Parental Uncertainty: Parents’ Perceptions of Health-Related Quality of Life in Newly Diagnosed Children With Cancer

2019 ◽  
Vol 23 (6) ◽  
pp. 609-618
Author(s):  
Ijeoma Eche ◽  
Teri Aronowitz ◽  
Ling Shi ◽  
Margaret McCabe
Keyword(s):  
Quality Of Life ◽  
Newly Diagnosed ◽  
Health Related Quality ◽  
Children With Cancer ◽  
Related Quality ◽  
Health Related

scholarly journals QLIF-25. EFFECT OF TUMOR TREATING FIELDS (TTFIELDS) ON HEALTH-RELATED QUALITY OF LIFE (HRQoL) IN NEWLY DIAGNOSED GLIOBLASTOMA. RESULTS OF THE EF-14 RANDOMIZED PHASE III TRIAL

2017 ◽  
Vol 19 (suppl_6) ◽  
pp. vi206-vi206
Author(s):  
Martin J B Taphoorn ◽  
Linda Dirven ◽  
Sophie Taillibert ◽  
Jerôme Honnorat ◽  
Thomas Chen ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Phase Iii ◽  
Newly Diagnosed ◽  
Health Related Quality ◽  
Phase Iii Trial ◽  
Tumor Treating Fields ◽  
Related Quality ◽  
Health Related ◽  
Newly Diagnosed Glioblastoma

scholarly journals Assessment of Quality of life Among Children with Cancer, Children Undergoing Hemodialysis and Children with Thalassemia: A Comparative Study

2020 ◽  
Author(s):  
Tayseer Afifi ◽  
Khamis Elessi ◽  
Obay Baraka ◽  
Mohammed Omar ◽  
Israa Ahmad ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Chronic Conditions ◽  
Poor Quality ◽  
Health Related Quality ◽  
Children With Cancer ◽  
Related Quality ◽  
Health Related ◽  
Pedsql 4.0 ◽  
Assess Quality

Abstract Purpose This study aims to evaluate health-related quality of life among children with different chronic conditions and make a comparison among them. In addition, the study will draw a comparison between children’s perspective about their quality of life and parents’ perspective. Furthermore, the study will address the associations between quality of life with disease severity, duration and the presence of other co-morbidities. Methods This was a prospective, analytical, correlational study design in which Pediatric Quality of Life Inventory (PedsQL 4.0 generic core scale) was administered to assess quality of life on 110 children; 50 children with cancer, 30 children with thalassemia and 30 children undergoing hemodialysis. Researchers interviewed children as well as their parents. Results Results showed that children with Thalassemia had the lowest scores and suffered from poor quality of life compared to the other two groups of children. Interestingly, quality of life level among children undergoing dialysis was lower than children with cancer. However, there were marked discrepancy between child’s and parents’ answers on scale questions. The level of quality of life, in all children, were statistically significant in relation with family size, income and parents’ education. Conclusion We identified high prevalence of poor level of health-related quality of life among children included in this study. The findings support that the quality of life among children with chronic conditions should receive more attention in our local medical settings.

scholarly journals Temperament and Health-Related Quality of Life in Newly Diagnosed Pediatric Inflammatory Bowel Disease

2020 ◽  
Author(s):  
Sharon Shih ◽  
Grace Cushman ◽  
Bonney Reed
Keyword(s):  
Quality Of Life ◽  
Emotional Reactivity ◽  
Newly Diagnosed ◽  
Health Related Quality ◽  
Disease Symptoms ◽  
Factors Associated ◽  
Related Quality ◽  
Health Related ◽  
Inflammatory Bowel

Abstract Objective Health-related quality of life (HRQOL) is typically examined from a deficit standpoint, meaning that little is known about factors associated with higher HRQOL in pediatric illness samples. The aim of the current study was to investigate demographic, disease, and temperamental factors associated with child and parent-report of HRQOL in youth newly diagnosed with inflammatory bowel disease (IBD). Methods Participants included 52 youth ages 8–17 diagnosed with IBD and their caregivers who each completed ratings of the child’s HRQOL. Parents rated their child’s emotional reactivity, conceptualized as a temperamental risk factor, and adaptability, conceptualized as a temperamental protective factor. Disease symptoms were rated by youth, and physician global assessment of disease activity was obtained. Results HRQOL was rated lower by children and their parents as self-reported disease symptoms and parent-rated emotional reactivity increased. Conversely, total HRQOL was higher for children with higher parent-ratings of adaptability. In multiple regression analyses, higher levels of adaptability along with male sex and lower child-reported disease symptoms were associated with higher child and parent-reported HRQOL. Conclusions Higher HRQOL at time of diagnosis in pediatric IBD is associated with greater adaptability when accounting for variability due to child sex and disease symptoms. Consideration of temperament, including emotional reactivity and adaptability, may offer insight into patients’ typical ways of responding when stressed and provide preliminary information about factors related to post-diagnosis HRQOL. Attention should be given to both protective and risk factors to inform future intervention development, including strengths-based approaches.

Health-related quality of life among children with cancer in Hyderabad, India

2009 ◽  
Vol 76 (12) ◽  
pp. 1231-1235 ◽  
Author(s):  
Susmitha Chirivella ◽  
Senthil Rajappa ◽  
Sudha Sinha ◽  
Tim Eden ◽  
Ronald D. Barr
Keyword(s):  
Quality Of Life ◽  
Health Related Quality ◽  
Children With Cancer ◽  
Related Quality ◽  
Health Related
Sign in / Sign up

Export Citation Format

Share Document