Association Among End-Of-Life Discussions, Cancer Patients’ Quality of Life at End of Life, and Bereaved Families’ Mental Health

2021 ◽  
pp. 104990912110617
Author(s):  
Yoko Hayashi ◽  
Kazuki Sato ◽  
Masahiro Ogawa ◽  
Yoshiro Taguchi ◽  
Hisashi Wakayama ◽  
...  
Keyword(s):  
Mental Health ◽  
End Of Life ◽  
Family Members ◽  
Care Quality ◽  
Patient Death ◽  
Cross Sectional ◽  
Family Outcomes ◽  
The Status ◽  
Bereaved Family

End-of-life discussions are essential for patients with advanced cancer, but there is little evidence about whether these discussions affect general ward patients and family outcomes. We investigated the status of end-of-life discussions and associated factors and their effects on patients’ quality of death and their families’ mental health. Participants in this retrospective cross-sectional observational study were 119 bereaved family members. Data were collected through a survey that included questions on the timing of end-of-life discussions, quality of palliative care, quality of patient death, and depression and grief felt by the families. Approximately 64% of the bereaved family members participated in end-of-life discussions between the patient and the attending physician, and 55% of these discussions took place within a month before death. End-of-life discussions were associated with the patients’ prognostic perception as “incurable, though there is hope for a cure” and “patients’ experience with end-of-life discussions with family before cancer.” There was a small decrease in depression and grief for families of patients who had end-of-life discussions. Those who did not have end-of-life discussions reported lower quality of end-of-life care.

scholarly journals Effects of End-of-Life Discussions on the Mental Health of Bereaved Family Members and Quality of Patient Death and Care

2017 ◽  
Vol 54 (1) ◽  
pp. 17-26.e1 ◽  
Author(s):  
Takashi Yamaguchi ◽  
Isseki Maeda ◽  
Yutaka Hatano ◽  
Masanori Mori ◽  
Yasuo Shima ◽  
...  
Keyword(s):  
Mental Health ◽  
End Of Life ◽  
Family Members ◽  
Patient Death ◽  
Bereaved Family

Caregiver Reported Quality of End-of-Life Care of Adolescent and Young Adult Decedents With Cancer

2021 ◽  
pp. 082585972110019
Author(s):  
Erin R. Currie ◽  
Emily E. Johnston ◽  
Marie Bakitas ◽  
Eric Roeland ◽  
Lisa C Lindley ◽  
...  
Keyword(s):  
End Of Life ◽  
Care Quality ◽  
Adolescent And Young Adult ◽  
Special Focus ◽  
Cross Sectional ◽  
Medical Centers ◽  
Academic Medical ◽  
Bereaved Family ◽  
Eol Care

Background: The quality of palliative and end-of-life (EOL) care for adolescents and young adults (AYAs) with cancer remains largely unknown. Objective: To describe caregivers of AYA cancer decedents perspectives’ on EOL care quality related to EOL care communication. Design: Cross-sectional observational study. Setting/Subjects: Caregivers (n = 35) of AYAs who died from a cancer diagnosis from 2013-2016 were recruited from 3 U.S. academic medical centers. Measurements: Caregiver participants completed structured surveys (FAMCARE scale and the Toolkit After-Death Bereaved Family Member Interview) by telephone to gather perceptions of quality of EOL care of their AYA cancer decedents. Results: Caregivers reported unmet needs regarding preparation for the time of death (50%), the dying process (45%) and unmet spiritual/ religious needs (38%). Lowest quality of EOL care scores related to communication and emotional support. Conclusions: Our findings call for special focus on providing information about what to expect during the dying process and adequately addressing spiritual and religious preferences during EOL care for AYAs.

Association between Quality of End-of-Life Care and Possible Complicated Grief among Bereaved Family Members

2014 ◽  
Vol 17 (9) ◽  
pp. 1025-1031 ◽  
Author(s):  
Kaya Miyajima ◽  
Daisuke Fujisawa ◽  
Kimio Yoshimura ◽  
Masaya Ito ◽  
Satomi Nakajima ◽  
...  
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
Family Members ◽  
Complicated Grief ◽  
Life Care ◽  
Bereaved Family

J-HOPE study: Evaluation of end-of-life cancer care in Japan from the perspective of bereaved family members

2009 ◽  
Vol 27 (15_suppl) ◽  
pp. 9577-9577
Author(s):  
M. Miyashita ◽  
T. Morita ◽  
K. Sato ◽  
S. Tsuneto ◽  
Y. Shima
Keyword(s):  
Palliative Care ◽  
End Of Life ◽  
End Of Life Care ◽  
Family Members ◽  
Institutional Review Boards ◽  
Life Care ◽  
Knowledge And Skills ◽  
Bereaved Family ◽  
Care Evaluation

9577 Background: The Japan Hospice and Palliative Care Evaluation (J-HOPE) study was conducted in 2007 and 2008. The aim of the study was to evaluate the quality of end-of-life care at regional cancer centers (CCs), inpatient palliative care units (PCUs), and home hospices (HHs) in Japan from the perspective of bereaved family members. Methods: A nationwide cross-sectional mail survey was conducted in 2007 and 2008. The survey was sent to bereaved families 6–18 months after the death of a patient at 56 CCs, 100 PCUs, or 14 HHs. Outcome measures were the good death inventory, the care evaluation scale, and overall satisfaction with care. The protocol of this study was approved by the institutional review boards of each participating institution. Results: Of the 13,181 bereaved family members that received the survey, 8,163 (62%) participants returned their responses. Among bereaved family members, significantly fewer responded that patients were free from physical distress at CCs (50%) than PCUs (80%) and HHs (73%) (P<0.0001). Significantly fewer patients trusted the physicians at CCs (79%) when compared with PCUs (83%) and HHs (88%) (P<0.0001). Significantly fewer patients were valued as people at CCs (83%) than PCUs (93%) and HHs (95%) (P<0.0001). In addition, significantly fewer participants felt physicians should have worked to improve the patients' symptoms more quickly at CCs (55%) when compared with PCUs (78%) and HHs (77%) (P<0.0001). Significantly fewer participants felt nurse should improve their knowledge and skills regarding end-of-life care at CCs (51%) when compared with PCUs (76%) and HHs (78%) (P<0.0001). A total of 51% of participants reported that nurses should improve their knowledge and skills regarding end-of-life care. Finally, significantly fewer participants were satisfied with the end-of-life care provided by CCs (80%) when compared with PCUs (93%) and HHs (94%) (P<0.0001). Conclusions: Overall, the bereaved family members appreciated the end-of-life care provided by CCs, PCUs, and HHs in Japan. However, in some situations, the quality of end-of-life care provided by CCs was lower than that provided by PCUs and HHs. No significant financial relationships to disclose.

scholarly journals Bereaved family members’ perceptions of the quality of end-of-life care across four types of inpatient care settings

2017 ◽  
Vol 16 (1) ◽  
Author(s):  
Kelli Stajduhar ◽  
Richard Sawatzky ◽  
S. Robin Cohen ◽  
Daren K. Heyland ◽  
Diane Allan ◽  
...  
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
Inpatient Care ◽  
Family Members ◽  
Life Care ◽  
Bereaved Family

Bereaved Family Members’ assessments of the quality of End-Of-Life Care: What is Important?

2011 ◽  
Vol 27 (4) ◽  
pp. 261-269 ◽  
Author(s):  
Kelli I. Stajduhar ◽  
Laura Funk ◽  
S. Robin Cohen ◽  
Allison Williams ◽  
Darcee Bidgood ◽  
...  
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
Family Members ◽  
Life Care ◽  
Bereaved Family

scholarly journals Got Volunteers? Association of Hospice Use of Volunteers With Bereaved Family Members' Overall Rating of the Quality of End-of-Life Care

2010 ◽  
Vol 39 (3) ◽  
pp. 502-506 ◽  
Author(s):  
Eve M. Block ◽  
David J. Casarett ◽  
Carol Spence ◽  
Pedro Gozalo ◽  
Stephen R. Connor ◽  
...  
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
Family Members ◽  
Life Care ◽  
Hospice Use ◽  
Bereaved Family

scholarly journals Mental health is the most important factor influencing quality of life in elderly left behind when families migrate out of rural China

2014 ◽  
Vol 22 (3) ◽  
pp. 364-370 ◽  
Author(s):  
Jian-fei Xie ◽  
Si-qing Ding ◽  
Zhu-qing Zhong ◽  
Qi-feng Yi ◽  
Sai-nan Zeng ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Psychological Intervention ◽  
Rural China ◽  
Family Members ◽  
The Elderly ◽  
Cluster Sampling ◽  
Cross Sectional ◽  
Left Behind

OBJECTIVES: to investigate the quality of life and the associated factors on left behind elderly in rural China.METHOD: the research was conducted cluster sampling to select 456 elderly left behind when family members migrated out of rural China to participate in a cross-sectional study by completing a general data questionnaire and Quality of Life questionnaire.RESULTS: 91.5% of the elderly requested psychological counseling and education. For the elderly, scores for mental health (39.56±13.73) were significantly lower compared with Chinese standard data (61.6±13.7) (P<0.001). Age, chronic disease type, gender, residence pattern and economic support from children were the main psychological factors influencing this population.CONCLUSION: mental health is the most important factor influencing quality of life of elderly left behind when family members migrated out of rural China. Our study suggested a need to widely establish a general practitioner team for psychological intervention for improving rural elderly people's Quality of Life level, especially in the psychological domain.

Evaluation of End-of-Life Cancer Care From the Perspective of Bereaved Family Members: The Japanese Experience

2008 ◽  
Vol 26 (23) ◽  
pp. 3845-3852 ◽  
Author(s):  
Mitsunori Miyashita ◽  
Tatsuya Morita ◽  
Kei Hirai
Keyword(s):  
End Of Life ◽  
Cancer Care ◽  
End Of Life Care ◽  
Family Members ◽  
Evaluation Process ◽  
Life Care ◽  
Processes Of Care ◽  
Outcomes Of Care ◽  
Bereaved Family

Surveying bereaved family members could enhance the quality of end-of-life cancer care in inpatient palliative care units (PCUs). We systematically reviewed nationwide postbereavement studies of PCUs in Japan and attempts to develop measures for evaluating end-of-life care from the perspective of bereaved family members. The Care Evaluation Scale (CES) for evaluating the structures and processes of care, and the Good Death Inventory (GDI) for evaluating the outcomes of care were considered suitable methods. We applied a shortened version of the CES to three nationwide surveys from 2002 to 2007. We developed the CES as an instrument to measure the structures and processes of care and the GDI as an outcomes measure for end-of-life cancer care from the perspective of bereaved family members. We conducted three nationwide surveys in 1997, 2001, and 2007 (n = 850, 853, and 5,301, respectively). Although six of the 10 areas of the CES showed significant improvements between the two time points investigated, we identified considerable potential for further progress. Feedback from surveys of bereaved family members might help to improve the quality of end-of-life cancer care in inpatient PCUs. However, the effectiveness of feedback procedures remains to be confirmed. Furthermore, there is a need to extend the ongoing evaluation process to home care hospices and general hospitals, including cancer centers, identify the limitations of end-of-life care in all settings, and develop strategies to overcome them.

Family Perspectives on Aggressive End-of-Life Care (DRAFT)

2018 ◽  
Author(s):  
Ravi B. Parikh ◽  
Oreofe Odejide
Keyword(s):  
End Of Life ◽  
Cancer Care ◽  
End Of Life Care ◽  
Family Members ◽  
Life Care ◽  
Aggressive Cancer ◽  
Care Family ◽  
Bereaved Family ◽  
The Impact

The chapter describes the study by Wright and colleagues examining the impact of aggressive cancer care on bereaved family members’ perceptions of end-of-life care. Family members of patients with advanced-stage lung or colorectal cancer were interviewed after their loved ones died to elicit perceptions of care. This chapter presents family-member reported rating of quality of end-of-life care and the association of such rating with aggressive cancer care, including intensive care unit admission within 30 days of death, and no hospice or late hospice admission. It also reviews family members’ perception of whether patients received end-of-life care that was concordant with their wishes. This chapter highlights the downstream impact of aggressive cancer care on family members and the resulting implications for end-of-life care.

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