Lessons learned from the case of Theresa Marie Schiavo: One palliative care doctor’s perspective

2005 ◽  
Vol 9 (4) ◽  
pp. 223-225
Author(s):  
Sharon M. Weinstein
Keyword(s):  
Palliative Care ◽  
Lessons Learned

scholarly journals Of apples and oranges: Lessons learned from the preparation of research protocols for systematic reviews exploring the effectiveness of Specialist Palliative Care

2016 ◽  
Vol 15 (1) ◽  
Author(s):  
Jan Gaertner ◽  
Waldemar Siemens ◽  
Barbara A. Daveson ◽  
Melinda Smith ◽  
Catherine J. Evans ◽  
...  
Keyword(s):  
Palliative Care ◽  
Systematic Reviews ◽  
Lessons Learned ◽  
Specialist Palliative Care ◽  
Research Protocols

scholarly journals Palliative care in paediatric oncology: perceptions, expertise and practices from the perspective of the multidisciplinary team

2015 ◽  
Vol 36 (2) ◽  
pp. 56-62 ◽  
Author(s):  
Adriana Ferreira da Silva ◽  
Helena Becker Issi ◽  
Maria da Graça Corso da Motta ◽  
Daisy Zanchi de Abreu Botene
Keyword(s):  
Palliative Care ◽  
Multidisciplinary Team ◽  
Structured Interview ◽  
Paediatric Oncology ◽  
Lessons Learned ◽  
Team Members ◽  
Descriptive Research ◽  
The Family ◽  
Research Questions ◽  
Oncology Unit

OBJECTIVE: To reveal the perceptions, expertise and practices of multi-professional teams providing palliative care to children in a paediatric oncology unit. The research questions were based on everyday care, facilitations and difficulties, essential aspects of professional approaches, and the inter-disciplinary focus of care for children in palliative care and their families. METHOD: Qualitative, exploratory and descriptive research. Data were collected from June to October 2013 from nine professional multidisciplinary team members by means of a semi-structured interview submitted to thematic analysis. RESULTS: The following four themes emerged from analysis: palliative care: conceptions of the multi-professional team; the construction of singular care; the facilitations and difficulties experienced by the team and significant lessons learned. CONCLUSIONS: The subjects revealed that the team also suffers with the death of a child and, like the family, moves toward the construction of coping mechanisms for the elaboration of mourning. Paradoxically, the team shares knowledge to determine the foundations of a singular therapeutic project and inserts the family in this process so that it can be the protagonist of the child's care.

PP41 British columbia emergency health services assess, see treat and refer palliative clinical pathway

2021 ◽  
Vol 38 (9) ◽  
pp. A17-A17
Author(s):  
Jennie Helmer ◽  
Leon Baranowski ◽  
Richard Armour ◽  
John Tallon ◽  
David Williscroft ◽  
...  
Keyword(s):  
Palliative Care ◽  
Clinical Pathway ◽  
Community Care ◽  
Lessons Learned ◽  
Symptom Improvement ◽  
Retrospective Case ◽  
Home And Community Care ◽  
Palliative Care Teams ◽  
Acute Crisis ◽  
Palliative Patients

Background/Research ObjectivesParamedic services have experienced a steadily increasing demand from palliative patients accessing 911 during times of acute crisis, and not wishing subsequent conveyance to ED. Early data indicates that many of these patients are NOT already connected to palliative care teams.To address this demand and to connect patients to care, BCEHS introduced the Assess, See, Treat and Refer (ASTAR)-Palliative Clinical Pathway. Objectives are to reduce patient conveyance to ED, reduce hospitalizations and improve patient care through referral after non-conveyance.InterventionParamedic activation of the ASTaR Palliative Clinical Pathway results in referral of non-conveyed palliative patients to local Home and Community Care teams and BCEHS paramedics. The referral occurs within 1-6 hours of paramedic contact and follow up occurs over the next 24-48 hours by telephone. This referral action provides safe, effective, patient-centred care for non-conveyed patients, and also fills a gap for connecting patients to local palliative care teams.ImpactA retrospective case review of 183 cases was conducted. Symptom improvement was achieved in 70% of cases, the ED non-conveyance rate was 19%, and the time on task when palliative patients were treated at home and not conveyed was 37% less (52 minutes) than if palliative patients were transported (82 minutes). All 183 patients were connected to either the local home and community care team or BCEHS Rural Advanced Care Community Paramedics (RACCP).Lessons LearnedPalliative patients frequently call 911 for help during acute crisis events and many of these patients do not wish conveyance to ED. The introduction of the ASTaR palliative clinical pathway provided safety netting and referral to appropriate care teams.

scholarly journals Postdoctoral Research Training in Palliative Care: Lessons Learned From a T32 Program

2020 ◽  
Vol 59 (3) ◽  
pp. 750-760.e8 ◽  
Author(s):  
Erin K. Kross ◽  
Abby R. Rosenberg ◽  
Ruth A. Engelberg ◽  
J. Randall Curtis
Keyword(s):  
Palliative Care ◽  
Research Training ◽  
Lessons Learned ◽  
Postdoctoral Research

scholarly journals Lessons learnt: examining the use of case study methodology for nursing research in the context of palliative care

2019 ◽  
Vol 24 (6) ◽  
pp. 446-459
Author(s):  
Paula Brogan ◽  
Felicity Hasson ◽  
Sonja McIlfatrick
Keyword(s):  
Palliative Care ◽  
Care Delivery ◽  
Case Study Research ◽  
Lessons Learned ◽  
Research Approach ◽  
Nursing Research ◽  
Case Study Methodology ◽  
Study Research ◽  
Study Methodology

Background An empirical social research approach, facilitating in-depth exploration of complex, contemporary contextualised phenomena, case study research has been used internationally in healthcare studies across clinical settings, to explore systems and processes of care delivery. In the United Kingdom, case study methods have been championed by nurse researchers, particularly in the context of community nursing and palliative care provision, where its applicability is well established. Yet, dogged by conceptual confusion, case study remains largely underutilised as a research approach. Method Drawing on examples from nursing and palliative care studies, this paper clarifies case study research, identifies key concepts and considers lessons learned about its potential for nursing research within the unique and complex palliative and end of life context. Conclusion A case study approach offers nurse researchers the opportunity for in-depth, contextualised understanding of the systems and processes which influence their role in palliative care delivery across settings. However, philosophical and conceptual understandings are needed and further training in case study methodology is required to enable researchers to articulate and conduct case study.

scholarly journals Creating a Resilient Research Program—Lessons Learned From a Palliative Care Research Laboratory

2020 ◽  
Vol 60 (4) ◽  
pp. 857-865 ◽  
Author(s):  
Abby R. Rosenberg ◽  
Krysta Barton ◽  
Courtney Junkins ◽  
Samantha Scott ◽  
Miranda C. Bradford ◽  
...  
Keyword(s):  
Palliative Care ◽  
Research Program ◽  
Research Laboratory ◽  
Lessons Learned ◽  
Care Research

scholarly journals INNOVATIVE STRATEGIES TO SUPPORT OLDER ADULTS AND THEIR FAMILIES IN HOSPICE AND PALLIATIVE CARE

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S199-S199
Author(s):  
George Demiris ◽  
Karen Hirschman
Keyword(s):  
Older Adults ◽  
Palliative Care ◽  
Hospice Care ◽  
Geographic Distance ◽  
Smart Phone ◽  
Evidence Base ◽  
Lessons Learned ◽  
Ethical Challenges ◽  
Rural Settings ◽  
Hospice And Palliative Care

Abstract In order to better support older adults with life-limiting illness and their families, many initiatives utilize information technology and other innovative platforms to increase access to supportive services and bridge geographic distance. Such technologies cover a broad range of systems ranging from smart phone applications to wearables and traditional telehealth platforms. There is a growing evidence base for such interventions but technical, clinical and ethical challenges remain when utilizing technology in the context of hospice and palliative care especially for older adults, including the concerns for caregiver burden, privacy, security, confidentiality, obtrusiveness and accessibility. In this symposium we provide an overview of innovative tools available for interventions in palliative and hospice care designed for patients and/or family caregivers in urban and rural settings. We provide lessons learned from three NIH funded studies testing different technology-based interventions in various settings including home hospice and outpatient palliative care. Discussion will follow focused on the clinical, ethical and practical challenges of innovation and the unique considerations for technology-mediated intervention design in a variety of palliative and hospice care settings. This symposium aims to provide: 1. an overview of existing technology-based interventions for older adults and their families in palliative care and hospice 2. evidence-based recommendations resulting from clinical trials in urban and rural settings for the design and implementation of innovative tools in hospice and palliative care 3. a discussion of challenges and opportunities for the use of technology to support older adults and their families

scholarly journals LESSONS LEARNED IMPROVING PALLIATIVE CARE ACCESS THROUGH TECHNOLOGY (IMPACTT) IN NURSING HOMES

2018 ◽  
Vol 2 (suppl_1) ◽  
pp. 775-776
Author(s):  
C Stephens ◽  
D David ◽  
L Hunt
Keyword(s):  
Palliative Care ◽  
Nursing Homes ◽  
Lessons Learned ◽  
Care Access

Selection Bias in Observational Studies of Palliative Care: Lessons Learned

2020 ◽  
Author(s):  
Brystana G. Kaufman ◽  
Courtney H. Van Houtven ◽  
Melissa A. Greiner ◽  
Bradley G. Hammill ◽  
Matthew Harker ◽  
...  
Keyword(s):  
Palliative Care ◽  
Selection Bias ◽  
Observational Studies ◽  
Lessons Learned
Sign in / Sign up

Export Citation Format

Share Document