Adverse Family Experiences Are Associated With Age of Diagnosis Among Children With Autism Spectrum Disorder

2017 ◽  
Vol 71 (4_Supplement_1) ◽  
pp. 7111505074p1 ◽  
Author(s):  
Kristin Berg ◽  
Beth Pfeiffer ◽  
Cheng-Shi Shiu ◽  
Kruti Acharya ◽  
Michael Msall ◽  
...  
Keyword(s):  
Autism Spectrum Disorder ◽  
Children With Autism ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Family Experiences ◽  
Age Of Diagnosis

Autism Spectrum Disorder Identification, Diagnosis, and Navigation of Services: Learning From the Voices of Caregivers

2020 ◽  
Vol 35 (4) ◽  
pp. 246-256
Author(s):  
Elizabeth Crais ◽  
Cara S. McComish ◽  
Emily F. Kertcher ◽  
Steve Hooper ◽  
Rebecca Pretzel ◽  
...  
Keyword(s):  
Autism Spectrum Disorder ◽  
Children With Autism ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Hispanic Children ◽  
White Children ◽  
Barriers To Screening ◽  
Age Of Diagnosis ◽  
Disorder Identification ◽  
Facilitators And Barriers

This study explored caregivers’ perspectives on facilitators and barriers to screening, diagnosis, and identifying and accessing other services for young children with autism spectrum disorder (ASD); and caregivers’ suggestions for improving the process. Eight focus groups with 55 caregivers were conducted. Four groups had a mix of White, African American, and Asian caregivers, and to gain broader populations, we recruited two groups of Spanish-speaking and two groups of American Indian caregivers. Some caregivers reported that their child and they received excellent services; however, the majority reported concerns about the services they and their child received. The findings also indicated a lower age of diagnosis and a smaller gap between concerns and diagnosis for White non-Hispanic children compared with Hispanic non-White children. Caregivers had many suggestions for ways to improve the process.

Sex Differences in Age of Diagnosis and First Concern among Children with Autism Spectrum Disorder

2020 ◽  
pp. 1-11
Author(s):  
Christina G. McDonnell ◽  
Elizabeth A. DeLucia ◽  
Elizabeth P. Hayden ◽  
Melanie Penner ◽  
Kristina Curcin ◽  
...  
Keyword(s):  
Autism Spectrum Disorder ◽  
Sex Differences ◽  
Children With Autism ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Age Of Diagnosis

scholarly journals Family experiences in discovering Autism Spectrum Disorder: implications for family nursing

2020 ◽  
Vol 73 (suppl 6) ◽  
Author(s):  
Tassia de Arruda Bonfim ◽  
Bianca Cristina Ciccone Giacon-Arruda ◽  
Catchia Hermes-Uliana ◽  
Sueli Aparecida Frari Galera ◽  
Maria Angélica Marcheti
Keyword(s):  
Autism Spectrum Disorder ◽  
Children With Autism ◽  
Descriptive Study ◽  
Autism Spectrum ◽  
Support Networks ◽  
Spectrum Disorder ◽  
Family Experiences ◽  
Family Nursing ◽  
The Family ◽  
Support Devices

abstract Objectives: to describe the family’s experience in the process of discovering the diagnosis and initiation of treatment of children with Autism Spectrum Disorder. Methods: this qualitative and descriptive study interviewed nine relatives of eight children on autism spectrum. They were inserted in health services, public education, and Association of Parents and Friends of The Exceptional of cities in the countryside of the Center-West. Data were collected through open interviews from July to September 2017. Data was submitted to thematic analysis. Results: at the beginning, the family was difficult to perceive the first atypical signs presented by the children. Families experience situations of vulnerability, since support networks are insufficient. The school played a significant role in recognizing unexpected behaviors. Final Considerations: support, offered by nurses, health professionals, school and social support devices, is important to family and children in this trajectory.

Timing of Parents’ Concerns Related to Autism Spectrum Disorder and its Diagnosis: A Mediation Analysis

2018 ◽  
Vol 21 ◽  
Author(s):  
Dunia Garrido ◽  
Gloria Carballo ◽  
Jonet Artis ◽  
Rocio Garcia-Retamero
Keyword(s):  
Autism Spectrum Disorder ◽  
Social Communication ◽  
Time Lag ◽  
Children With Autism ◽  
Autism Spectrum ◽  
Repetitive Behaviors ◽  
Spectrum Disorder ◽  
Mediation Analyses ◽  
Sibling Status ◽  
Age Of Diagnosis

AbstractParents are the first to indicate concerns about their child’s development in up to 80% of children with autism spectrum disorder (ASD). They often notice symptoms related to ASD around the first two years, but the average age of diagnosis is 3.5 years old. This study examined the relationships between parents’ early concerns and the time lag between suspicion and diagnosis. Forty-eight Spanish-speaking families were enrolled in this study. Parents were asked about early signs that made them think that their child could possibly have ASD. Mediation analyses showed that the child’s age at suspicion mediated between sibling status and the time lag between suspicion and a formal diagnosis (β = –.53, p < .01). Having another child with typical development accelerated parents’ detection of ASD signs (β = –.62, p < .001). The number of social-communication concerns that parents detected mediated this relationship (β = –.28, p < .01). Parents who reported more social-communication concerns perceived these signs earlier, but have to cope with a longer time lag until diagnosis than those who reported more concerns related to restrictive and repetitive behaviors and interests, or other developmental concerns. Moreover, this relationship between concerns of ASD and the diagnoses was explained by the child’s age. Training pediatricians on how to respond to parent questions and concerns could reduce the time lag between parents’ concerns and diagnosis of ASD.

Instruction Using Augmentative and Alternative Communication Supports: Description of Current Practices by Speech-Language Pathologists Who Work With Children With Autism Spectrum Disorder

2020 ◽  
Vol 29 (2) ◽  
pp. 586-596 ◽  
Author(s):  
Kaitlyn A. Clarke ◽  
Diane L. Williams
Keyword(s):  
Autism Spectrum Disorder ◽  
Augmentative And Alternative Communication ◽  
Communication Systems ◽  
Diagnostic Category ◽  
Children With Autism ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Alternative Communication ◽  
Speech Language Pathologists ◽  
Processing Differences

Purpose The aim of this research study was to examine common practices of speech-language pathologists (SLPs) who work with children with autism spectrum disorder (ASD) with respect to whether or not SLPs consider processing differences in ASD or the effects of input during their instruction. Method Following a qualitative research method, how SLPs instruct and present augmentative and alternative communication systems to individuals with ASD, their rationale for method selection, and their perception of the efficacy of selected interventions were probed. Semistructured interviews were conducted as part of an in-depth case report with content analysis. Results Based on completed interviews, 4 primary themes were identified: (a) instructional method , (b) input provided , (c) decision-making process , and (d) perceived efficacy of treatment . Additionally, one secondary theme, training and education received , was identified . Conclusions Clinicians reported making decisions based on the needs of the child; however, they also reported making decisions based on the diagnostic category that characterized the child (i.e., ASD). The use of modeling when teaching augmentative and alternative communication to individuals with ASD emerged as a theme, but variations in the method of modeling were noted. SLPs did not report regularly considering processing differences in ASD, nor did they consider the effects of input during instruction.

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