scholarly journals Maternal decision-making about intrauterine myelomeningocele repair: a qualitative exploration

2022 ◽  
Vol 226 (1) ◽  
pp. S522-S523
Author(s):  
Laura C. Colicchia ◽  
Saul Snowise ◽  
Whitney Wunderlich ◽  
Anna Schulte ◽  
Abbey C. Sidebottom
2021 ◽  
Author(s):  
Pamela Srour-Alphonse ◽  
Biljana Cvetkovski ◽  
Elizabeth Azzi ◽  
Cynthia Rand ◽  
Lynn H. M. Cheong ◽  
...  

Sex Roles ◽  
2019 ◽  
Vol 82 (3-4) ◽  
pp. 189-205 ◽  
Author(s):  
Kaitlin N. Piper ◽  
Tyler J. Fuller ◽  
Amy A. Ayers ◽  
Danielle N. Lambert ◽  
Jessica M. Sales ◽  
...  

2021 ◽  
Vol 47 (5) ◽  
pp. 355-366
Author(s):  
Ettya R. Fremont ◽  
Nathalie Slick ◽  
Steven M. Willi ◽  
Victoria A. Miller

Purpose The purpose of this qualitative study was to explore parent and youth perspectives of the decision-making process to start continuous glucose monitoring (CGM). Methods Youth with type 1 diabetes and their parents were assessed with semistructured interviews before adding CGM to their regimen and 2 months after device initiation. Interviews focused on parent, youth, and provider decision-making roles and suggestions for enhancing youth decision-making involvement (DMI). Data were coded and analyzed using thematic analysis. Results Youth (N = 41; 13.7 ± 2.9 years) were categorized into decision-making roles: (1) youth primary decision maker (54.8%), (2) youth primary decision maker with parental influence (14.3%), (3) parent primary decision maker with youth agreement (26.2%), and (4) parent primary decision maker without youth agreement (4.8%). Participants described that clinicians provided information, recommended CGM, and gave support. Recommendations to enhance youth DMI included that youth should ask questions, express opinions, and do their own research. Providers should give unbiased information and use visual aids (eg, show the device and videos) to engage youth. Conclusions Participants agreed that whereas youth should have a primary role in the decision about CGM, parental and provider support is critical. Parents and providers can facilitate dialogue by directly engaging with youth about their thoughts, feelings, and concerns. Provider use of visual aids may enhance youth engagement and expectations.


2013 ◽  
Vol 26 (5) ◽  
pp. 536-545 ◽  
Author(s):  
Wen Ting Tong ◽  
Wah Yun Low ◽  
Yut Lin Wong ◽  
Sim Poey Choong ◽  
Ravindran Jegasothy

2017 ◽  
Vol 17 (1) ◽  
Author(s):  
Paul Simpson ◽  
Ric Thomas ◽  
Jason Bendall ◽  
Bill Lord ◽  
Stephen Lord ◽  
...  

Author(s):  
Andrew Wah ◽  
Suzanne Hodge ◽  
Steven H. Jones ◽  
Guillermo Perez Algorta

Abstract Background: Difficulties with decision making and risk taking in individuals with bipolar disorder (BD) have been associated with mood episodes. However, there is limited information about these experiences during euthymia, the mood state where people with BD spent the majority of their time. Aims: To examine how individuals with BD consider risk in everyday decisions during their euthymic phase. Method: We conducted a qualitative study that used semi-structured audio recorded interviews. Eight euthymic participants with confirmed BD were interviewed, and we used interpretative phenomenological analysis to analyse the data. Results: We identified four themes. The first theme, ‘Who I really am’, involves the relationship between individual identity and risks taken. The second theme, ‘Taking back control of my life’, explored the relationship between risks taken as participants strove to keep control of their lives. The third theme, ‘Fear of the “what ifs”’, represents how the fear of negative consequences from taking risks impacts risk decisions. Finally, the fourth theme, ‘The role of family and friends’, highlights the important role that a supporting network can play in their lives in the context of taking risks. Conclusions: The study highlights aspects that can impact on an individual with BD’s consideration of risk during euthymia. Identity, control, fear and support all play a role when a person considers risk in their decision-making process, and they should be taken into consideration when exploring risk with individuals with BD in clinical settings, and inform the design of future interventions.


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