scholarly journals A qualitative analysis of responses to a question prompt list and prognosis and end-of-life care discussion prompts delivered in a communication support program

2014 ◽  
Vol 24 (3) ◽  
pp. 287-293 ◽  
Author(s):  
Adam Walczak ◽  
Inge Henselmans ◽  
Martin H. N. Tattersall ◽  
Josephine M. Clayton ◽  
Patricia M. Davidson ◽  
...  
Keyword(s):  
Qualitative Analysis ◽  
End Of Life ◽  
End Of Life Care ◽  
Support Program ◽  
Life Care ◽  
Communication Support ◽  
Question Prompt List ◽  
Question Prompt

scholarly journals Discussing prognosis and end-of-life care in the final year of life: a randomised controlled trial of a nurse-led communication support programme for patients and caregivers

BMJ Open ◽  
2014 ◽  
Vol 4 (6) ◽  
pp. e005745-e005745 ◽  
Author(s):  
A. Walczak ◽  
P. N. Butow ◽  
J. M. Clayton ◽  
M. H. N. Tattersall ◽  
P. M. Davidson ◽  
...  
Keyword(s):  
Randomised Controlled Trial ◽  
End Of Life ◽  
End Of Life Care ◽  
Controlled Trial ◽  
Life Care ◽  
Communication Support ◽  
Support Programme ◽  
Randomised Controlled

scholarly journals Implementing the British Columbia practice support program in end of life care

2012 ◽  
Vol 2 (2) ◽  
pp. 179.2-179 ◽  
Author(s):  
C Clelland ◽  
D Barwich ◽  
D McGregor
Keyword(s):  
British Columbia ◽  
End Of Life ◽  
End Of Life Care ◽  
Support Program ◽  
Life Care

scholarly journals Practitioners’ perceptions of acceptability of a question prompt list about palliative care for advance care planning with people living with dementia and their family caregivers: a mixed-methods evaluation study

BMJ Open ◽  
2021 ◽  
Vol 11 (4) ◽  
pp. e044591
Author(s):  
Jenny T van der Steen ◽  
Sten Heck ◽  
Carla CM Juffermans ◽  
Mirjam Marjolein Garvelink ◽  
Wilco P Achterberg ◽  
...  
Keyword(s):  
Palliative Care ◽  
End Of Life ◽  
Family Caregivers ◽  
End Of Life Care ◽  
Evaluation Study ◽  
Care Planning ◽  
Life Care ◽  
Mixed Methods Evaluation ◽  
Advance Care ◽  
Question Prompt

ObjectivesIn oncology and palliative care, patient question prompt lists (QPLs) with sample questions for patient and family increased patients’ involvement in decision-making and improved outcomes if physicians actively endorsed asking questions. Therefore, we aim to evaluate practitioners’ perceptions of acceptability and possible use of a QPL about palliative and end-of-life care in dementia.DesignMixed-methods evaluation study of a QPL developed with family caregivers and experts comprising a survey and interviews with practitioners.SettingTwo academic medical training centres for primary and long-term care in the Netherlands.ParticipantsPractitioners (n=66; 73% woman; mean of 21 (SD 11) years of experience) who were mostly general practitioners and elderly care physicians.OutcomesThe main survey outcome was acceptability measured with a 15–75 acceptability scale with ≥45 meaning ‘acceptable’.ResultsThe survey response rate was 21% (66 of 320 participated). The QPL was regarded as acceptable (mean 51, SD 10) but 64% felt it was too long. Thirty-five per cent would want training to be able to answer the questions. Those who felt unable to answer (31%) found the QPL less acceptable (mean 46 vs 54 for others; p=0.015). We identified three themes from nine interviews: (1) enhancing conversations through discussing difficult topics, (2) proactively engaging in end-of-life conversations and (3) possible implementation.ConclusionAcceptability of the QPL was adequate, but physicians feeling confident to be able to address questions about end-of-life care is crucial when implementing it in practice, and may require training. To facilitate discussions of advance care planning and palliative care, families and persons with dementia should also be empowered to access the QPL themselves.

A Comparison of the Influence of Anticipated Death Trajectory and Personal Values on End-of-Life Care Preferences: A Qualitative Analysis

2017 ◽  
Vol 42 (3) ◽  
pp. 247-258 ◽  
Author(s):  
Katherine P. Supiano ◽  
Nancy McGee ◽  
Kara B. Dassel ◽  
Rebecca Utz
Keyword(s):  
Qualitative Analysis ◽  
End Of Life ◽  
End Of Life Care ◽  
Personal Values ◽  
Life Care

Dysphagia in Hospice Care: The Roles of Social Work and Speech-Language Pathologists

2014 ◽  
Vol 23 (4) ◽  
pp. 173-186 ◽  
Author(s):  
Deborah Hinson ◽  
Aaron J. Goldsmith ◽  
Joseph Murray
Keyword(s):  
Social Work ◽  
End Of Life ◽  
Case Studies ◽  
End Of Life Care ◽  
Hospice Care ◽  
Patient Communication ◽  
Life Care ◽  
Speech Language Pathologists ◽  
Four Levels

This article addresses the unique roles of social work and speech-language pathologists (SLPs) in end-of-life and hospice care settings. The four levels of hospice care are explained. Suggested social work and SLP interventions for end-of-life nutrition and approaches to patient communication are offered. Case studies are used to illustrate the specialized roles that social work and SLP have in end-of-life care settings.

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