scholarly journals Enhancing the quality of life for palliative care cancer patients in Indonesia through family caregivers: a pilot study of basic skills training

2017 ◽  
Vol 16 (1) ◽  
Author(s):  
Martina Sinta Kristanti ◽  
Sri Setiyarini ◽  
Christantie Effendy
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Pilot Study ◽  
Cancer Patients ◽  
Family Caregivers ◽  
Basic Skills ◽  
Skills Training

scholarly journals Shifting Palliative Care Paradigm in Primary Care From Better Death to Better End-of-Life : A Swiss Pilot Study

2021 ◽  
Author(s):  
Johanna Sommer ◽  
Christopher Chung ◽  
Dagmar M. Haller ◽  
Sophie Pautex
Keyword(s):  
Quality Of Life ◽  
Primary Care ◽  
Palliative Care ◽  
Pilot Study ◽  
End Of Life ◽  
Cancer Patients ◽  
Advanced Cancer ◽  
Communication Skills ◽  
Advanced Cancer Patients

Abstract Background: Patients suffering from advanced cancer often loose contact with their primary care physician (PCP) during oncologic treatment and palliative care is introduced very late.The aim of this pilot study was to test the feasibility and procedures for a randomized trial of an intervention to teach PCPs a palliative care approach and communication skills to improve advanced cancer patients’ quality of life. Methods: Observational pilot study in 5 steps. 1) Recruitment of PCPs. 2) Intervention: training on palliative care competencies and communication skills addressing end-of-life issues.3) Recruitment of advanced cancer patients by PCPs. 4) Patients follow-up by PCPs, and assessment of their quality of life by a research assistant 5) Feedback from PCPs using a semi-structured focus group and three individual interviews with qualitative deductive theme analysis.Results: 8 PCPs were trained. PCPs failed to recruit patients for fear of imposing additional loads on their patients. PCPs changed their approach of advanced cancer patients. They became more conscious of their role and responsibility during oncologic treatments and felt empowered to take a more active role picking up patient’s cues and addressing advance directives. They developed interprofessional collaborations for advance care planning. Overall, they discovered the role to help patients to make decisions for a better end-of-life.Conclusions: PCPs failed to recruit advanced cancer patients, but reported a change in paradigm about palliative care. They moved from a focus on helping patients to die better, to a new role helping patients to define the conditions for a better end-of-life.Trial registration : The ethics committee of the canton of Geneva approved the study (2018-00077 Pilot Study) in accordance with the Declaration of Helsinki

Meaning-centered psychotherapy integrated with elements of compassion: A pilot study to assess feasibility and utility

2018 ◽  
Vol 16 (6) ◽  
pp. 643-647 ◽  
Author(s):  
Francisco Gil ◽  
Clara Fraguell ◽  
Llúcia Benito ◽  
Anna Casellas-Grau ◽  
Joaquin T. Limonero
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Psychological Distress ◽  
Pilot Study ◽  
Cancer Patients ◽  
Previous Treatment ◽  
Brief Interventions ◽  
Self Compassion ◽  
Psychotherapeutic Interventions

AbstractObjectiveThe main objective of this study is to establish emotional benefits of promoting and maintaining meaning in palliative care patients in the final weeks of life and to assess the benefits of including the compassion and self-compassion constructs in the Meaning-Centered Psychotherapy Model (MCP).MethodFifty-one cancer inpatients were randomly assigned to one of the three brief interventions for cancer patients in the end of life: the MCP-palliative care version, the MCP-compassionate palliative care (MCP-CPC), or standard counseling. Feasibility, acceptability, and utility were assessed in each condition. Likewise, patients’ opinions about the effectiveness of interventions’ elements were also collected.ResultOf the 51 patients that began one of the three interventions, 30 completed the three-session interventional program, as well as the pre- and posttreatment questionnaires. No significant differences were found between therapies in terms of the positive feedback of patients regarding the structure, focus, and length of the all three psychotherapeutic interventions. The most helpful elements or constructs reported by patients were meaning, self-compassion, compassion, legacy, and courage and commitment.Significance of resultsAn abbreviated version of MCP-CPC tailored to the needs of palliative care patients appears to be feasible, acceptable, and helps patients cope with the process of dying. Further research in bigger samples is needed to establish evidence for the feasibility, acceptability, and utility of a brief MCP-CPC for palliative care patients in their last weeks of life. More proposals of further elements are also needed to improve the results. Such research can create or refine previous treatment approaches which improve the quality of life and psychological distress in patients with advanced cancer.

“FAMILY CAREGIVERS (FCS) QUALITY OF LIFE (QOL) OUTCOMES DURING THE DEDICATED INPATIENT PALLIATIVE CARE (IPC) OF THEIR ADVANCED CANCER PATIENTS” – STUDY FROM A TERTIARY CARE CENTRE IN ANDHRA PRADESH, SOUTH INDIA.

2021 ◽  
pp. 80-81
Author(s):  
.Ajay Kumar Kondeti ◽  
Ambedkar Yadala
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Cancer Patients ◽  
Family Caregivers ◽  
Advanced Cancer ◽  
Tertiary Care ◽  
Advanced Cancer Patients ◽  
Rural Regions ◽  
Care Giving

Objectives: Family Caregivers (FCs) of cancer patients often suffer from impaired quality of life (QOL) due to stress arising from the responsibility of care giving. Thus, in this study we assessed family caregivers (FCs) quality of life and its association with demographic variables during inpatient palliative care (IPC) of their advanced cancer patients. Material and Methods: 211 FCs of advanced cancer patients were assessed using either English or Telugu versions of the Caregiver Quality of Life Cancer (CQOLC) index scales to evaluate their QOL. We used descriptive and correlation analyses to obtain statistical results.. Results: The summative mean CQOLC score was 54.42+/- 19.7. Statistically signicant higher scores were observed for FCs who reside in rural regions (p=0.27) and those who belong to Below poverty line (BPL) families (p=0.035) suggesting poor quality of life among these groups. High CQOLC score was noticed for socially backward (OBC's, SC and ST castes) communities, but statistically not signicant (p=0.210). Conclusion: FCs from rural regions and lower income groups experience poor QOL. Regular assessment, resource support and specialist care are needed for improving FCs quality of life.

Quality of life change and response shift in patients admitted to palliative care units: a pilot study

2005 ◽  
Vol 19 (5) ◽  
pp. 381-388 ◽  
Author(s):  
Michael A Echteld ◽  
Luc Deliens ◽  
Marcel E Ooms ◽  
Miel W Ribbe ◽  
Gerrit van der Wal
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Pilot Study ◽  
Response Shift ◽  
Life Change ◽  
Palliative Care Units

scholarly journals Depression, anxiety and quality of life in stroke survivors and their family caregivers: A pilot study using an actor/partner interdependence model

10.19082/4924 ◽  
2017 ◽  
Vol 9 (8) ◽  
pp. 4924-4933 ◽  
Author(s):  
Khaw Wan-Fei ◽  
Syed Tajuddin Syed Hassan ◽  
Lye Munn Sann ◽  
Siti Irma Fadhilah Ismail ◽  
Rosna Abdul Raman ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Pilot Study ◽  
Family Caregivers ◽  
Stroke Survivors ◽  
Actor Partner Interdependence Model
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