An Exploration of Quality of Life and the Experience of Living With Home Parenteral Nutrition

2010 ◽  
Vol 34 (4) ◽  
pp. 395-407 ◽  
Author(s):  
Marion F. Winkler ◽  
Elizabeth Hagan ◽  
Terri Wetle ◽  
Carol Smith ◽  
Julie O’Sullivan Maillet ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Parenteral Nutrition ◽  
Home Parenteral Nutrition

scholarly journals How good is quality-of-life for children receiving home parenteral nutrition? – A pilot study

2019 ◽  
Vol 29 ◽  
pp. 119-124 ◽  
Author(s):  
Léa Chantal Tran ◽  
Gill Lazonby ◽  
Remy Morello ◽  
Dominique Pham ◽  
Donna Ellis ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Pilot Study ◽  
Parenteral Nutrition ◽  
Home Parenteral Nutrition

A longitudinal study investigating quality of life and nutritional outcomes in advanced cancer patients receiving home parenteral nutrition.

2014 ◽  
Vol 32 (15_suppl) ◽  
pp. e17591-e17591
Author(s):  
Pankaj G. Vashi ◽  
Sadie Dahlk ◽  
Brenten Popiel ◽  
Carolyn Lammersfeld ◽  
Carol Ireton-Jones ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Longitudinal Study ◽  
Parenteral Nutrition ◽  
Cancer Patients ◽  
Advanced Cancer ◽  
Home Parenteral Nutrition ◽  
Advanced Cancer Patients ◽  
Nutritional Outcomes

Quality of life and rehabilitation status in patients with long-term (at least 2 years) home parenteral nutrition (HPN): A multicentre European survey

2000 ◽  
Vol 118 (4) ◽  
pp. A776
Author(s):  
Andre Van Gossum ◽  
Kouroche Vahedi ◽  
R. Abdel-Malik ◽  
Michael Staun ◽  
Marek Pertkiewicz ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Parenteral Nutrition ◽  
Home Parenteral Nutrition ◽  
European Survey ◽  
Rehabilitation Status

Home parenteral nutrition in neuroendocrine tumour intestinal failure: improved quality of life and longevity

2020 ◽  
pp. bmjspcare-2020-002562
Author(s):  
Vandana M Sagar ◽  
Tahir Shah ◽  
Hardip Malhi ◽  
Sharmalie Parkinson ◽  
Shishir Shetty ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Parenteral Nutrition ◽  
Neuroendocrine Tumour ◽  
Intestinal Failure ◽  
Case Series ◽  
Home Parenteral Nutrition ◽  
Hydration Status ◽  
Term Survival ◽  
Gastrointestinal Complications

BackgroundNeuroendocrine tumours (NETs) are neoplastic yet behave differently to typical cancers. Despite often being slow growing, they can lead to significant gastrointestinal complications including intestinal failure (IF). The use of home parenteral nutrition (HPN) in neoplastic conditions is rising, primarily for palliation and bridging through treatments for cancer, but remains a challenging decision with a paucity of high-grade evidence-based guidance.MethodsA retrospective analysis of patients with NET on HPN was performed. Data collected included the cause of IF, complications encountered with HPN and changes in nutritional assessments.ResultsEight patients were identified, all with metastatic NET. Median weight improved following HPN commencement and line sepsis was the sole complication. All patients had stabilisation and optimisation of nutritional and hydration status.ConclusionsHPN is commenced to improve or maintain patients’ nutritional status during often lifelong treatment. The principle aim in providing HPN was to improve survival and quality of life. While NETs are cancers, our case series demonstrates the potential of HPN to actively support longer term survival in the subgroup of patients who develop IF.

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