Selling the product: Strategies to increase recruitment and retention of Spanish-speaking Latinos in biomedical research

IntroductionThe Latino population in the United States is rapidly growing and faces profound health disparities; however, engagement of Latinos in biomedical research remains low. Our community-based participatory research partnership has recruited 2083 Spanish-speaking Latinos into 21 studies over 15 years. We sought to identify and describe the strategies we have used to successfully recruit and retain Spanish-speaking Latinos in research.MethodsWe abstracted and analyzed data from archived study notes, progress reports, team meeting minutes, and in-depth interviews conducted annually from community-based participatory research partnership members. We used a nominal group process to refine and prioritize strategies.ResultsOverall, 13 recruitment strategies and 12 retention strategies emerged. These strategies relied on the creativity and perseverance of the study team and partners.ConclusionsIt is essential that we develop and disseminate effective recruitment and retention strategies that engage Latinos in biomedical research to reduce health disparities and promote health equity.

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Research From a Diné-Centered Perspective and the Development of a Community-Based Participatory Research Partnership

Health Education & Behavior ◽

10.1177/10901981211011926 ◽

2021 ◽

Vol 48 (3) ◽

pp. 361-370

Author(s):

Vincent Werito ◽

Lorenda Belone

Keyword(s):

Health Disparities ◽

Participatory Research ◽

Community Based Participatory Research ◽

Well Being ◽

Research Approach ◽

Research Partnership ◽

Community Based ◽

Community Engaged Research ◽

Intervention Approach ◽

Participatory Research Approach

Purpose. Indigenous ( Diné) communities have long endured high rates of behavioral and mental health diseases like depression, drug and alcohol dependency, and suicide due to historical trauma and posttraumatic stress disorders. Western research methods used to address these issues have often failed to provide sufficient understanding of the culturally nuanced dynamics underpinning these health disparities in Indigenous contexts. As a result, Indigenous health disparities have actually increased and complex culture-based relationships that influence health outcomes are underconceptualized. Aim. For the first time a community-based participatory research approach from a Diné perspective is introduced to three Navajo communities in New Mexico to collaboratively explore their perspectives about community-engaged research and community well-being from a Diné lens. The overarching research question was: Can a community-based participatory research approach embedded within a Diné research paradigm be utilized to develop a culturally centered intervention approach? Methods. The study utilized a mixed method approach that included surveys and focus groups. Results. Six overarching themes emerged that underscored the important role of utilizing a community-based participatory Diné-centered approach to define community well-being and increase community agency to address their own health disparities. Conclusion. Indigenous-centered community-engaged research can potentially become an intervention approach for informing Indigenous communities’ understandings of well-being by drawing upon local cultural Indigenous knowledge. This study demonstrated that developing an effective community-engaged research partnership to address health disparities in a Diné context must be informed by a Diné paradigm grounded in local community cultural knowledge.

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A University–Tribal Community-Based Participatory Research Partnership: Determining Community Priorities for the Health of Youth

Nursing Research Using Participatory Action Research ◽

10.1891/9780826126146.0008 ◽

2014 ◽

Author(s):

Janet Katz

Keyword(s):

Participatory Research ◽

Community Based Participatory Research ◽

Tribal Community ◽

Research Partnership ◽

Community Based

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Community Priority Index: utility, applicability and validation for priority setting in community-based participatory research

Journal of Public Health Research ◽

10.4081/jphr.2015.443 ◽

2015 ◽

Vol 4 (2) ◽

Cited By ~ 2

Author(s):

Hamisu M. Salihu ◽

Abraham A. Salinas-Miranda ◽

Wei Wang ◽

DeAnne Turner ◽

Estrellita Lo Berry ◽

...

Keyword(s):

Decision Making ◽

Participatory Research ◽

Priority Setting ◽

Nominal Group Technique ◽

Community Based Participatory Research ◽

Self Esteem ◽

Nominal Group ◽

Community Settings ◽

Community Based ◽

Priority Index

Background. Providing practitioners with an intuitive measure for priority setting that can be combined with diverse data collection methods is a necessary step to foster accountability of the decision-making process in community settings. Yet, there is a lack of easy-to-use, but methodologically robust measures, that can be feasibly implemented for reliable decision-making in community settings. To address this important gap in community based participatory research (CBPR), the purpose of this study was to demonstrate the utility, applicability, and validation of a community priority index in a community-based participatory research setting. Design and Methods. Mixed-method study that combined focus groups findings, nominal group technique with six key informants, and the generation of a Community Priority Index (CPI) that integrated community importance, changeability, and target populations. Bootstrapping and simulation were performed for validation. Results. For pregnant mothers, the top three highly important and highly changeable priorities were: stress (CPI=0.85; 95%CI: 0.70, 1.00), lack of affection (CPI=0.87; 95%CI: 0.69, 1.00), and nutritional issues (CPI=0.78; 95%CI: 0.48, 1.00). For non-pregnant women, top priorities were: low health literacy (CPI=0.87; 95%CI: 0.69, 1.00), low educational attainment (CPI=0.78; 95%CI: 0.48, 1.00), and lack of self-esteem (CPI=0.72; 95%CI: 0.44, 1.00). For children and adolescents, the top three priorities were: obesity (CPI=0.88; 95%CI: 0.69, 1.00), low self-esteem (CPI=0.81; 95%CI: 0.69, 0.94), and negative attitudes toward education (CPI=0.75; 95%CI: 0.50, 0.94). Conclusions. This study demonstrates the applicability of the CPI as a simple and intuitive measure for priority setting in CBPR.

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