Adaptive style and differences in parent and child report of health-related quality of life in children with cancer

2007 ◽  
Vol 17 (1) ◽  
pp. 83-90 ◽  
Author(s):  
Nichole Jurbergs ◽  
Kathryn M. W. Russell ◽  
Alanna Long ◽  
Sean Phipps
Keyword(s):  
Quality Of Life ◽  
Health Related Quality ◽  
Children With Cancer ◽  
Child Report ◽  
Adaptive Style ◽  
Related Quality ◽  
Health Related

scholarly journals Assessment of Quality of life Among Children with Cancer, Children Undergoing Hemodialysis and Children with Thalassemia: A Comparative Study

2020 ◽  
Author(s):  
Tayseer Afifi ◽  
Khamis Elessi ◽  
Obay Baraka ◽  
Mohammed Omar ◽  
Israa Ahmad ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Chronic Conditions ◽  
Poor Quality ◽  
Health Related Quality ◽  
Children With Cancer ◽  
Related Quality ◽  
Health Related ◽  
Pedsql 4.0 ◽  
Assess Quality

Abstract Purpose This study aims to evaluate health-related quality of life among children with different chronic conditions and make a comparison among them. In addition, the study will draw a comparison between children’s perspective about their quality of life and parents’ perspective. Furthermore, the study will address the associations between quality of life with disease severity, duration and the presence of other co-morbidities. Methods This was a prospective, analytical, correlational study design in which Pediatric Quality of Life Inventory (PedsQL 4.0 generic core scale) was administered to assess quality of life on 110 children; 50 children with cancer, 30 children with thalassemia and 30 children undergoing hemodialysis. Researchers interviewed children as well as their parents. Results Results showed that children with Thalassemia had the lowest scores and suffered from poor quality of life compared to the other two groups of children. Interestingly, quality of life level among children undergoing dialysis was lower than children with cancer. However, there were marked discrepancy between child’s and parents’ answers on scale questions. The level of quality of life, in all children, were statistically significant in relation with family size, income and parents’ education. Conclusion We identified high prevalence of poor level of health-related quality of life among children included in this study. The findings support that the quality of life among children with chronic conditions should receive more attention in our local medical settings.

Health-related quality of life among children with cancer in Hyderabad, India

2009 ◽  
Vol 76 (12) ◽  
pp. 1231-1235 ◽  
Author(s):  
Susmitha Chirivella ◽  
Senthil Rajappa ◽  
Sudha Sinha ◽  
Tim Eden ◽  
Ronald D. Barr
Keyword(s):  
Quality Of Life ◽  
Health Related Quality ◽  
Children With Cancer ◽  
Related Quality ◽  
Health Related

An Integrative Review of Factors Associated With Symptom Burden at the End of Life in Children With Cancer

2020 ◽  
Vol 37 (4) ◽  
pp. 284-295 ◽  
Author(s):  
Ijeoma Julie Eche ◽  
Ifeoma Mary Eche ◽  
Teri Aronowitz
Keyword(s):  
Quality Of Life ◽  
End Of Life ◽  
Symptom Burden ◽  
Health Related Quality ◽  
Inclusion Criteria ◽  
Children With Cancer ◽  
Symptom Experiences ◽  
Related Quality ◽  
Health Related

Children with cancer experience multiple symptoms at end of life (EOL) that impair their health-related quality of life. Using the Preferred Reporting Items for Systematic reviews and Meta-Analyses guidelines, this integrative literature review comprehensively summarized symptom experiences of children with cancer at EOL. The Cumulative Index to Nursing and Allied Health Literature (CINAHL), PubMed, and Academic Premier were searched between January 2007 to September 2019 for articles published in English using the MeSH terms: symptom burden or distress AND children with cancer or pediatric cancer or cancer children or oncology and pediatrics AND EOL care or palliative care or death or dying or terminally ill. The inclusion criteria were the following: (a) study designs [randomized controlled trials, nonexperimental, secondary analysis (if aims were distinct from primary studies) and qualitative]; (b) participants <18 years old (died of cancer, had no realistic chance of cure, or had advanced cancer); and (c) focused on symptom experiences/burden at EOL. Exclusion criteria were nonresearch articles, systematic reviews, case studies, reports, and studies that focused on cancer survivors and/or those receiving curative therapies. Twenty-seven articles met inclusion criteria. The most prevalent symptoms—pain, fatigue, dyspnea, and loss of appetitewere associated with impairments in health-related quality of life. Children with brain tumors experienced higher symptom burden compared to those with hematologic/solid malignancies. Children who received cancer-directed therapies experienced disproportionate symptoms and were more likely to die in the intensive care unit compared with those who did not receive cancer-directed therapies. Most common location of death was home. This integrative review indicated that children with cancer were polysymptomatic at EOL. Strategies facilitating effective symptom management at EOL are needed.

scholarly journals Comparing the effectiveness of cognitive-behavioral art-play and cognitive-behavioral story therapy on health related quality of life among children with cancer

2020 ◽  
Vol 22 (2) ◽  
pp. 244-254
Author(s):  
Zohreh Shojaei ◽  
Mohsen Golparvar ◽  
Asghar Aghaei ◽  
Mohammad Reza Bordbar ◽  
◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cognitive Behavioral ◽  
Health Related Quality ◽  
Children With Cancer ◽  
Related Quality ◽  
Health Related

scholarly journals Determinants of health-related quality of life proxy rating disagreement between caregivers of children with cancer

2019 ◽  
Vol 29 (4) ◽  
pp. 901-912 ◽  
Author(s):  
Niki Rensen ◽  
Lindsay M. H. Steur ◽  
Sasja A. Schepers ◽  
Johannes H. M. Merks ◽  
Annette C. Moll ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Short Form ◽  
Multiple Logistic Regression Analysis ◽  
Health Related Quality ◽  
Children With Cancer ◽  
Proxy Reports ◽  
Wide Range ◽  
Related Quality ◽  
Health Related

Abstract Purpose Proxy reports of health-related quality of life (HRQoL) are commonly used in pediatric oncology. However, it is not known if caregivers’ reports differ. This study therefore aims to compare paternal and maternal proxy reports, and explore determinants of couple disagreement (sociodemographic and medical characteristics, and parental QoL and distress). Methods Both parents completed the PedsQL generic (child’s HRQoL), Short Form-12 (own QoL) and Distress Thermometer for Parents. To assess agreement in child HRQoL, intra-class correlation coefficients (ICCs) were calculated. Differences between fathers/mothers were assessed with paired t tests. Systematic disagreement patterns were visualized with Bland–Altman plots. Characteristics of parental couples with a mean proxy difference in the highest quartile (highest proxy score minus lowest proxy score) were explored with multiple logistic regression analysis. Results Parents of 120 children with cancer (87% post-treatment, mean age 11.0 ± 5.7 years) participated. No significant differences were found between paternal and maternal proxy scores, and agreement was good on all scales (ICCs 0.65–0.83). Bland–Altman plots revealed no systematic disagreement patterns, but there was a wide range in magnitude of the differences, and differences went in both directions. Couples with a mean proxy difference (irrespective of which direction) in the highest quartile (± 20 points) were more likely to have a child in active treatment, with retinoblastoma or relapsed disease, and to diverge in their own QoL. Conclusions If proxy reports of only one parent are available, clinicians may reasonably assume that paternal and maternal reports are interchangeable. However, if in doubt, respondent’s sex is not of major importance, but clinicians should be aware of patient’s and family’s characteristics.

Agreement Between Parent and Child Report of Health-Related Quality of Life: Impact of Time Postinjury

2010 ◽  
Vol 69 (6) ◽  
pp. 1578-1582 ◽  
Author(s):  
Belinda J. Gabbe ◽  
Pam M. Simpson ◽  
Ann M. Sutherland ◽  
Cameron S. Palmer ◽  
Warwick Butt ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Related Quality ◽  
Child Report ◽  
Life Impact ◽  
Related Quality ◽  
Health Related
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