Building Capacity for Community-Based Participatory Research for Health Disparities in Canada: The Case of “Partnerships in Community Health Research”

2010 ◽  
Vol 12 (2) ◽  
pp. 280-292 ◽  
Author(s):  
Jeffrey R. Masuda ◽  
Genevieve Creighton ◽  
Sean Nixon ◽  
James Frankish
2009 ◽  
Vol 10 (1) ◽  
pp. 67-75 ◽  
Author(s):  
Karen Jaynes Williams ◽  
Patricia Gail Bray ◽  
Carrie K. Shapiro-Mendoza ◽  
Ilana Reisz ◽  
Jane Peranteau

The authors discuss strategies used and lessons learned by a health foundation during development of a community health assessment model incorporating community-based participatory research (CBPR) approaches. The assessment model comprises three models incorporating increasing amounts of CPBR principles. Model A combines local-area analysis of quantitative data, qualitative information (key informants, focus groups), and asset mapping. Model B, a community-based participatory model, emphasizes participatory rural appraisal approaches and quantitative assessment using rapid epidemiological assessment. Model C, a modified version of Model B, is financially more sustainable for our needs than Model B. The authors (a) describe origins of these models and illustrate practical applications and (b) explore the lessons learned in their transition from a traditional, nonparticipatory, quantitative approach to participatory approaches to community-health assessment. It is hoped that this article will contribute to the growing body of knowledge of practical aspects of incorporating CBPR approaches into community health assessments.


Author(s):  
Tarun Reddy Katapally

UNSTRUCTURED Citizen science enables citizens to actively contribute to all aspects of the research process, from conceptualization and data collection, to knowledge translation and evaluation. Citizen science is gradually emerging as a pertinent approach in population health research. Given that citizen science has intrinsic links with community-based research, where participatory action drives the research agenda, these two approaches could be integrated to address complex population health issues. Community-based participatory research has a strong record of application across multiple disciplines and sectors to address health inequities. Citizen science can use the structure of community-based participatory research to take local approaches of problem solving to a global scale, because citizen science emerged through individual environmental activism that is not limited by geography. This synergy has significant implications for population health research if combined with systems science, which can offer theoretical and methodological strength to citizen science and community-based participatory research. Systems science applies a holistic perspective to understand the complex mechanisms underlying causal relationships within and between systems, as it goes beyond linear relationships by utilizing big data–driven advanced computational models. However, to truly integrate citizen science, community-based participatory research, and systems science, it is time to realize the power of ubiquitous digital tools, such as smartphones, for connecting us all and providing big data. Smartphones have the potential to not only create equity by providing a voice to disenfranchised citizens but smartphone-based apps also have the reach and power to source big data to inform policies. An imminent challenge in legitimizing citizen science is minimizing bias, which can be achieved by standardizing methods and enhancing data quality—a rigorous process that requires researchers to collaborate with citizen scientists utilizing the principles of community-based participatory research action. This study advances SMART, an evidence-based framework that integrates citizen science, community-based participatory research, and systems science through ubiquitous tools by addressing core challenges such as citizen engagement, data management, and internet inequity to legitimize this integration.


2018 ◽  
Vol 2 (3) ◽  
pp. 147-155 ◽  
Author(s):  
Scott D. Rhodes ◽  
Jorge Alonzo ◽  
Lilli Mann-Jackson ◽  
Amanda E. Tanner ◽  
Aaron T. Vissman ◽  
...  

IntroductionThe Latino population in the United States is rapidly growing and faces profound health disparities; however, engagement of Latinos in biomedical research remains low. Our community-based participatory research partnership has recruited 2083 Spanish-speaking Latinos into 21 studies over 15 years. We sought to identify and describe the strategies we have used to successfully recruit and retain Spanish-speaking Latinos in research.MethodsWe abstracted and analyzed data from archived study notes, progress reports, team meeting minutes, and in-depth interviews conducted annually from community-based participatory research partnership members. We used a nominal group process to refine and prioritize strategies.ResultsOverall, 13 recruitment strategies and 12 retention strategies emerged. These strategies relied on the creativity and perseverance of the study team and partners.ConclusionsIt is essential that we develop and disseminate effective recruitment and retention strategies that engage Latinos in biomedical research to reduce health disparities and promote health equity.


2018 ◽  
Vol 39 (2) ◽  
pp. 171-190 ◽  
Author(s):  
Thomas M. Ludden ◽  
Yhenneko J. Taylor ◽  
Laura K. Simmons ◽  
Heather A. Smith ◽  
Brisa Urquieta de Hernandez ◽  
...  

2014 ◽  
Vol 29 (4) ◽  
pp. 318-334 ◽  
Author(s):  
Valerie Bryan ◽  
Willette Brye ◽  
Kenneth Hudson ◽  
Leevones Dubose ◽  
Shantisha Hansberry ◽  
...  

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