Transitional care for children and young people with life-threatening or life-limiting conditions

2011 ◽  
pp. 328-358
Author(s):  
Sophie Wood ◽  
Sarah Rees ◽  
Ting Wang ◽  
Amanda Marchant ◽  
Ashley Akbari ◽  
...  

IntroductionThe diagnosis, management and services available for mental disorders are of growing concern and controversy in the UK. Transitional care between child and adult services and the interface between primary and secondary/ specialist services is often disjointed and thresholds for referral to Child and Adolescent Mental Health Services are high. Objectives and ApproachRoutinely collected healthcare datasets and data linkage were used to identify patterns of healthcare utilisation by young people and young adults with mental health disorders across the four UK Nations. We explored the extent to which routinely collected datasets can contribute to an assessment of the health needs and the quality of care that children and young people with mental health disorders receive. Data was requested from the national data providers in each country. A series of descriptive analyses were performed and methods were developed for cross- national comparisons to be made (e.g. Four Nation Person Spell). ResultsIt is feasible to explore healthcare utilisation across the four countries of the UK using routine data. However the recording, availability and access varied considerably between countries, making meaningful comparisons challenging. Descriptive analyses showed strong deprivation gradients in the diagnoses and care provided for young people and young adults with mental health disorders. Depression and anxiety were the most commonly recorded mental health conditions in primary care. In secondary care drug/alcohol disorders and self-harm were the most commonly recorded. Re-admissions to emergency departments were higher for those admitted for self-harm or psychiatric conditions. Conclusion/ImplicationsRoutine data has the potential to make a difference to care. However collection and access needs to be standardised in order to improve efficiency and effectiveness in improving the care for children and young people with mental health disorders. MQ has funded an Adolescent Data Platform to facilitate this.


Author(s):  
Brogan Foster ◽  
Paul A. Brogan

This chapter describes the multidisciplinary team (MDT) involved in the care of children and young people with rheumatic disease: nurse, physiotherapy, occupational therapist, podiatry. The section on transitional care has been updated with reference to guidance and resources.


The multidisciplinary team 378The role of the clinical nurse specialist 380The role of the physiotherapist 382The role of the occupational therapist 384The role of the podiatrist 385Transitional care 387• The experienced MDT is integral to the holistic management of children and young people with rheumatic disease with the patient and family at the centre (...


2011 ◽  
Vol 65 (Suppl 1) ◽  
pp. A109-A109 ◽  
Author(s):  
L. Fraser ◽  
M. Miller ◽  
R. Hain ◽  
J. Aldridge ◽  
P. McKinney ◽  
...  

Sign in / Sign up

Export Citation Format

Share Document