Transition Discoveries: Participatory Action Research to Design Pathways to Success

Author(s):  
Joan Kester ◽  
Matthew F. Flanagan ◽  
Julie Stella

A multiyear critical participatory action research study was conducted with a total of 503 youth and young adults with disabilities (ages 14–25), family members, and transition stakeholders across the State of Pennsylvania. Youth and young adults with disabilities, families, and stakeholders served as participant researchers who collaborated in operationalizing post-school outcomes and the high-quality transition practices, resources, services, and supports that contribute to achieving them. As a result of this study, the Transition Discoveries Quality Indicator Framework was developed. We provide examples of how the content of this framework can be used to design experiences for youth and families to learn about transition planning, programs, and services. Guidelines for ecologically relevant research and implications for practice in secondary transition are provided.

Autism ◽  
2020 ◽  
Vol 24 (5) ◽  
pp. 1246-1259 ◽  
Author(s):  
Gary Yu Hin Lam ◽  
Emily Holden ◽  
Megan Fitzpatrick ◽  
Linda Raffaele Mendez ◽  
Karen Berkman

Past research has largely focused on the negative aspects of well-being of autistic young adults during the post-school transition. Research that meaningfully includes autistic individuals and captures their perspectives of positive well-being is essential for stakeholders to better understand how to provide services that respond to the needs and wants of the autistic community. In the current study, 14 autistic young adults in a post-school transition program participated in a Photovoice project and used photos to express their ideas about well-being. A participatory action research approach was used to support participants’ active engagement in the research processes and to encourage meaningful expression of their first-person perspectives. Results revealed an account of well-being reflecting expressions of individuality and growth, the significance of having close relationships, and a sense of connection with the community. This study has implications for research and practice that promotes well-being among the autistic community using approaches that are ethically informed and inclusive of autistic voices. Lay abstract Past research has mainly focused on autistic people’s deficits and poor outcomes compared to other groups of people. Little is known about their positive life experiences, and how to support them to achieve a higher quality of life. It is important to include autistic individuals in research so that they can influence how their voices are represented in a meaningful way and how the research results will be useful to them. In this study, a university researcher collaborated with 14 autistic young adults in a post-school transition program to design and run the research, collect and analyze the data, and use the results to create a presentation to the community. Specifically, the participants took photos in daily life and discussed their ideas about what a good life means to them. Results showed that these young adults described themselves as uniquely and different, but they were eager to learn and adapt. They also valued their relationships with their families, friends, and animals around them, as well as the community at large. This research shows that autistic individuals have important perspectives to share and knowledge to contribute when they are given the opportunities to participate in different aspects of research. The findings will be useful in developing services and influencing policies that promote well-being among autistic adults.


Author(s):  
Lina Trigos-Carrillo ◽  
Laura Fonseca

Conducting critical community research during the COVID-19 pandemic has brought unexpected challenges to academic communities. In this chapter, the authors analyze the obstacles faced in a Critical Participatory Action Research (CPAR) education project with a rural community of former guerrilla members in the Amazon piedmont in Colombia. After this analysis, the authors present four CPAR principles to support critical community work during difficult times. The authors argue that communicative action, horizontal community participation in all the stages of the research process, time commitment, and the leverage of other competing needs should be guaranteed and maintained during times of crisis. CPAR offers opportunities to advocate better conditions for the most affected communities in moments of increasing inequality.


2019 ◽  
Vol 43 (4) ◽  
pp. 433-444 ◽  
Author(s):  
Michelle Fine ◽  
María Elena Torre

We present critical participatory action research as an enactment of feminist research praxis in psychology. We discuss the key elements of critical participatory action research through the story of a single, national participatory project. The project was designed by and for LGBTQIA+ (lesbian, gay, bisexual, trans, queer, intersex, asexual, plus) and gender-expansive youth; it was called What’s Your Issue? We provide details of the research project, the dreams, desires, experiences, and structural precarity of queer and trans youth. We write this article hoping readers will appreciate the complexities of identities, attend to the relentless commitment to recognition and solidarities, learn the ethical and epistemological principles of critical participatory action research as a feminist and intersectional praxis, and appreciate the provocative blend of research and action toward social justice. Online slides for instructors who want to use this article for teaching are available on PWQ's website at http://journals.sagepub.com/page/pwq/suppl/index


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