scholarly journals The U-ARE Protocol: A Pragmatic Approach to Decisional Capacity Assessment for Clinical Research

2020 ◽  
Vol 73 (2) ◽  
pp. 431-442
Author(s):  
Rachel K.B. Hamilton ◽  
Cynthia H. Phelan ◽  
Nathaniel A. Chin ◽  
Mary F. Wyman ◽  
Nickolas Lambrou ◽  
...  
2021 ◽  
pp. medethics-2021-107571
Author(s):  
Scott Y H Kim ◽  
Nuala B Kane ◽  
Alexander Ruck Keene ◽  
Gareth S Owen

Most jurisdictions require that a mental capacity assessment be conducted using a functional model whose definition includes several abilities. In England and Wales and in increasing number of countries, the law requires a person be able to understand, to retain, to use or weigh relevant information and to communicate one’s decision. But interpreting and applying broad and vague criteria, such as the ability ‘to use or weigh’ to a diverse range of presentations is challenging. By examining actual court judgements of capacity, we previously developed a descriptive typology of justifications (rationales) used in the application of the Mental Capacity Act (MCA) criteria. We here critically optimise this typology by showing how clear definitions—and thus boundaries—between the criteria can be achieved if the ‘understanding’ criterion is used narrowly and the multiple rationales that fall under the ability to ‘use or weigh’ are specifically enumerated in practice. Such a typology-aided practice, in theory, could make functional capacity assessments more transparent, accountable, reliable and valid. It may also help to create targeted supports for decision making by the vulnerable. We also discuss how the typology could evolve legally and scientifically, and how it lays the groundwork for clinical research on the abilities enumerated by the MCA.


2020 ◽  
Vol 2 (7) ◽  
pp. 438-448
Author(s):  
Nadiya V. Yerich ◽  
Carolina Alvarez ◽  
Todd A. Schwartz ◽  
Serena Savage‐Guin ◽  
Jordan B. Renner ◽  
...  

2007 ◽  
Vol 64 (8) ◽  
pp. 966 ◽  
Author(s):  
Dilip V. Jeste ◽  
Barton W. Palmer ◽  
Paul S. Appelbaum ◽  
Shahrokh Golshan ◽  
Danielle Glorioso ◽  
...  

2006 ◽  
Vol 163 (8) ◽  
pp. 1323-1334 ◽  
Author(s):  
Laura B. Dunn ◽  
Milap A. Nowrangi ◽  
Barton W. Palmer ◽  
Dilip V. Jeste ◽  
Elyn R. Saks

2020 ◽  
pp. medethics-2020-106091
Author(s):  
Scott YH Kim ◽  
Dominic Mangino ◽  
Marie Nicolini

In euthanasia and/or assisted suicide (EAS) of persons with dementia, the controversy has mostly focused on decisionally incapable persons with very advanced dementia for whom the procedure must be based on a written advance euthanasia directive. This focus on advance euthanasia directive-based EAS has been accompanied by scant attention to the issue of decision-making capacity assessment of persons with dementia who are being evaluated for concurrent request EAS. We build on a previous analysis of concurrent request EAS cases from the Netherlands, which showed that many such cases involve persons with significant cognitive impairment. We use illustrative cases to describe the difficulty of determining decisional capacity in persons whose stage of dementia falls between severely impaired and mildly impaired. We show that the Dutch practice of capacity assessment in such dementia cases is difficult to reconcile with the widely accepted functional model of capacity—a model explicitly endorsed by the Dutch euthanasia review committees. We discuss why such deviations from the standard functional model might be occurring, as well as their ethical implications for dementia EAS policy and practice.


2015 ◽  
Vol 61 (2) ◽  
pp. 388-393 ◽  
Author(s):  
Giovanna Parmigiani ◽  
Gabriele Mandarelli ◽  
Claudia Dacquino ◽  
Pieritalo Pompili ◽  
Giovanni Lelli Chiesa ◽  
...  

1981 ◽  
Vol 45 (9) ◽  
pp. 585-588
Author(s):  
MJ Kutcher ◽  
TF Meiller ◽  
CD Overholser

1984 ◽  
Vol 48 (8) ◽  
pp. 448-452
Author(s):  
LA Tedesco ◽  
JE Albino ◽  
WM Feagans ◽  
RS Mackenzie

2001 ◽  
Vol 11 (2) ◽  
pp. 9-11
Author(s):  
Madalena Walsh ◽  
Nan Bernstein Ratner
Keyword(s):  

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