large US cohort. Exploratory factor analyses (EFAs) were conducted to determine and confirm factor structure and item selection. Internal reliability, test–retest reliability, and convergent/divergent validity of the emerged factors were tested with demographics, diabetes-specific information, and diabetes behavioral and satisfaction measures. Results: In all, 778 participants with type 1 diabetes (66% female, mean age 47.13 ± 17.76 years, 74% insulin pump users) completed surveys at both baseline and post-assessment. EFA highlighted two factors—Device Satisfaction (seven items, Cronbach’s α = 0.85-0.90) and Diabetes Impact (four items, Cronbach’s α = 0.71-0.75). DIDS Scale demonstrated good concurrent validity and test–retest reliability. Conclusion: The DIDS Scale is a novel and a brief assessment tool with robust psychometric properties. It is recommended for use across all insulin delivery devices and is considered appropriate for use in longitudinal studies. Future studies are recommended to evaluate the performance of DIDS Scale in diverse populations with diabetes.


Respirology ◽  
2020 ◽  
Vol 25 (12) ◽  
pp. 1231-1232
Author(s):  
Duncan J. Sweeney ◽  
Yet H. Khor ◽  
Nicole S.L. Goh

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