scholarly journals Partners and close family members of long-term cancer survivors: health status, psychosocial well-being and unmet supportive care needs

2011 ◽  
Vol 22 (1) ◽  
pp. 12-19 ◽  
Author(s):  
Daniel Turner ◽  
Eike Adams ◽  
Mary Boulton ◽  
Sian Harrison ◽  
Nada Khan ◽  
...  
Keyword(s):  
Health Status ◽  
Supportive Care ◽  
Cancer Survivors ◽  
Family Members ◽  
Well Being ◽  
Supportive Care Needs ◽  
Care Needs ◽  
Close Family

scholarly journals Primary Health and Supportive Care Needs of Long-Term Cancer Survivors: A Questionnaire Survey

2011 ◽  
Vol 29 (15) ◽  
pp. 2091-2098 ◽  
Author(s):  
Siân E. Harrison ◽  
Eila K. Watson ◽  
Alison M. Ward ◽  
Nada F. Khan ◽  
Daniel Turner ◽  
...  
Keyword(s):  
Health Status ◽  
Supportive Care ◽  
Cancer Survivors ◽  
Unmet Needs ◽  
Supportive Care Needs ◽  
Psychological Morbidity ◽  
Care Needs ◽  
The United Kingdom ◽  
Long Term Survivors

Purpose There are 1.2 million long-term cancer survivors in the United Kingdom. Existing research on the health and supportive care needs of these survivors is sparse and inconclusive. This study investigated health status, psychological morbidity, and supportive care needs in long-term cancer survivors in the United Kingdom. Methods Five to 16 years after diagnosis, 1,275 eligible survivors of breast, colorectal, and prostate cancers were approached to participate in a questionnaire survey. The questionnaire explored health status (European Quality of Life–5 Dimensions), psychological morbidity (Hospital Anxiety and Depression Scale), and supportive care needs (Cancer Survivors' Unmet Needs Measure). Data were analyzed by type of cancer and time since diagnosis. Logistic regression was used to identify predictors of unmet supportive care needs. Results The response rate was 51.7% (659 survivors). Overall health status and levels of psychological morbidity were consistent with population norms. At least one unmet supportive care need was reported by 47.4% of survivors, but overall numbers of unmet needs were low (mean, 2.8; standard deviation, 4.8). The most frequently endorsed unmet need was for help to manage concerns about cancer recurrence. Trait anxiety (P < .001), nondischarged status (P < .01), dissatisfaction with discharge (P < .01), and receipt of hormonal therapy (P < .01) were predictive of unmet supportive care needs. Conclusion The findings suggest a majority of long-term breast, colorectal, and prostate cancer survivors who have no signs of recurrence report good health and do not have psychological morbidity or large numbers of unmet supportive care needs. A minority of long-term survivors may benefit from ongoing support. The identification and support of those long-term survivors with ongoing needs is a key challenge for health care professionals.

The supportive care needs of the partners and family members of long-term survivors of breast, colorectal and prostate cancer

2011 ◽  
Vol 1 (Suppl_1) ◽  
pp. A6-A7
Author(s):  
E. K. Watson ◽  
D. Turner ◽  
E. Adams ◽  
M. Boulton ◽  
S. Harrison ◽  
...  
Keyword(s):  
Prostate Cancer ◽  
Supportive Care ◽  
Family Members ◽  
Supportive Care Needs ◽  
Care Needs ◽  
Long Term Survivors

Identification of Breast Cancer Survivors’ Side Effects and Supportive Care Needs

2018 ◽  
Vol 18 (6) ◽  
pp. e1237
Author(s):  
Christina Kozul ◽  
Lesley Stafford ◽  
Chad Bousman ◽  
Allan Park ◽  
Kerry Shanahan ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Side Effects ◽  
Supportive Care ◽  
Cancer Survivors ◽  
Breast Cancer Survivors ◽  
Supportive Care Needs ◽  
Care Needs

QOLP-30. LONG-TERM UNMET SUPPORTIVE CARE NEEDS OF TYA CHILDHOOD BRAIN TUMOUR SURVIVORS AND THEIR CAREGIVERS: A CROSS-SECTIONAL SURVEY

2021 ◽  
Vol 23 (Supplement_6) ◽  
pp. vi189-vi189
Author(s):  
Emma Nicklin ◽  
Galina Velikova ◽  
Adam Glaser ◽  
Michelle Kwok-WIlliam ◽  
Miguel Debono ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Supportive Care ◽  
Brain Tumour ◽  
Unmet Needs ◽  
Supportive Care Needs ◽  
Care Needs ◽  
Long Term Follow Up

Abstract INTRODUCTION The supportive care needs of long-term childhood brain tumour survivors, now teenagers and young adults (TYAs), and their caregivers are largely unknown. TYAs are a unique patient cohort with specific challenges and vulnerabilities differing from children or older adults. We aimed to describe their supportive care needs and explore associations between needs and quality of life (QoL).This is the first study to collect quantitative data about needs in this survivorship group. METHODS Participants were recruited from long-term follow-up clinics (in three National Health Service Trusts in England) and online. Participants included childhood brain tumour survivors, ≥ 5 years from diagnosis, currently aged 13-30, and their primary caregivers. Survivors completed the Supportive Care Needs Survey (SCNS) Short-Form and Paediatric Functional Assessment of Cancer Therapy – Brain (Peds-FACT-Br). While caregivers completed the SCNS-Partners and Caregivers (SCNS-P&C) and the Caregiver Quality of Life Index–Cancer (CQOLC). RESULTS In total, 112 individuals (69 survivors/43 caregivers) participated. Survivors reported on average 9.4 (±8.5) unmet needs. Needs were greatest in the psychological domain, with anxiety (60.3%), uncertainty about the future (50.7%) and feeling down and depressed (48.5%) most commonly reported. Caregivers reported on average 12.4 (±12.3) unmet needs. Again, the greatest number of unmet needs were observed in the psychological domain. Many caregivers also reported information needs around financial support/government benefits (42.9%) and possible survivor fertility problems (42.9%). Multivariable linear regression analysis showed that female survivors, unemployed survivors, survivors further away from diagnosis, and single caregivers were more likely to report unmet needs. More unmet needs were significantly associated with poorer QoL in survivors and caregivers. CONCLUSION This research provides leads to improving supportive care and long-term follow-up services. Psychological support appears to be the biggest gap in care. Understanding unmet needs and recognising what services are required is critical to improving quality of long-term survival.

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