Equal access to breast cancer genetic counseling and testing

10.33540/899 ◽  
2021 ◽  
Author(s):  
◽  
Jeanine Adriana Maria van der Doelen
Keyword(s):  
Breast Cancer ◽  
Genetic Counseling ◽  
Equal Access ◽  
Cancer Genetic Counseling ◽  
Cancer Genetic ◽  
Counseling And Testing

scholarly journals Development of a plain-language guide for discussing breast cancer genetic counseling and testing with patients with limited health literacy

2020 ◽  
Author(s):  
J. A. M van der Giessen ◽  
M. G. E. M. Ausems ◽  
E. van Riel ◽  
A. de Jong ◽  
M. P. Fransen ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Genetic Counseling ◽  
Health Literacy ◽  
Healthcare Professionals ◽  
Cancer Genetic Counseling ◽  
Plain Language ◽  
Cancer Genetic ◽  
Limited Health Literacy ◽  
Counseling And Testing ◽  
Limited Health

Abstract Purpose Due to limited health literacy and resulting ineffective communication between healthcare professionals and patients, not all eligible patients are offered breast cancer genetic counseling and testing. We aimed to develop a plain-language guide to increase effective communication about genetic counseling and testing with breast cancer patients with limited health literacy. Methods Together with oncological healthcare professionals, we drafted a list of jargon words frequently used during (breast) cancer genetic counseling. In a focus group interview with breast cancer counselees with limited health literacy, who had received genetic counseling before, we reformulated these words in plain language. Low-literate individuals, who are not familiar with breast cancer care or genetic counseling, reflected on the draft of the guide. Completeness, acceptability, and perceived usability were tested in an online questionnaire among healthcare professionals. Results The result is a plain-language guide for genetic counseling and testing with 33 frequently used jargon words and a reformulation of these words in plain language. Acceptability and perceived usefulness of the guide among healthcare professionals (n = 58) were high. Conclusion The plain-language guide provides opportunities to facilitate communication about genetic counseling and testing with patients with limited health literacy and could enhance opportunities for patients to make informed decisions to participate in genetic testing. As the intention from healthcare professionals to use the plain-language guide is high, implementation of the guide in a real-life setting seems promising.

scholarly journals Breast Cancer Genetic Counseling: A Surgeon’s Perspective

2016 ◽  
Vol 3 ◽  
Author(s):  
Doreen M. Agnese ◽  
Raphael E. Pollock
Keyword(s):  
Breast Cancer ◽  
Genetic Counseling ◽  
Cancer Genetic Counseling ◽  
Cancer Genetic

scholarly journals Follow-up effects of a tailored pre-counseling website with question prompt in breast cancer genetic counseling

2015 ◽  
Vol 98 (1) ◽  
pp. 69-76 ◽  
Author(s):  
Akke Albada ◽  
Sandra van Dulmen ◽  
Peter Spreeuwenberg ◽  
Margreet G.E.M. Ausems
Keyword(s):  
Breast Cancer ◽  
Genetic Counseling ◽  
Cancer Genetic Counseling ◽  
Cancer Genetic ◽  
Question Prompt

Development and validation of a breast cancer genetic counseling knowledge questionnaire

2005 ◽  
Vol 56 (2) ◽  
pp. 182-191 ◽  
Author(s):  
Joel Erblich ◽  
Karen Brown ◽  
Youngmee Kim ◽  
Heiddis B. Valdimarsdottir ◽  
Barbara E. Livingston ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Genetic Counseling ◽  
Cancer Genetic Counseling ◽  
Cancer Genetic ◽  
Knowledge Questionnaire ◽  
Development And Validation

Active approach for breast cancer genetic counseling during radiotherapy: long-term psychosocial and medical impact

2014 ◽  
Vol 85 (6) ◽  
pp. 524-531 ◽  
Author(s):  
J.E. Baars ◽  
E.M.A. Bleiker ◽  
E. van Riel ◽  
C.C. Rodenhuis ◽  
M.E. Velthuizen ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Genetic Counseling ◽  
Cancer Genetic Counseling ◽  
Cancer Genetic ◽  
Active Approach

The Cancer Worry Scale Revised for Breast Cancer Genetic Counseling

2018 ◽  
Vol 41 (4) ◽  
pp. 311-319 ◽  
Author(s):  
Anita Caruso ◽  
Cristina Vigna ◽  
Paola Gremigni
Keyword(s):  
Breast Cancer ◽  
Genetic Counseling ◽  
Cancer Genetic Counseling ◽  
Cancer Worry ◽  
Cancer Genetic
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