Correction to: China: concurring regulation of cross-border genomic data sharing for statist control and individual protection

Significance E-payment transaction volumes have risen dramatically as more people shop online and embrace non-cash payments. Moreover, fintechs are expanding into new segments of the financial services market such as crowdfunding and insurance. The future growth and resilience of this ecosystem depend on updating the regulatory and data protections framework, which is underway. Impacts Legislation on cross-institution and cross-border data sharing would be crucial to boost public confidence in fintechs. Continued growth of fintechs will increase the demand for cybersecurity services. Tier 2 cities will become increasingly important digital markets.

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Genomic Data-Sharing Practices

The Journal of Law Medicine & Ethics ◽

10.1177/1073110519840482 ◽

2019 ◽

Vol 47 (1) ◽

pp. 31-40 ◽

Cited By ~ 4

Author(s):

Angela G. Villanueva ◽

Robert Cook-Deegan ◽

Jill O. Robinson ◽

Amy L. McGuire ◽

Mary A. Majumder

Keyword(s):

Data Sharing ◽

Medical Information ◽

Public Information ◽

Genomic Data ◽

Data Access ◽

Privacy And Security ◽

Participant Engagement ◽

Information Commons ◽

Derived Data

Making data broadly accessible is essential to creating a medical information commons (MIC). Transparency about data-sharing practices can cultivate trust among prospective and existing MIC participants. We present an analysis of 34 initiatives sharing DNA-derived data based on public information. We describe data-sharing practices captured, including practices related to consent, privacy and security, data access, oversight, and participant engagement. Our results reveal that data-sharing initiatives have some distance to go in achieving transparency.

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Researcher Knowledge, Attitudes, and Communication Practices for Genomic Data Sharing

Journal of Empirical Research on Human Research Ethics ◽

10.1177/1556264620969301 ◽

2020 ◽

pp. 155626462096930

Author(s):

Heather P. Nick ◽

Kelsey Kehoe ◽

Amanda Gammon ◽

Jorge L. Contreras ◽

Kimberly A. Kaphingst

Keyword(s):

Data Sharing ◽

Pediatric Patients ◽

Genomic Data ◽

Basic Knowledge ◽

Structured Interviews ◽

Principal Investigators ◽

Qualitative Thematic Analysis ◽

Communication Practices ◽

Nih Policy ◽

Cancer Studies

This study examines knowledge, attitudes, and communication practices toward genomic data sharing among principal investigators and research coordinators engaged in cancer and non-cancer studies. We conducted 25 individual semi-structured interviews and conducted a qualitative thematic analysis. Most interviewees had basic knowledge of data sharing requirements, but lacked specific details of recent changes to NIH policy. Principal investigators perceived more risks to participants for data sharing than the research coordinators who generally obtained consent. Interviewees perceived a trend toward providing fewer data sharing options to participants in the consent process, and had observed that parents of pediatric patients asked more questions than adult patients. Our findings highlight potential areas for improvement related to data sharing during consent processes.

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