scholarly journals Yoga versus Home Exercise Program in Children with Enthesitis Related Arthritis: A Pilot Study

2021 ◽  
pp. 102696
Author(s):  
Ezgi Yasar ◽  
Erdogan Kavlak ◽  
Serkan Turkucar ◽  
Deniz Bayraktar ◽  
Ceyhun Acari ◽  
...  
Keyword(s):  
Pilot Study ◽  
Exercise Program ◽  
Home Exercise ◽  
Home Exercise Program ◽  
Enthesitis Related Arthritis

scholarly journals A Telerehabilitation Intervention for Youths With Arthrogryposis Multiplex Congenita: Protocol for a Pilot Study (Preprint)

2020 ◽  
Author(s):  
Marianne Gagnon ◽  
Jessica Collins ◽  
Caroline Elfassy ◽  
Gabriela Marino Merlo ◽  
Jacquelyn Marsh ◽  
...  
Keyword(s):  
Physical Activity ◽  
Pilot Study ◽  
Data Collection ◽  
Range Of Motion ◽  
Large Scale ◽  
Goal Attainment ◽  
Exercise Program ◽  
Home Exercise ◽  
Arthrogryposis Multiplex Congenita ◽  
Home Exercise Program

BACKGROUND Arthrogryposis multiplex congenita (AMC) is characterized by joint contractures present in at least two body areas. In addition to these contractures, individuals with AMC can have decreased muscle mass, leading to limitations in activities of daily living. Exercise has the potential to maintain or improve the range of motion and muscle strength. However, this type of intervention necessitates frequent follow ups that are currently difficult to provide for youths with AMC because they often live far from a specialized hospital. To overcome this distance challenge, telecommunication technologies can be used to deliver rehabilitation remotely, which is called telerehabilitation. The study protocol for one such type of rehabilitation will be presented in this paper. OBJECTIVE This pilot study aims to (1) evaluate the feasibility of using telerehabilitation to provide a home exercise program for youths with AMC, and (2) assess the effectiveness of a home exercise program. METHODS A total of 10 youths aged 8-21 years with AMC will be recruited. The intervention consists of a 12-week individualized home-based exercise program delivered remotely using telerehabilitation. At baseline, youths will complete the Physical Activity Questionnaire for Adolescents and the Pediatrics Outcomes Data Collection Instrument to assess pain, function, and level of physical activity. During the first telerehabilitation meeting, the rehabilitation therapists will measure range of motion using a virtual goniometer and assess the youth’s functional level. The therapists will then use the Goal Attainment Scale to set objectives and develop the individualized intervention. Follow ups will occur every 3 weeks to make sure exercises are performed safely and to progress the exercises when needed. At the end of the 12-week intervention, rehabilitation therapists will re-evaluate the youth using the same outcome measures as the initial evaluation. The youths will be asked to complete the same questionnaires, with the addition of questions about their satisfaction regarding the intervention. Nonparametric and descriptive statistics will be used to evaluate the feasibility and effectiveness. RESULTS Ethics approval was obtained in October 2018. Recruitment and data collection started in January 2019 and was completed in May 2020. CONCLUSIONS This pilot study will help us learn how a large-scale project may work in practice to improve outcomes in physical activity, pain, and function, and goal attainment among youths with AMC, thus informing a future clinical trial. INTERNATIONAL REGISTERED REPORT DERR1-10.2196/18688

scholarly journals A Telerehabilitation Intervention for Youths With Arthrogryposis Multiplex Congenita: Protocol for a Pilot Study

10.2196/18688 ◽  
2020 ◽  
Vol 9 (6) ◽  
pp. e18688
Author(s):  
Marianne Gagnon ◽  
Jessica Collins ◽  
Caroline Elfassy ◽  
Gabriela Marino Merlo ◽  
Jacquelyn Marsh ◽  
...  
Keyword(s):  
Physical Activity ◽  
Pilot Study ◽  
Data Collection ◽  
Range Of Motion ◽  
Large Scale ◽  
Goal Attainment ◽  
Exercise Program ◽  
Home Exercise ◽  
Arthrogryposis Multiplex Congenita ◽  
Home Exercise Program

Background Arthrogryposis multiplex congenita (AMC) is characterized by joint contractures present in at least two body areas. In addition to these contractures, individuals with AMC can have decreased muscle mass, leading to limitations in activities of daily living. Exercise has the potential to maintain or improve the range of motion and muscle strength. However, this type of intervention necessitates frequent follow ups that are currently difficult to provide for youths with AMC because they often live far from a specialized hospital. To overcome this distance challenge, telecommunication technologies can be used to deliver rehabilitation remotely, which is called telerehabilitation. The study protocol for one such type of rehabilitation will be presented in this paper. Objective This pilot study aims to (1) evaluate the feasibility of using telerehabilitation to provide a home exercise program for youths with AMC, and (2) assess the effectiveness of a home exercise program. Methods A total of 10 youths aged 8-21 years with AMC will be recruited. The intervention consists of a 12-week individualized home-based exercise program delivered remotely using telerehabilitation. At baseline, youths will complete the Physical Activity Questionnaire for Adolescents and the Pediatrics Outcomes Data Collection Instrument to assess pain, function, and level of physical activity. During the first telerehabilitation meeting, the rehabilitation therapists will measure range of motion using a virtual goniometer and assess the youth’s functional level. The therapists will then use the Goal Attainment Scale to set objectives and develop the individualized intervention. Follow ups will occur every 3 weeks to make sure exercises are performed safely and to progress the exercises when needed. At the end of the 12-week intervention, rehabilitation therapists will re-evaluate the youth using the same outcome measures as the initial evaluation. The youths will be asked to complete the same questionnaires, with the addition of questions about their satisfaction regarding the intervention. Nonparametric and descriptive statistics will be used to evaluate the feasibility and effectiveness. Results Ethics approval was obtained in October 2018. Recruitment and data collection started in January 2019 and was completed in May 2020. Conclusions This pilot study will help us learn how a large-scale project may work in practice to improve outcomes in physical activity, pain, and function, and goal attainment among youths with AMC, thus informing a future clinical trial. International Registered Report Identifier (IRRID) DERR1-10.2196/18688

PILOT STUDY OF TELEHEALTH HOME EXERCISE PROGRAM

2006 ◽  
Vol 26 (4) ◽  
pp. 270
Author(s):  
Jill Winters ◽  
Mary Ann Papp ◽  
Susan Cashin
Keyword(s):  
Pilot Study ◽  
Exercise Program ◽  
Home Exercise ◽  
Home Exercise Program

Physiotherapy Home Exercise Program for Haemophiliacs

2011 ◽  
Vol 223 (03) ◽  
pp. 189-192 ◽  
Author(s):  
K. Pierstorff ◽  
A. Seuser ◽  
S. Weinspach ◽  
H.-J. Laws
Keyword(s):  
Exercise Program ◽  
Home Exercise ◽  
Home Exercise Program
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