End-of-Life Decision-Making in the Neonatal Intensive Care Unit: Serving the Best Interests of the Newborn within a Family-Centred Care Framework

2014 ◽  
pp. 221-244
Author(s):  
Jonathan Hellmann
Keyword(s):  
Intensive Care Unit ◽  
Decision Making ◽  
Intensive Care ◽  
Neonatal Intensive Care Unit ◽  
End Of Life ◽  
Neonatal Intensive Care ◽  
Best Interests ◽  
End Of Life Decision ◽  
Life Decision

scholarly journals End-of-life decision making for cancer patients in an intensive care unit

2015 ◽  
Vol 3 (S1) ◽  
Author(s):  
M Tavares ◽  
I Neves ◽  
F Coelho ◽  
O Afonso ◽  
A Martins ◽  
...  
Keyword(s):  
Intensive Care Unit ◽  
Decision Making ◽  
Intensive Care ◽  
End Of Life ◽  
Cancer Patients ◽  
End Of Life Decision ◽  
Life Decision

Sense of responsibility in ICU end-of-life decision-making: Relatives’ experiences

2017 ◽  
Vol 26 (1) ◽  
pp. 270-279 ◽  
Author(s):  
Ranveig Lind
Keyword(s):  
Intensive Care Unit ◽  
Decision Making ◽  
Intensive Care ◽  
End Of Life ◽  
Secondary Analysis ◽  
Active Role ◽  
Decision Making Process ◽  
Science Data ◽  
End Of Life Decision ◽  
Life Decision

Background: Relatives of intensive care unit patients who lack or have reduced capacity to consent are entitled to information and participation in decision-making together with the patient. Practice varies with legislation in different countries. In Norway, crucial decisions such as withdrawing treatment are made by clinicians, usually morally justified to relatives with reference to the principle of non-maleficence. The relatives should, however, be consulted about whether they know what the patient would have wished in the situation. Research objectives: To examine and describe relatives’ experiences of responsibility in the intensive care unit decision-making process. Research design: A secondary analysis of interviews with bereaved relatives of intensive care unit patients was performed, using a narrative analytical approach. Participants and research context: In all, 27 relatives of 21 deceased intensive care unit patients were interviewed about their experiences from the end-of-life decision-making process. Most interviews took place in the participants’ homes, 3–12 months after the patient’s death. Ethical considerations: Based on informed consent, the study was approved by the Data Protection Official of the Norwegian Social Science Data Services and by the Regional Committee for Medical and Health Research Ethics. Findings: The results show that intensive care unit relatives experienced a sense of responsibility in the decision-making process, independently of clinicians’ intention of sparing them. Some found this troublesome. Three different variants of participation were revealed, ranging from paternalism to a more active role for relatives. Discussion: For the study participants, the sense of responsibility reflects the fact that ethics and responsibility are grounded in the individual’s relationship to other people. Relatives need to be included in a continuous dialogue over time to understand decisions and responsibility. Conclusion: Nurses and physicians should acknowledge and address relatives’ sense of responsibility, include them in regular dialogue and help them separate their responsibility from that of the clinicians.

scholarly journals Communication tools for end-of-life decision-making in the intensive care unit: a systematic review and meta-analysis

Critical Care ◽  
2016 ◽  
Vol 20 (1) ◽  
Author(s):  
Simon J. W. Oczkowski ◽  
Han-Oh Chung ◽  
Louise Hanvey ◽  
Lawrence Mbuagbaw ◽  
John J. You
Keyword(s):  
Systematic Review ◽  
Intensive Care Unit ◽  
Decision Making ◽  
Intensive Care ◽  
End Of Life ◽  
Meta Analysis ◽  
Communication Tools ◽  
End Of Life Decision ◽  
Life Decision

scholarly journals Who Is Attending? End-of-Life Decision Making in the Intensive Care Unit

2012 ◽  
Vol 15 (1) ◽  
pp. 56-62 ◽  
Author(s):  
Judith Gedney Baggs ◽  
Madeline H. Schmitt ◽  
Thomas J. Prendergast ◽  
Sally A. Norton ◽  
Craig R. Sellers ◽  
...  
Keyword(s):  
Intensive Care Unit ◽  
Decision Making ◽  
Intensive Care ◽  
End Of Life ◽  
End Of Life Decision ◽  
Life Decision
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