scholarly journals Experiences of Iranian Women with Prenatal Diagnosis of Fetal Abnormalities: A Qualitative Study

Author(s):  
Fahimeh Ranjbar ◽  
Fatemeh Oskouie ◽  
Shahrzad Hashemi Dizaji ◽  
Maryam Gharacheh

Women are more likely to be diagnosed with congenital anomalies due to advances in new technologies in medical science. Following prenatal diagnosis of fetal abnormalities, women may be forced to make decisions about whether to continue a pregnancy with fetal abnormalities. This can be a dilemma for the women. The aim of the study was to explore women’s experiences of prenatal diagnosis of fetal abnormalities. A qualitative study was conducted in a referral women’s hospital in Tehran, Iran in 2018. Participants were a purposeful sample of 15 women with prenatal diagnosis of fetal abnormalities. Data were collected by individual, in-depth interviews. The conventional content analysis approach was used to analyze the data. Two main themes “emotional suffering” and “decision-making challenge” were extracted from the participants’ experiences. Emotional suffering consisted of subthemes “commiseration,” “self-blame,” “sense of guilt,” and “projection.” Decision-making challenge included subthemes “lack of support,” “stereotypical beliefs,” and “uncertainty.” The women’s experiences of prenatal diagnosis of fetal abnormalities were associated with emotional suffering and challenges in decision-making to continue or terminate the pregnancy. Strategies need to be employed to improve women’s autonomy in decision-making. Healthcare professionals should be trained in communication skills to provide appropriate counseling to support women with diagnosis of fetal anomalies.

2020 ◽  
Author(s):  
Fahimeh Ranjbar ◽  
Fatemeh Oskouie ◽  
Shahrzad Hashemi Dizaji ◽  
Maryam Gharacheh

Abstract Background: Women are more likely to be diagnosed with congenital anomalies. Following prenatal diagnosis of fetal abnormalities, women may be forced to make decisions about whether to continue a pregnancy with fetal abnormalities. This can be a dilemma for the women. The aim of the study was to explore women’s experiences of prenatal diagnosis of fetal abnormalities. Methods: A qualitative study was conducted in a referral women’s hospital in Tehran, Iran in 2018. Participants were a purposeful sample of 15 women with prenatal diagnosis of fetal abnormalities. Data were collected by individual, in-depth interviews. The conventional content analysis approach was used to analyze the data. Results: Two main themes “emotional suffering” and “decision-making challenge” were extracted from the participants’ experiences. Emotional suffering consisted of subthemes “sense of guilt”, “self-blame”, “questioning of God”, “commiseration” and “projection”. Decision making challenge included subthemes “distrust”, “possible cure”, “dark future”, “economic problems”, “stereotypical beliefs”, “coercion” and “lack of support”. Conclusions: The experience of prenatal diagnosis of fetal abnormalities was associated with emotional suffering and challenges in decision-making to continue or terminate the pregnancy. Strategies need to be employed to improve women’s autonomy in decision-making. Healthcare professionals should be trained in communication skills to provide appropriate counseling to support women with diagnosis of fetal anomalies.


2021 ◽  
Vol 21 (1) ◽  
Author(s):  
María López-Toribio ◽  
Paulina Bravo ◽  
Anna Llupià

Abstract Background Women’s engagement in healthcare decision-making during childbirth has been increasingly emphasised as a priority in maternity care, since it increases satisfaction with the childbirth experience and provides health benefits for women and newborns. The birth plan was developed as a tool to facilitate communication between health professionals and women in Spain, but their value in routine practice has been questioned. Besides, little is known about women’s experiences of participation in decision-making in the Spanish context. Thus, this study aimed to explore women’s experiences of participation in shared decision-making during hospital childbirth. Methods An exploratory qualitative study using focus groups was carried out in one maternity unit of a large reference hospital in Barcelona, Spain. Participants were first-time mothers aged 18 years or older who had had a live birth at the same hospital in the previous 12 months. Data collected were transcribed verbatim and analysed using a six-phase inductive thematic analysis process. Results Twenty-three women participated in three focus groups. Three major themes emerged from the data: “Women’s low participation in shared decision-making”, “Lack of information provision for shared decision-making”, and “Suggestions to improve women’s participation in shared decision-making”. The women who were willing to take an active role in decision-making encountered barriers to achieving this and some women did not feel prepared to do so. The birth plan was experienced as a deficient method to promote women’s participation, as health professionals did not use them. Participants described the information given as insufficient and not offered at a timely or useful point where it could aid their decision-making. Potential improvements identified that could promote women’s participation were having a mutually respectful relationship with their providers, the support of partners and other members of the family and receiving continuity of a coordinated and personalised perinatal care. Conclusion Enhancing women’s involvement in shared decision-making requires the acquisition of skills by health professionals and women. The development and implementation of interventions that encompass a training programme for health professionals and women, accompanied by an effective tool to promote women’s participation in shared decision-making during childbirth, is highly recommended.


2018 ◽  
Vol 15 (1) ◽  
Author(s):  
Ulrika Rehnström Loi ◽  
Matilda Lindgren ◽  
Elisabeth Faxelid ◽  
Monica Oguttu ◽  
Marie Klingberg-Allvin

2021 ◽  
pp. 107780122110139
Author(s):  
Jodie Murphy-Oikonen ◽  
Lori Chambers ◽  
Karen McQueen ◽  
Alexa Hiebert ◽  
Ainsley Miller

Rates of sexual victimization among Indigenous women are 3 times higher when compared with non-Indigenous women. The purpose of this secondary data analysis was to explore the experiences and recommendations of Indigenous women who reported sexual assault to the police and were not believed. This qualitative study of the experiences of 11 Indigenous women reflects four themes. The women experienced (a) victimization across the lifespan, (b) violent sexual assault, (c) dismissal by police, and (d) survival and resilience. These women were determined to voice their experience and make recommendations for change in the way police respond to sexual assault.


2003 ◽  
Vol 8 (4) ◽  
pp. 38-55 ◽  
Author(s):  
Razia Nordien ◽  
Nicky Alpaslan ◽  
Blanche Pretorius

This article provides a reflection on the experiences of Muslim women with regard to domestic violence. Opsomming Hierdie artikel werp ‘n blik op Moslemvroue se ervarings van huweliksgeweld. *Please note: This is a reduced version of the abstract. Please refer to PDF for full text.


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