Primary palliative care in southern Brazil: the legacy of Cicely Saunders

ABSTRACT Objectives: to investigate the process of implementing advance directives in palliative care teams in southern Brazil. Methods: an exploratory-descriptive study with a qualitative approach conducted with 51 professionals from seven palliative care teams from December 2018 to April 2019. Data were collected through semi-structured online interviews and submitted to discursive textual analysis. Results: the implementation process starts on approach of the advance directives with patients, so that their wishes and desires are the guiding axis for planning care and conduct. Final Considerations: the palliative philosophy is important with regard to advance directives, due to the preparation of these professionals in the search for dignity, quality of life and respect for patient autonomy, in addition to reducing suffering and offering dignified death, based on the understanding of human finitude as a natural process that belongs to life.

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Palliative Care: A Look at the Experience in Southern Brazil

Hospice and Palliative Medicine International Journal ◽

10.15406/hpmij.2017.01.00017 ◽

2017 ◽

Vol 1 (3) ◽

Cited By ~ 1

Author(s):

Adrize Rutz Porto ◽

Julieta Maria Carriconde Fripp ◽

Isabel Cristina de Oliveira Arrieira

Keyword(s):

Palliative Care ◽

Southern Brazil

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EXPERIENCE OF FAMILIES FACING CANCER IN PALLIATIVE CARE

Texto & Contexto - Enfermagem ◽

10.1590/1980-265x-tce-2020-0669 ◽

2021 ◽

Vol 30 ◽

Author(s):

Cínthia Cristina Oliveski ◽

Nara Marilene Oliveira Girardon-Perlini ◽

Silvana Bastos Cogo ◽

Franciele Roberta Cordeiro ◽

Fernanda Cristóvão Martins ◽

...

Keyword(s):

Palliative Care ◽

Family Dynamics ◽

Comparative Method ◽

Illness Experience ◽

Methodological Framework ◽

Southern Brazil ◽

Substantive Theory ◽

Daily Lives ◽

Depth Interview ◽

Constant Comparative Method

ABSTRACT Objective: to understand the experience of families facing cancer in palliative care of one of its members. Method: this is a qualitative research based on the theoretical-methodological framework of Grounded Theory. Six families participated, totaling 15 people. Data were collected from January to December 2019 in the homes of families in a municipality in southern Brazil, through an in-depth interview with the construction of a genogram. Analysis followed the constant comparative method steps: open, selective and theoretical coding. Results: the concepts discovering cancer; suffering with the reality imposed by the illness; preparing to face illness; deciding on treatment; facing the finitude of life, they are part of the central category “Living one day at a time”, which symbolically defines families’ experiences. The substantive theory elaborated shows that the definitions, actions and strategies adopted by families, in family dynamics and in interpersonal interactions, along a trajectory that culminates in the terminality of a relative’s life, is permeated by hope maintenance. Conclusion: throughout the illness experience, families promote changes in their daily lives and in family dynamics, undergoing adaptations and using their internal strengths in an attempt to re-establish the balance prior to the disease. Families live with uncertainty about the future, but it is the hope that drives them to live one day at a time.

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Much Ado About Fried Chicken: Abetting Aspiration or Respecting Autonomy?

American Journal of Speech-Language Pathology ◽

10.1044/2019_ajslp-18-0207 ◽

2019 ◽

Vol 28 (3) ◽

pp. 1356-1362

Author(s):

Laurence Tan Lean Chin ◽

Yu Jun Lim ◽

Wan Ling Choo

Keyword(s):

Palliative Care ◽

End Of Life ◽

Multidisciplinary Team ◽

Biopsychosocial Model ◽

Family Members ◽

Clinical Decisions ◽

Goals Of Care ◽

Complex Needs ◽

Aspiration Risk ◽

Patient Centric

Purpose Palliative care is a philosophy of care that encompasses holistic, patient-centric care involving patients and their family members and loved ones. Palliative care patients often have complex needs. A common challenge in managing patients near their end of life is the complexity of navigating clinical decisions and finding achievable and realistic goals of care that are in line with the values and wishes of patients. This often results in differing opinions and conflicts within the multidisciplinary team. Conclusion This article describes a tool derived from the biopsychosocial model and the 4-quadrant ethical model. The authors describe the use of this tool in managing a patient who wishes to have fried chicken despite aspiration risk and how this tool was used to encourage discussions and reduce conflict and distress within the multidisciplinary team.

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