scholarly journals Interactive Palliative and End-of-Life Care Modules for Pediatric Residents

2017 ◽  
Vol 2017 ◽  
pp. 1-7 ◽  
Author(s):  
Mindy K. Ross ◽  
Ami Doshi ◽  
London Carrasca ◽  
Patricia Pian ◽  
JoAnne Auger ◽  
...  

Background. There is a need for increased palliative care training during pediatric residency.Objective. In this pilot study, we created a comprehensive experiential model to teach palliative care skills to pediatric residents. Our Comfort Care Modules (CCMs) address pediatric palliative care (PPC) topics of breaking bad news, dyspnea, anxiety, pain management, and the dying child. We also evaluated a scoring system and gathered qualitative data.Methods. The CCMs are part of the University of California San Diego pediatric residency’s second-year curriculum. Comparisons were made for statistical trends between residents exposed to the modules(n=15)and those not exposed(n=4).Results. Nineteen of 36 residents (52%) completed surveys to self-rate their preparedness, knowledge, and confidence about PPC before and after the intervention. Resident scores increased in all areas. All improvements reached statistical significance except confidence when breaking bad news. Overall, the resident feedback about the CCMs was positive.Conclusions. This study demonstrates that the CCMs can be performed effectively in an academic setting and can benefit residents’ self-perception of preparedness, confidence, and knowledge about pediatric palliative care. In the future, we plan to implement the modules on a larger scale. We encourage their use in interprofessional settings and across institutions.

Author(s):  
Lesley K Bowker ◽  
James D Price ◽  
Sarah C Smith

Breaking bad news 638 HOW TO . . . Break bad news 639 Bereavement 640 HOW TO . . . Promote a ‘healthy bereavement’ 641 Palliative care 642 Symptom control in the terminally ill 644 HOW TO . . . Prescribe a subcutaneous infusion for palliative care 646 Documentation after death 648 Other issues after death ...


2014 ◽  
Vol 38 (2) ◽  
pp. 275-282 ◽  
Author(s):  
Maira Morena Borges ◽  
Randolfo Santos Junior

Ao receber o diagnóstico de uma doença cuja cura não é possível e vivenciar a ameaça ou a concretude de perdas inerentes a essa nova condição, o paciente e seus familiares vivenciam um momento de crise, percorrendo algumas fases ou estados psicológicos aos quais o profissional de saúde deve estar atento para que consiga orientá-los, suprindo suas necessidades. Com o aumento da demanda e dos serviços em cuidados paliativos no contexto atual, o objetivo deste trabalho é apresentar uma breve revisão da literatura nacional e internacional sobre a comunicação na transição do cuidado curativo para o cuidado paliativo em oncologia. Para sua realização, foi feito um levantamento bibliográfico, sendo analisados artigos das bases de dados SciELO e Medline no período de 2006 a 2013, a partir dos descritores palliative care e breaking bad news. Os artigos localizados nas bases de dados e considerados relevantes ao tema foram incluídos, totalizando 32 estudos. Destes, 24 foram utilizados e subdividos nas seguintes categorias: treinamento de habilidades de comunicação; workshops; estudos sobre a qualidade da comunicação; e protocolos para comunicação em cuidados paliativos.


2015 ◽  
Vol 98 (6) ◽  
pp. 748-752 ◽  
Author(s):  
Suzanne Reed ◽  
Karyn Kassis ◽  
Rollin Nagel ◽  
Nicole Verbeck ◽  
John D. Mahan ◽  
...  

Author(s):  
Lesley K. Bowker ◽  
James D. Price ◽  
Ku Shah ◽  
Sarah C. Smith

This chapter provides information on breaking bad news, bereavement, palliative care, symptom control in the terminally ill, assisted dying, documentation after death, other issues after death, and the coroner.


1996 ◽  
Vol 89 (10) ◽  
pp. 590-591 ◽  
Author(s):  
Derek Doyle ◽  
Sean O'Connell

2021 ◽  
pp. 1-12
Author(s):  
Elizabeth M. Miller ◽  
Joanne E. Porter ◽  
Michael S. Barbagallo

Abstract Objective Disclosing the truth when breaking bad news continues to be difficult for health professionals, yet it is essential for patients when making informed decisions about their treatment and end-of-life care. This literature review aimed to explore and examine how health professionals, patients, and families experience truth disclosure during the delivery of bad news in the inpatient/outpatient palliative care setting. Methods A systemized search for peer-reviewed, published papers between 2013 and 2020 was undertaken in September 2020 using the CINAHL, Medline, and PsycInfo databases. The keywords and MeSH terms (“truth disclosure”) AND (“palliative care or end-of-life care or terminal care or dying”) were used. The search was repeated using (“bad news”) AND (“palliative care or end-of-life care or terminal care or dying”) terms. A meta-synthesis was undertaken to synthesize the findings from the eight papers. Results Eight papers were included in the meta-synthesis and were represented by five Western countries. Following the synthesis process, two concepts were identified: “Enablers in breaking bad news” and “Truth avoidance/disclosure.” Several elements formed the concept of Enablers for breaking bad news, such as the therapeutic relationship, reading cues, acknowledgment, language/delivery, time/place, and qualities. A conceptual model was developed to illustrate the findings of the synthesis. Significance of results The conceptual model demonstrates a unique way to look at communication dynamics around truth disclosure and avoidance when breaking bad news. Informed decision-making requires an understanding of the whole truth, and therefore truth disclosure is an essential part of breaking bad news.


2018 ◽  
Vol 42 (4) ◽  
pp. 175-183
Author(s):  
Laiane Moraes Dias ◽  
Ana Emilia Vita Carvalho ◽  
Ismari Perini Furlaneto ◽  
Camila Guimarães Silva de Oliveira

ABSTRACT Introduction Breaking bad news althoughfrequent among healthcare professionals and their patients is still considered a very difficult task. These communication skill main determinants in the physician-patient relationship. Objective In view of the need to promote academic spaces that provide opportunities to learn breaking bad news , thisstudy aims to evaluate the medical residentsin relation to their interest in learning communication skills, as well as their skills in breaking bad news, before and after a workshop on the topic. Methods All the medical residents in the first year ofnternal edicine of a public general hospital in Belém-Pará, Brazil inwere invited to answer a questionnaire sociodemographic data and questions about their communication skills in clinical practice, as well as the Communication Skills Attitude Scale (CSAS), which addressed their interest in learning communication skills. The questionnaire. This research uses both uantitative and qualitative methods. The quantified data were statisticallyanalyzed by the Wilcoxon test (),Chi-Square test G-test adherence (quantitative variables of the questionnaire on communication skills). The qualitative evaluation Content Analysis based on Bardin. Results Ten residents attended the workshop. The results show that after taking part in the workshop, the resident’s perceptions of the practice of breaking bad news had improved (in 80% of the participants), as well as their attitudes to learning communication skills ( CSAS = 99.5 and 105, before and after the course, respectively p = 0.0039). Conclusion Eighty percent of residents (n = 08) considered their communication skills have improved as a result of the workshop (p = 0.0078). Most of the participantsbecame more aware of the importance of considering the patient’s perspective, and admitted positive changes following the course. Conclusion A positive effect on the participants’ perceptions of communication skills and on their interest in learning these skills, were identified after an intervention focused on the context of breaking bad news.


Author(s):  
Catherine Sweeney ◽  
Eleanor O'Sullivan ◽  
Marian McCarthy

Palliative care is a complex area of healthcare that is best delivered by an interdisciplinary team approach. Breaking bad news is an inherent part of caring for people with life-limiting conditions. The purpose of this study was to explore an interdisciplinary breaking bad news role-play in a palliative care module. The participants were undergraduate medical and nursing students. Qualitative data from focus groups, student and facilitator feedback and a role-play recording were thematically analysed. The findings revealed that the role-play led to increased understanding of and changes in attitudes towards key palliative care principles, interdisciplinary teamwork, and communication of bad news. There was evidence of increased self-awareness. The findings suggest that the interdisciplinary breaking bad news role-play was a rich integrative learning experience that was valued by students.


2019 ◽  
Vol 36 (9) ◽  
pp. 820-830 ◽  
Author(s):  
Katharine E. Brock ◽  
Meghan Tracewski ◽  
Kristen E. Allen ◽  
Jeffrey Klick ◽  
Toni Petrillo ◽  
...  

Background: Pediatric palliative care (PPC) education is lacking in pediatric critical care medicine (PCCM) fellowships, despite the desire of many program directors and fellows to expand difficult conversation training. Simulation-based training is an experiential method for practicing challenging communication skills such as breaking bad news, disclosing medical errors, navigating goals of care, and supporting medical decision-making. Methods: We describe a simulation-based PPC communication series for PCCM fellows, including presimulation session, simulation session, debriefing, and evaluation methods. From 2011 to 2017, 28 PCCM fellows participated in a biannual half-day simulation session. Each session included 3 scenarios (allowing for participation in up to 18 scenarios over 3 years). Standardized patients portrayed the child’s mother. PCCM and interprofessional PPC faculty cofacilitated, evaluated, and debriefed the fellows after each scenario. Fellows were evaluated in 4 communication categories (general skills, breaking bad news, goals of care, and resuscitation) using a 3-point scale. A retrospective descriptive analysis was conducted. Results: One hundred sixteen evaluations were completed for 18 PCCM fellows. Median scores for general communication items, breaking bad news, and goals of care ranged from 2.0 to 3.0 (interquartile range [IQR]: 0-1) with scores for resuscitation lower at 1.0 (IQR: 1.5-2). Discussion: This experiential simulation-based PPC communication curriculum taught PCCM fellows valuable palliative communication techniques although revealed growth opportunities within more complex communication tasks. The preparation, methods, and lessons learned for an effective palliative simulation curriculum can be expanded upon by other pediatric training programs, and a more rigorous research program should be added to educational series.


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