Hospice and palliative care research in mainland China: Current status and future direction

ObjectiveTo investigate the care needs of dying patients and their family caregivers in hospice and palliative care in mainland China.MethodsA search for English and Chinese quantitative and qualitative studies was performed using the following English databases: PubMed (Medline), CINAHL and PsycINFO, as well as Chinese databases: SinoMed and CNKI. The records were independently screened by two reviewers and critiqued using Joanna Briggs Institute Critical Appraisal tools. All quantitative data were transformed into qualitative data, which were converted into textual descriptions. Due to the diversity of included studies, a three-step analysis was performed: narrative summary, thematic analysis and presentation of integrated results in a narrative form. The qualitative findings were pooled using the meta-aggregation approach.ResultsThe literature search identified 2964 papers after removing duplicates, from which 18 were included (9 quantitative and 9 qualitative studies). All studies were conducted in mainland China. Quantitative studies involved cross-sectional surveys, and qualitative studies involved interviews for data collection. Two synthesised results of patients’ needs were identified, including needs to be comfortable and experience a good death. Another two synthesised results of family caregivers’ needs included needs to care for and improve the quality of life of patients, and to care for themselves well.ConclusionThis study identified that patients and family caregivers have an increasing demand for professional care at the end of life. Professionals, especially nurses, should enact a patients’ demand-centred practice to overcome the challenges of organisation, education, emotion and communication to provide high-quality end-of-life care.

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Ten years of research and publications about hospice and palliative care in Mainland China: a bibliometric study

10.21203/rs.3.rs-41366/v2 ◽

2020 ◽

Author(s):

Shuang Jin ◽

Shuo Liu ◽

Jiaojiao Li ◽

Xiaohong Ning ◽

Xiaohong Liu

Keyword(s):

Palliative Care ◽

Early Stage ◽

Mainland China ◽

Western China ◽

China National Knowledge Infrastructure ◽

The Sustainable Development ◽

Knowledge Infrastructure ◽

Increasing Demand ◽

State Of Research ◽

Hospice And Palliative Care

Abstract Background Research is a fundamental element in the sustainable development of hospice and palliative care. Mainland China is facing increasing demand for hospice and palliative care and has launched related policies over the past decade. However, the state of research and publications in this field in China remains largely unknown. This study aimed to provide an overall picture of hospice-and palliative care -related research and publications in Mainland China from 2010 to 2019. Methods We searched Web of Science, Scopus, PubMed, CINAHL, OVID, and China National Knowledge Infrastructure for hospice-and palliative care -related publications in English and Chinese for 2010–2019. We analyzed the production, citations and impacts, publishing journals, region and institution of origin, and themes and active topics. Results A total of 3224 publications were identified, and 636 of them were considered of high quality. The production and impacts showed a clear increase—especially after 2016. However, the regional disparity between East and Western China in production was conspicuous and closely linked to economic factors. Beijing and Shanghai were the most productive regions. The hospice providers in the first five pilot regions had no collaboration with leading universities in their publications. Hospice and palliative care for cancer patients was the most common publication topic; some essential themes were rarely explored. Conclusion Research and publications of hospice and palliative care in Mainland China is developing faster than before; however, it remains at an early stage and should be promoted in terms of interregional equity. Collaboration among different disciplines, institutes, and regions should be encouraged.

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Ten years of research and publications about hospice and palliative care in Mainland China: a bibliometric study

10.21203/rs.3.rs-41366/v3 ◽

2020 ◽

Author(s):

Shuang Jin ◽

Shuo Liu ◽

Jiaojiao Li ◽

Xiaohong Ning ◽

Xiaohong Liu

Keyword(s):

Palliative Care ◽

Early Stage ◽

Mainland China ◽

Western China ◽

China National Knowledge Infrastructure ◽

The Sustainable Development ◽

Knowledge Infrastructure ◽

Increasing Demand ◽

State Of Research ◽

Hospice And Palliative Care

Abstract Objectives: Research is a fundamental element in the sustainable development of hospice and palliative care. Mainland China is facing increasing demand for hospice and palliative care and has launched related policies over the past decade. However, the state of research and publications in this field in China remains largely unknown. This study aimed to provide an overall picture of hospice-and palliative care -related research and publications in Mainland China of the last decade.Methods: We searched Web of Science, Scopus, PubMed, CINAHL, OVID, and China National Knowledge Infrastructure for hospice-and palliative care -related publications in English and Chinese for 2010–2019. We analyzed the production, citations and impacts, publishing journals, region and institution of origin, publication types and topics.Results: A total of 3224 publications were identified, and 636 of them were published in high-quality journals. The production and impacts showed a clear increase—especially after 2016. However, there is no specialized journal of hospice and palliative care in Mainland China. The publications scattered among various journals. The regional disparity between East and Western China in production was conspicuous and closely linked to economic factors. The most prosperous cities in Mainland China, Beijing and Shanghai, were the most productive regions. The hospice providers in the first five pilot regions had no collaboration with leading universities in their publications. Hospice and palliative care for cancer patients was the most common publication topic; some essential topics were rarely explored.Conclusions: Research and publications about hospice and palliative care in Mainland China is developing faster than before; however, it remains at an early stage and should be promoted in terms of interregional equity. Collaboration among different disciplines, institutes, and regions should be encouraged.

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