Self Care
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2021 ◽  
Vol 11 ◽  
Author(s):  
Joshua D. Palmer ◽  
Gordon Chavez ◽  
Wesley Furnback ◽  
Po-Ya Chuang ◽  
Bruce Wang ◽  
...  

BackgroundTo date, there has been no large-scale, real-world study of the health-related quality of life outcomes for patients using tumor treating fields (TTFields) therapy for glioblastoma (GBM) treatment.MethodsA survey was mailed to 2,815 patients actively using TTFields for treatment of GBM in the USA (n = 2,182) and Europe (n = 633). The survey included patient-reported demographic and clinical information, as well as EuroQol’s EQ-5D-5L and visual analogue scale (EQ-VAS) overall health score.ResultsA total of 1,106 applicable patients responded to the survey (USA = 782 and Europe = 324), with a mean age of 58.6 years (SD = 12.3). The average time since diagnosis and time using TTFields were 21.5 months (SD = 25.1) and 13.5 months (SD = 13.2), respectively. Over 61% of patients had been diagnosed at least 1 year prior and 28.4% at least 2 years prior; 45 patients (4.2%) had been diagnosed at least 5 years prior. Progressed disease was reported in 307 patients, while 690 reported non-progressed disease. Regression analyses showed that GBM disease progression and older age had predictable negative associations (p < 0.001) with most EQ-5D-5L dimensions and the EQ-VAS. However, longer time since diagnosis was associated with improved self-care (p < 0.05), usual activities (p < 0.01), and EQ-VAS (p < 0.05) overall and in patients with progressed disease (p < 0.01, p < 0.05, and p < 0.01, respectively). Additionally, longer time using TTFields was associated with improved mobility (p < 0.05), self-care (p < 0.001), usual activities (p < 0.01), and EQ-VAS (p < 0.01) overall; with improved EQ-VAS in progression-free patients (p < 0.05); and with improved mobility (p < 0.05), self-care (p < 0.01), usual activities (p < 0.05), and EQ-VAS (p < 0.05) in patients with progressed disease.ConclusionThis is the largest real-world study of patient-reported quality of life in GBM and TTFields treatment to date. It shows unsurprising negative associations between quality of life and disease progression and older age, as well as more novel, positive associations between quality of life and longer time since diagnosis and time using TTFields therapy.


2021 ◽  
Vol 56 (4) ◽  
pp. 161-168
Author(s):  
Tereza Butková

What is care and who is paying for it? Valuing care and care work does not simply mean attributing care work more monetary value. To really achieve change, we must go so much further.As the world becomes seemingly more uncaring, the calls for people to be more compassionate and empathetic towards one another—in short, to care more—become ever-more vocal. The Care Crisis challenges the idea that people ever stopped caring, but also that the deep and multi-faceted crises of our time will be solved by simply (re)instilling the virtues of empathy. There is no easy fix.In this groundbreaking book, Emma Dowling charts the multi-faceted nature of care in the modern world, from the mantras of self-care and what they tell us about our anxieties, to the state of the social care system. She examines the relations of power that play profitability and care off in against one another in a myriad of ways, exposing the devastating impact of financialisation and austerity.The Care Crisis enquires into the ways in which the continued off-loading of the cost of care onto the shoulders of underpaid and unpaid realms of society, untangling how this off-loading combines with commodification, marketisation and financialisation to produce the mess we are living in. The Care Crisis charts the current experiments in short-term fixes to the care crisis that are taking place within Britain, with austerity as the backdrop. It maps the economy of abandonment, raising the question: to whom care is afforded? What would it mean to seriously value care?


2021 ◽  
Vol 4 (6) ◽  
pp. 1473-1479
Author(s):  
Trilia Trilia ◽  
Lilis Susanti ◽  
Merry Diana

ABSTRAK Hipertensi merupakan salah satu penyakit yang tergolong silent killer atau penyakit yang dapat membunuh manusia secara tidak terduga. Pengetahuan tentang hipertensi dan bagaimana penatalaksanaanya serta cara pencegahan terjadinya komplikasi  sangat diperlukan  pasien hipertensi dalam mengontrol tekanan darahnya dengan baik. Kesadaran diri pasien hipertensi untuk melakukan perawatan diri dengan tepat dan teratur sangat penting untuk mencegah komplikasi pada penderita hipertensi. Tujuan pengabdian masyarakat ini untuk mengetahui pentingnya aplikasi terapi kognitif tentang perawatan hipertensi dalam pencegahan kejadian stroke di Desa Kotaway Kabupaten Ogan Komering Ulu Selatan. Solusi yang ditawarkan dengan memberikan Terapi Kognitif berupa pengetahuan tentang perawatan hipertensi melalui ceramah dan pendidikan kesehatan. Kegiatan ini dilaksanakan pada tanggal 22 Februari -12  Maret 2021 di Desa Kotaway OKU Selatan bersamaan dengan kegiatan posyandu lansia . Peserta dalam kegiatan  14 pasien hipertensi. Untuk mengukur keberhasilan terapi kognitif ini  dilakukan pre dan post tes selama kegiatan berlangsung. Setelah dilakukan terapi kognitif pada pasien hipertensi, terjadi peningkatan pengetahuan sehingga mencegah terjadinya komplikasi pada pasien hipertensi Kata Kunci: Terapi kognitif, pencegahan dan hipertensi   ABSTRACT Hypertension is a disease that is classified as a silent killer or a disease that can kill humans unexpectedly. Knowledge of hypertension, how to manage it, and how to prevent complications are needed by hypertensive patients to control their blood pressure properly. Self-awareness of hypertensive patients to carry out self-care appropriately and regularly is very important to prevent complications in people with hypertension. The purpose of this community service is to find out the importance of the application of cognitive therapy on hypertension care in preventing stroke in Kotaway Village, South Ogan Komering Ulu District. The solution offered is by providing Cognitive Therapy in the form of knowledge about hypertension care through lectures and health education. This activity was carried out February 22 – March 12, 2021, in Kotaway Village, South OKU in conjunction with elderly Integrated Healthcare Center (Posyandu) activities. Participants in the activity were 14 hypertensive patients. To measure the success of this cognitive therapy, pre and post-tests were carried out during the activity. After doing the cognitive therapy in hypertensive patients, there is increasing in knowledge so as to prevent complications in hypertensive patients. Keywords: Cognitive therapy, prevention, hypertension


Author(s):  
Pandan Enggarwati ◽  
Debie Dahlia ◽  
Riri Maria

Background: People with type 2 DM are at risk of experiencing depression, which in turn can affect their self-care activities. Recent evidence has shown that social support is beneficial in reducing the risk of depression and positively affecting increases in self-care activities. However, the role of social support in the relationship between depressive symptoms and self-care activities has not been studied. This study aims to determine the mediating effects of social support on the relationship between depressive symptoms and self-care activities of people with type 2 DM.Design and methods: A cross-sectional consecutive sampling approach was used with 94 respondents with type 2 diabetes in East Jakarta, Indonesia, who were undergoing diabetes treatments during May–June 2020. The instruments used were the Centre for Epidemiologic Studies-Depression Scale (CES-D), Summary of Diabetes Self Care Activities (SDSCA), and Duke-UNC Functional Social Support Questionnaire (DUFSSQ). All three questionnaires have been tested for validity and reliability. Data analysis was carried out using multiple linear regression, path analysis, and the Sobel test.Results: The results of multiple linear regression analysis on the variables age, sex, education level, socioeconomic status, duration of type 2 DM, and complications of type 2 DM showed that only complications of type 2 diabetes affected self-care activities (p = 0,000; R2 = 0.515). The results of the path analysis and Sobel test showed that social support significantly mediated the effects of the relationship between depressive symptoms and self-care activities (z = -0,162 > table 1.96; direct effect = -0,499; indirect effect = -0,0789; total effect = 40, 3%).Conclusions: Screening for depressive symptoms and interventions involving social support are strongly suggested for patients with type 2 DM who are suspected of showing a decline in self-care activities.


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