scholarly journals Impact of the COVID pandemic on survivors of childhood cancer and survivorship care: lessons for the future

2022 ◽  
Author(s):  
Maya Prasad ◽  
Savita Goswami ◽  
Jayita Deodhar ◽  
Girish Chinnaswamy
Keyword(s):  
Childhood Cancer ◽  
Survivorship Care ◽  
The Future ◽  
Survivors Of Childhood Cancer

scholarly journals eHealth tools for childhood cancer survivorship care: A qualitative analysis of survivors’, parents’, and general practitioners’ views.

2021 ◽  
Author(s):  
Maria Schaffer ◽  
Jordana McLoone ◽  
Claire Wakefield ◽  
Mary-Ellen Brierley ◽  
Afaf Girgis ◽  
...  
Keyword(s):  
Cancer Survivors ◽  
Childhood Cancer ◽  
General Practitioners ◽  
Medical Information ◽  
Childhood Cancer Survivors ◽  
Survivorship Care ◽  
Perceived Benefits ◽  
Telephone Interviews ◽  
Childhood Cancer Survivorship ◽  
Survivors Of Childhood Cancer

Purpose: The long-term management of childhood cancer survivors is complex. Electronic health (eHealth) technology has the potential to significantly improve the management of late effects for childhood cancer survivors and assist their General Practitioners (GP) to coordinate their care. We assessed the acceptability of and perceived benefits and barriers to eHealth use amongst survivors, parents, and GPs. Methods: We conducted semi-structured telephone interviews with survivors of childhood cancer, parents of childhood cancer survivors and their nominated GP. We described a hypothetical eHealth tool and asked participants how likely they would use the tool to manage their survivorship care and their perceived benefits and concerns for use of the tool. We used content analysis to synthesise the data using QSR NVivo12. Results: We interviewed 31 survivors (mean age: 27.0), 29 parents (survivors’ mean age: 12.6) and 51 GPs (mean years practising: 28.2). Eighty-five percent of survivors and parents (n=51), and 75% of GPs (n=38) indicated that they would be willing to use an eHealth tool. Survivors and parents reported that an eHealth tool would increase their confidence in their ability, and their GP’s ability, to manage their survivorship care. GPs agreed that an eHealth tool would provide easier access to survivors’ medical information and increase their capacity to provide support during survivorship. 7% of GPs (n= 4) and 43% of survivors (n=26) reported being hesitant to use eHealth tools due to privacy/security concerns. Conclusion: Overall, eHealth tools were reported to be acceptable to childhood cancer survivors, their parents, and their GPs.

scholarly journals Looking back to inform the future: Lesson learned from survivors of childhood cancer

Cancer ◽  
2016 ◽  
Vol 122 (5) ◽  
pp. 678-680 ◽  
Author(s):  
Saro H. Armenian ◽  
Smita Bhatia
Keyword(s):  
Childhood Cancer ◽  
The Future ◽  
Survivors Of Childhood Cancer ◽  
Looking Back

Patient-generated online survivorship care plans for adult survivors of childhood cancer: Feasibility and patient preferences.

2016 ◽  
Vol 34 (3_suppl) ◽  
pp. 54-54
Author(s):  
Dava Szalda ◽  
Marilyn M. Schapira ◽  
Lisa Schwartz ◽  
Esther Kim ◽  
Carolyn Vachani ◽  
...  
Keyword(s):  
Childhood Cancer ◽  
Pediatric Cancer ◽  
Online Survey ◽  
Adult Survivors ◽  
Survivorship Care Plans ◽  
Survivorship Care ◽  
Care Plans ◽  
Survivors Of Childhood Cancer

54 Background: With improvements in pediatric cancer treatment, the number of childhood cancer survivors is growing rapidly. Survivorship care plans (SCPs) can provide survivors with necessary information and resources to engage in risk-based follow-up care. Online patient motivated SCPs are promising for adult survivors of childhood cancer with multiple care transitions and the need for self-management outside clinical encounters. Methods: An existing online SCP generator (OncoLife) was adapted to create Smart Adult Living After Childhood Cancer plans for survivors of pediatric Acute Lymphoblastic Lymphoma (ALL) and Hodgkin’s Lymphoma (HL) by incorporating Children’s Oncology Group Long Term Follow-Up Guidelines into existing information technology logic. Results: Adult survivors (n = 20) of pediatric ALL or HL, registered to be seen in radiation oncology or survivorship clinic at the University of Pennsylvania, created an online SCP and completed an online survey. Approximately 80% of patients contacted consented and completed SCP indicating high acceptability; two-thirds (66%) completed the survey. Participants were a median of 35.5 years of age and of 26.5 years since diagnosis. They were 50% female, majority Caucasian (90%), 70% ALL and 30% HL survivors. SCPs took an average of 9 minutes 46 seconds to complete. The majority (95%) of respondents found the SCP generator easy to use, would recommend it to others (85%), and were satisfied with the amount of information received (80%). Ninety percent stated they intended to discuss their SCP with a healthcare provider. Only a third (35%) of survivors stated they had previously received a formal SCP. Seventy percent (70%) stated a written or online plan was the best way to convey health information between visits. Preferences for use of online SCP included: 70% wanting a treatment summary to complete their SCP and 50% wanting personal information to be saved for later use. Conclusions: Online patient-motivated SCPs are a feasible and acceptable way to deliver information to adult survivors of pediatric cancer about long term health risks. Further research into optimal methods for creation, use and health benefits of SCPs is warranted.

scholarly journals Providers’ Perspectives of Survivorship Care for Young Adult Survivors of Childhood Cancer

2015 ◽  
Vol 31 (1) ◽  
pp. 31-38 ◽  
Author(s):  
Carla Berg ◽  
Erin Stratton ◽  
Natia Esiashvili ◽  
Ann Mertens ◽  
Robin C. Vanderpool
Keyword(s):  
Young Adult ◽  
Childhood Cancer ◽  
Adult Survivors ◽  
Survivorship Care ◽  
Young Adult Survivors ◽  
Survivors Of Childhood Cancer

scholarly journals Models of Care for Survivors of Childhood Cancer From Across the Globe: Advancing Survivorship Care in the Next Decade

2018 ◽  
Vol 36 (21) ◽  
pp. 2223-2230 ◽  
Author(s):  
Emily S. Tonorezos ◽  
Dana Barnea ◽  
Richard J. Cohn ◽  
Monica S. Cypriano ◽  
Brice C. Fresneau ◽  
...  
Keyword(s):  
Primary Care ◽  
Childhood Cancer ◽  
Transition To Adulthood ◽  
Late Effects ◽  
Primary Care Physicians ◽  
Health Care Systems ◽  
Clinical Care ◽  
Models Of Care ◽  
Survivorship Care ◽  
Survivors Of Childhood Cancer

With improvements in cancer treatment and supportive care, a growing population of survivors of childhood cancer at risk for significant and potentially life-threatening late effects has been identified. To provide a current snapshot of the models of care from countries with varying levels of resources and health care systems, stakeholders in childhood cancer survivorship clinical care and research were identified from 18 countries across five continents. Stakeholders responded to a survey and provided a brief narrative regarding the current state of survivorship care. Findings indicate that among pediatric-age survivors of childhood cancer (allowing for differences in age cutoffs across countries), resources are generally available, and a large proportion of survivors are seen by a physician familiar with late effects in most countries. After survivors transition to adulthood, only a minority are seen by a physician familiar with late effects. Despite the need to improve communication between pediatric oncology and primary care, only a few countries have existing national efforts to educate primary care physicians, although many more reported that educational programs are in development. These data highlight common challenges and potential solutions for the lifelong care of survivors of childhood cancer. Combining risk-based and patient-oriented solutions for this population is likely to benefit both providers and patients.

Insurance Coverage Change and Survivorship Care among Young Adult Survivors of Childhood Cancer

2021 ◽  
Author(s):  
Erin M. Mobley ◽  
Sue E. Kim ◽  
Michael Cousineau ◽  
Jennifer Tsui ◽  
Kimberly A. Miller ◽  
...  
Keyword(s):  
Young Adult ◽  
Childhood Cancer ◽  
Insurance Coverage ◽  
Adult Survivors ◽  
Survivorship Care ◽  
Young Adult Survivors ◽  
Survivors Of Childhood Cancer

scholarly journals Internet-Based Survivorship Care Plans for Adult Survivors of Childhood Cancer: A Pilot Study

2016 ◽  
Vol 5 (4) ◽  
pp. 351-354 ◽  
Author(s):  
Dava Szalda ◽  
Lisa Schwartz ◽  
Marilyn M. Schapira ◽  
Linda Jacobs ◽  
Esther Kim ◽  
...  
Keyword(s):  
Pilot Study ◽  
Childhood Cancer ◽  
Adult Survivors ◽  
Survivorship Care Plans ◽  
Survivorship Care ◽  
Care Plans ◽  
Survivors Of Childhood Cancer
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