Effectiveness of an in‐home respite care program to support informal dementia caregivers: A comparative study

2019 ◽  
Vol 34 (10) ◽  
pp. 1534-1544 ◽  
Author(s):  
Sophie Vandepitte ◽  
Koen Putman ◽  
Nele Van Den Noortgate ◽  
Sofie Verhaeghe ◽  
Lieven Annemans
2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 766-766
Author(s):  
Deepika Pugalenthi Saravanan ◽  
Nihal Satyadev ◽  
Natashia Townsend ◽  
Katherine Rose ◽  
Harrison Ma ◽  
...  

Abstract Respite care is an important service to address caregivers' stress and fatigue when caring for a person with dementia (PWD). YouthCare is a non-medical, at-home, intergenerational respite care program that partners trained student volunteers with PWDs. The Family Caregiver Survey was created and distributed to caregivers of PWDs in Los Angeles to better understand interactions with the community and its caregiver services. The survey assesses caregivers’ demographics, daily activities, mental health, and the type of respite support needed. The survey findings (n=47) show that 53.2% of caregivers are 54 and older and 83% females. 40.4% of the caregivers listened to the radio primarily in the morning while 61.7% watched television in the afternoon to evening time. For transportation of PWDs to and from destinations, 78.3% of caregivers reported using their own vehicles. In regards to their mental health, 61.7% of the caregivers stated that they felt tired and unmotivated to complete daily activities. When asked why they sought respite services, 40% stated that they were overwhelmed by the responsibilities in addition to their own work. The groups that primarily support caregivers are family and professional respite services. Findings indicate that caregivers are most likely to trust resource recommendations from family and friends. Similar surveys should be administered in other cities and in rural locations to improve the generalizability of our findings.


2018 ◽  
Vol 30 (11) ◽  
pp. 1697-1706 ◽  
Author(s):  
Meredith Gresham ◽  
Megan Heffernan ◽  
Henry Brodaty

ABSTRACTBackground:Caring for persons with dementia is stressful for family caregivers. Caregiver training programs and respite care can reduce this stress and help maintain persons with dementia living longer in the community. We evaluated a program that combines caregiver training with a residential respite stay.Methods:In total, 90 dyads of persons with dementia and their caregivers, in groups of 3–6 dyads, volunteered to participate in a five-day residential training program and were followed-up 6 and 12 months later. The primary outcome was caregiver depression; secondary outcomes were measures of caregiver burden, unmet needs, person with dementia behavioral symptoms, and the quality of life and function.Results:Caregiver depression and burden were unchanged, despite decreasing function in persons with dementia. Caregivers’ unmet needs and behavioral symptoms in persons with dementia decreased significantly. Compared to a group of persons with dementia admitted for routine residential respite care, there was a marked reduction in permanent placement over 12 months.Conclusions:The Going to Stay at Home Program is a feasible and practicable model with benefits for caregivers and persons with dementia. It may lead to delay in institutionalization and may be applicable to other chronic conditions.


1990 ◽  
Vol 11 (3-4) ◽  
pp. 75-90 ◽  
Author(s):  
Lois Blume ◽  
Nancy A. Persily ◽  
Millie Mirones ◽  
Alda Swaby-Thorne ◽  
Sonya Albury
Keyword(s):  

1987 ◽  
Vol 11 (2-3) ◽  
pp. 5-7
Author(s):  
Barbara Szwarc

AbstractThis paper is based on the latest findings of the Children's Bureau of Australia recently released study entitled Particular Care Reconsidered by Barbara Szwarc. The Study, being a follow-up to the 1979 Report by N.J. Smith and G. Gregory entitled Particular Care was based on an Australia wide survey conducted in June 1984 on all children living in Non-Government Childrens Homes and Foster Care. Particular concentration in the study has been given to children in disadvantageous positions.Also referred to in this paper is another report by Barbara Swarcz on A Study Into The Victorian Children's Aid Society Respite Care Program During the 1985-86 Holiday Period. This report was based primarily on the perceptions of parents of the children who used the program.Of particular concern in this paper is the amount of undue injustice and inequality that such children and their families suffer just because their children are disabled.


2020 ◽  
Vol 35 (6) ◽  
pp. 601-609
Author(s):  
Sophie Vandepitte ◽  
Koen Putman ◽  
Nele Van Den Noortgate ◽  
Nick Verhaeghe ◽  
Lieven Annemans

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