Palliative Care in End - Stage Kidney Disease

2012 ◽  
Vol 02 (01) ◽  
Author(s):  
Paraskevi Theofilou
Keyword(s):  
Palliative Care ◽  
Kidney Disease ◽  
End Stage Kidney Disease ◽  
End Stage

scholarly journals Contrasting approaches to end of life and palliative care in end stage kidney disease

2012 ◽  
Vol 22 (4) ◽  
pp. 307
Author(s):  
RG Fassett ◽  
AN Koshy ◽  
R Mace ◽  
L Youl ◽  
S Challenor ◽  
...  
Keyword(s):  
Palliative Care ◽  
Kidney Disease ◽  
End Of Life ◽  
End Stage Kidney Disease ◽  
End Stage

scholarly journals Perceptions of patients with end-stage kidney disease (ESKD) and their informal caregivers on palliative care as a treatment option: a qualitative study

2020 ◽  
Author(s):  
Catherine Sarfo-Walters ◽  
Edward Appiah Boateng
Keyword(s):  
Palliative Care ◽  
Kidney Disease ◽  
Treatment Option ◽  
Phenomenological Study ◽  
Informal Caregivers ◽  
Structured Interviews ◽  
End Stage Kidney Disease ◽  
Middle Income ◽  
Depth Analysis ◽  
End Stage

Abstract Background: Palliative care is increasingly becoming an accepted treatment choice for many individuals diagnosed with end-stage kidney disease (ESKD). Yet, its utilisation is non-existent in many lower- and middle-income countries (LMICs). This study explored the perceptions of individuals with ESKD and their informal caregivers on palliative care as a treatment option for the disease in Ghana.Methods: This was a phenomenological study, with an in-depth analysis of data collected from nine individuals with ESKD and six informal caregivers through individual, face-to-face semi-structured interviews. The study was conducted in two renal centres within the Kumasi metropolis, Ghana among individuals with ESKD seeking care from both renal centres and their informal caregivers.Results: Three main themes were derived from this study – motivation for initiating haemodialysis, facing realities of haemodialysis, and considering palliative care. Participants felt that haemodialysis (HD) was not meeting their health expectations and demonstrated a general willingness to utilise palliative care if it would reduce suffering. Conclusions: This study has shown that individuals with ESKD or their informal caregivers would consider palliative care services, if available. It paves the way for discussions about Palliative care for ESKD to begin across renal centres within Ghana and other similar settings. Exploring perspectives of clinicians in such settings could inform strategies on how to implement Palliative care for ESKD management in such settings.

scholarly journals Renal palliative and supportive care in South Africa – a consensus statement

2020 ◽  
Vol 23 (1) ◽  
Author(s):  
Nicola Wearne ◽  
Rene Krause ◽  
Bianca Davidson ◽  
Frank Brennan
Keyword(s):  
South Africa ◽  
Palliative Care ◽  
Kidney Disease ◽  
Supportive Care ◽  
Healthcare Professionals ◽  
Consensus Statement ◽  
Communicable Diseases ◽  
End Stage Kidney Disease ◽  
High Burden ◽  
End Stage

In South Africa, there is a high burden of end-stage kidney disease (ESKD). This is due to the burgeoning epidemics of communicable diseases like HIV/AIDS and non-communicable diseases, particularly hypertension and diabetes mellitus. One of the most difficult situations encountered by healthcare professionals dealing with patients with ESKD in South Africa is the management of a conservative or palliative care pathway for the many patients who have no other option. Patients with advanced chronic kidney disease (CKD) have a high burden of physical and psychosocial symptoms, poor outcomes, and high costs of care. Many patients are managed in primary healthcare settings and either do not have access to palliative care or are not referred appropriately. Renal supportive and palliative care involves a multidisciplinary approach to managing patients with ESKD, to ensure that symptoms are managed optimally and to provide support during advanced disease. It aims to improve quality of life for patients and their families and must be provided alongside curative medical care. This support should include those unable to gain access to life-saving dialysis and it should also provide care for patients where dialysis is not the best option. The aim of this consensus statement is to assist healthcare providers to improve the management of symptoms and biosocial factors of patients with end-stage kidney disease in a South African context. The document was compiled through consensus building among healthcare professionals across South Africa. The professionals that are represented included nephrologists, palliative care physicians, social workers, nurses, paediatricians and hospital managers. We wish to acknowledge the contribution of Dr Frank Brennan, a leading expert in renal palliative and supportive care, who assisted greatly in the compilation of this document.

scholarly journals Perceptions of patients with end-stage kidney disease (ESKD) and their informal caregivers on palliative care as a treatment option: a qualitative study

2020 ◽  
Author(s):  
Catherine Sarfo-Walters ◽  
Edward Appiah Boateng
Keyword(s):  
Palliative Care ◽  
Kidney Disease ◽  
Treatment Option ◽  
Phenomenological Study ◽  
Informal Caregivers ◽  
Structured Interviews ◽  
End Stage Kidney Disease ◽  
Middle Income ◽  
Depth Analysis ◽  
End Stage

Abstract Background Palliative care is increasingly becoming an accepted treatment choice for many individuals diagnosed with end-stage kidney disease (ESKD). Yet, its utilisation is non-existent in many lower- and middle-income countries (LMICs). This study explored the perceptions of individuals with ESKD and their informal caregivers on palliative care as a treatment option for the disease in Ghana. Methods This was a phenomenological study, with an in-depth analysis of data collected from nine individuals with ESKD and six informal caregivers through individual, face-to-face semi-structured interviews. The study was conducted in two renal centres within the Kumasi metropolis, Ghana among individuals with ESKD seeking care from both renal centres and their informal caregivers. Results Three main themes were derived from this study – motivation for initiating haemodialysis, facing realities of haemodialysis, and considering palliative care. Participants felt that haemodialysis (HD) was not meeting their health expectations and demonstrated a general willingness to utilise palliative care if it would reduce suffering. Conclusions This study has shown that individuals with ESKD or their informal caregivers would consider palliative care services, if available. It paves the way for discussions about Palliative care for ESKD to begin across renal centres within Ghana and other similar settings. Exploring perspectives of clinicians in such settings could inform strategies on how to implement Palliative care for ESKD management in such settings.

scholarly journals Unmet Palliative Care Needs Among Patients With End-Stage Kidney Disease: A National Registry Study About the Last Week of Life

2018 ◽  
Vol 55 (2) ◽  
pp. 236-244 ◽  
Author(s):  
Lena Axelsson ◽  
Anette Alvariza ◽  
Jenny Lindberg ◽  
Joakim Öhlén ◽  
Cecilia Håkanson ◽  
...  
Keyword(s):  
Palliative Care ◽  
Kidney Disease ◽  
National Registry ◽  
Registry Study ◽  
End Stage Kidney Disease ◽  
Care Needs ◽  
End Stage ◽  
Palliative Care Needs

scholarly journals Palliative care needs of patients living with end-stage kidney disease not treated with renal replacement therapy: An exploratory qualitative study from Blantyre, Malawi

2017 ◽  
Vol 9 (1) ◽  
Author(s):  
Maya J. Bates ◽  
Alex Chitani ◽  
Gavin Dreyer
Keyword(s):  
Palliative Care ◽  
Renal Replacement Therapy ◽  
Kidney Disease ◽  
Qualitative Study ◽  
Replacement Therapy ◽  
Physical Symptoms ◽  
End Stage Kidney Disease ◽  
Care Needs ◽  
End Stage ◽  
Palliative Care Needs

Background: The burden of end-stage kidney disease (ESKD) in sub-Saharan Africa is increasing rapidly but the palliative care needs of patients living with ESKD are not well described. Resource limitations at both health system and patient level act as major barriers to patients receiving renal replacement therapy (RRT) in the form of dialysis. We undertook an exploratory qualitative study to describe the palliative care needs of patients with ESKD who were not receiving RRT, at a government teaching hospital in Blantyre, Malawi.Methods: A qualitative, explorative and descriptive design was used. Study participants were adults aged > 18 years with an estimated glomerular filtration rate < 15 ml/min on two separate occasions, three months apart, who either chose not to have or were not deemed suitable for RRT. Data were collected by means of semi-structured interviews.Results: In October and November 2013, interviews were conducted with 10 adults (7 women with median age of 60.5 years). All were hypertensive and four were on treatment for HIV. Four themes emerged from the data: changes in functional status because of physical symptoms, financial challenges impacting hospital care, loss of role within the family and the importance of spiritual and cultural beliefs.Conclusion: This study reports on four thematic areas which warrant further quantitative and qualitative studies both in Malawi and other low-resource settings, where a growing number of patients with ESKD unable to access RRT will require palliative care in the coming years.

scholarly journals Perceptions of patients with end-stage kidney disease (ESKD) and their informal caregivers on palliative care as a treatment option: a qualitative study

2020 ◽  
Author(s):  
Catherine Sarfo-Walters ◽  
Edward Appiah Boateng
Keyword(s):  
Palliative Care ◽  
Kidney Disease ◽  
Treatment Option ◽  
Phenomenological Study ◽  
Informal Caregivers ◽  
Structured Interviews ◽  
End Stage Kidney Disease ◽  
Middle Income ◽  
Depth Analysis ◽  
End Stage

Abstract Background: Palliative care is increasingly becoming an accepted treatment choice for many individuals diagnosed with end-stage kidney disease (ESKD). Yet, its utilisation is non-existent in many lower- and middle-income countries (LMICs). This study explored the perceptions of individuals with ESKD and their informal caregivers on palliative care as a treatment option for the disease in Ghana.Methods: This was a phenomenological study, with an in-depth analysis of data collected from nine individuals with ESKD and six informal caregivers through individual, face-to-face semi-structured interviews. The study was conducted in two renal centres within the Kumasi metropolis, Ghana among individuals with ESKD seeking care from both renal centres and their informal caregivers.Results: Three main themes were derived from this study – motivation for initiating haemodialysis, facing realities of haemodialysis, and considering palliative care. Participants felt that haemodialysis (HD) was not meeting their health expectations and demonstrated a general willingness to utilise palliative care if it would reduce suffering. Conclusions: This study has shown that individuals with ESKD or their informal caregivers would consider palliative care services, if available. It paves the way for discussions about palliative care for ESKD to begin across renal centres within Ghana and other similar settings. Exploring perspectives of clinicians in such settings could inform strategies on how to implement palliative care for ESKD management in such settings.

Sign in / Sign up

Export Citation Format

Share Document