scholarly journals 在中國的科研倫理規範體系建設中重視公眾參與

Author(s):  
Lian YU

LANGUAGE NOTE | Document text in Chinese; abstract also in English. It is an inspiring idea that public participation should be the key factor for determining the human embryo research policy. However, public participation is missing from the Chinese government's vision of an ethics regulation system for scientific research. This article argues that to develop human embryo research policy for China and a new regulation system globally, the most important tasks may be to set rules for public participation and to understand the views on human embryo and cell-based embryo research ethics held by different stakeholders and the Chinese public.

2021 ◽  
pp. 1-23
Author(s):  
Gianluca Montanari Vergallo

Abstract The paper addresses the issues of admissibility of human embryo research and the legal protection to be recognized, in light of the growing importance that scientific research has been gaining in the clinical and biomedical fields of embryonic stem cells for therapeutic purposes. As for human embryo experimentation, particularly on cryopreserved supernumerary embryos, European legislation varies, since the European Court has granted member States a wide margin of appreciation. Some countries, including Italy, have strict legislation protecting embryos from the fertilisation stage, whereas others have taken permissive approaches, allowing experimentation until 14 days after fertilisation. Science, however, has shown that the 14-day limit can be moved. The author finds it necessary to achieve broad international consensus and shared regulations. Lawmakers, however, need to balance respect for the principle of life, represented by the embryo, against scientific needs, in order to devise sound regulations safeguarding both apparently conflicting fundamental values.


Author(s):  
Ye NIE

LANGUAGE NOTE | Document text in Chinese; abstract also in English. 人類胚胎研究的“十四天規則”作為一條重要的倫理原則已實施四十餘年,被很多國家立法採納。近年來,隨著胚胎技術的飛速發展,科學家們對“十四天規則”提出了新的挑戰,也是對相關的倫理研究和公共政策的制訂提出的挑戰,即我們該怎樣看待人類胚胎研究的公共政策?Ana S litis等在〈新興人體胚胎研究技術、十四天規則和胚胎的特殊地位〉(馬修斯、洛伊、伊爾蒂斯2021)一文中鼓勵科學家從促進善治的角度來看待人類胚胎和胚狀體的研究政策,但並未深入探討其原因和意義,本文主要從善治的特徵出發通過對人類胚胎研究政策制訂中如何實現的探討而對該文的上述核心觀點進行回應。 In the article “Emerging Human Embryo Research Technologies, the 14-day Rule, and the Special Status of the Embryo,” one of the authors' core aims is to encourage scientists to look at human embryo research policy from the perspective of promoting good governance. Starting with the characteristics of good governance, this paper responds to Iltis et al. by discussing how to realize good governance in the formulation of human embryo research policy.


Author(s):  
Yu CAI ◽  
Ruiping FAN

LANGUAGE NOTE | Document text in Chinese; abstract also in English. 人類正處於前所未有的技術高速發展時代。特別是,NBIC技術(納米技術、生物技術、資訊技術和認知科學)彙集起來的發展,使得人類改造自身、進而超越自身的夢想不斷接近現實,但也為我們敲響了倫理學的警鐘:如果我們對生命技術的不斷突破和廣泛應用所牽涉的倫理價值缺乏充分的考量並施以必要的限制,那麼技術就無法得到有利的發展和公平的應用,甚至造成過分追求那些具有不可逆結果或不可逆傷害的生命技術的後果,使得現代生物醫學成為人類幸福的一種“錯誤承諾”。本期的兩篇主題論文以及十六篇評論文章,正是著力於探討這些影響深遠的生命倫理問題。 This issue of the journal contains two thematic papers, namely “Emerging Human Embryo Research Technologies, the 14-day Rule, and the Special Status of the Embryo” by Kirstin R. W. Matthews, Sam Lowe, and Ana S. Iltis, and “A Confucian Reflection on Transhumanism: How to Regulate Our Posthuman Future?” by Wang Jue, in addition to 16 commentary essays on ethical issues associated with rapidly developing biomedical technologies. The authors argue that scientific interests should not be the main driver of technological breakthroughs and applications. Rather, ethical commitments embedded in cultural traditions should play a positive role through public participation in legitimate policymaking.


2020 ◽  
Vol 20 (4) ◽  
pp. 339-367
Author(s):  
Jeanne M. Snelling

Over the last half-century, significant innovations have occurred in the fields of embryology and human assisted reproduction as a result of human embryo research. This dynamic and ethically complex field is generally subject to extensive regulatory oversight. This article examines New Zealand’s legal framework governing such research. It argues that, despite the core legislative objective of establishing a robust and flexible framework, the current legal regime established under the Human Assisted Reproductive Technology Act 2004 is a classic example of regulatory failure. While not a necessary outcome of the devolved, principles-based regulatory scheme, this failure is primarily due to the perceived lack of authority and independence of the statutory policymaking body established under the Act, as well as the broader regulatory environment in which it operates. It argues that a confluence of problems, including Ministerial overreach as well as a lack of transparency and accountability on the part of decision makers, undermine the legitimacy of the current embryo research policy. This regime not only unjustifiably prevents the conduct of valuable embryo research, but also hinders simple quality improvement practices undertaken in the course of ordinary IVF service provision. This article concludes that, given the significance of embryo research as well as the associated ethical and legal challenges, the issue of embryo research should be remitted back to Parliament to legislate directly as a matter of urgency.


2001 ◽  
Vol 31 (1) ◽  
pp. 16 ◽  
Author(s):  
Michael J. Meyer ◽  
Lawrence J. Nelson

Nature ◽  
1983 ◽  
Vol 302 (5903) ◽  
pp. 4-5
Author(s):  
Robert Walgate

Science ◽  
2021 ◽  
Vol 371 (6533) ◽  
pp. 998-1000
Author(s):  
Insoo Hyun ◽  
Annelien L. Bredenoord ◽  
James Briscoe ◽  
Sigal Klipstein ◽  
Tao Tan

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