Experiences of Low-Income Black and Latino Parents of Children With Special Health Care Needs: A Mixed-Methods Study

2016 ◽  
Vol 70 (4_Supplement_1) ◽  
pp. 7011510207p1
Author(s):  
Mansha Mirza ◽  
Melinda Stolley ◽  
Jessica Pinto ◽  
Amy Krischer
2004 ◽  
Vol 18 (3) ◽  
pp. 79-87 ◽  
Author(s):  
Janie Canty-Mitchell ◽  
Joan K Austin ◽  
Kim Jaffee ◽  
Rong Amy Qi ◽  
Nancy Swigonski

2019 ◽  
Vol 24 (1) ◽  
pp. 92-105
Author(s):  
Judy Bond ◽  
Susan Shanske ◽  
Roberta Hoffman ◽  
Abigail M Ross

This mixed-methods study examined providers’ experiences using a structured developmentally sensitive tool to assess transition readiness for youth with special health-care needs moving from pediatric to adult care. Twenty-eight health-care providers from three pediatric specialty clinics reported their experiences using the tool by surveys and semistructured telephone interviews. Qualitative data were analyzed using thematic analysis. Most (96%) believed routine practice should include a structured tool; 65.7% incorporated information from the tool into patient care plans. Salient themes pertained to practice behavior changes and implementation barriers. Integrating structured tools into standard clinical practice has the potential to optimize transition and improve patient care.


2019 ◽  
Vol 19 (7) ◽  
pp. 733-739 ◽  
Author(s):  
Anne E. Fuller ◽  
Nicole M. Brown ◽  
Lizbeth Grado ◽  
Suzette O. Oyeku ◽  
Rachel S. Gross

2011 ◽  
Vol 13 (3) ◽  
pp. e75 ◽  
Author(s):  
Caprice Knapp ◽  
Vanessa Madden ◽  
Hua Wang ◽  
Phyllis Sloyer ◽  
Elizabeth Shenkman

2020 ◽  
Author(s):  
Darcy McMaughan ◽  
Sherry Lin ◽  
Jennifer Ozmetin ◽  
Judith Gayle Beverly ◽  
Joshua Brog ◽  
...  

UNSTRUCTURED Youth with Special Health Care Needs (YSHCN) have chronic physical, developmental, behavioral, or emotional conditions that require health care and other services beyond typical utilization. We evaluated, using the concurrent think aloud (CTA) method , the Website Evaluation Questionnaire (WEQ), a task performance analysis, and Van Den Haak et als’ problem relevance metric, a care transition tool for providers of YSHCN. This tool, the Texas Transition Toolkit (T3) supports medical home providers by providing: a “one-stop-shop” to research literature on transition care, a catalog of relevant tools for providers to assess their organization or the YSHCN and families they work with, and guides for developing a transition program in their medical home. Our mixed-methods deep dive into the usability and functionality of the T3 focused on ten end-users from one medical home in Texas. While the T3 was well-received by end users, our analyses identified areas of concern regarding the application. End-users reported the most difficulty in two areas of functionality and usability: inefficient search function and navigation characteristics. This was reflected in both the CTA trial and the WEQ, and supported by the task performance and relevance analyses. Participants reported low satisfaction with search (75.3%) and navigation dimensions (ease of use=75.7%; hyperlinks=78%; and structure=79%), relatively high number of search and navigation related problems (n=21, or 67.75% of the total problems detected1), and low tasks completion for tasks involving finding tools (70%) which requires searching and navigation. The problems identified around search and navigation functionality were also assessed as ‘relevant’. Each of these areas of analyses triangulate on search and navigation issues, suggesting a robustness of results. Results from the usability trial provided a road map for optimizing the T3, and highlighted the importance of evaluating eHealth technologies with end users.


Sign in / Sign up

Export Citation Format

Share Document