scholarly journals Congenital Heart Disease (CHD) Patients Attending Cardiac Rehabilitation – a Comparative Study Between Simple and > Moderate CHD Complexity

2016 ◽  
Vol 25 ◽  
pp. S306
Author(s):  
R. Zecchin ◽  
J. Baihn ◽  
Y. Chai ◽  
K. Haeusler ◽  
J. Hungerford ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Comparative Study ◽  
Cardiac Rehabilitation ◽  
Congenital Heart

Identifying elements for a comprehensive paediatric cardiac rehabilitation programme

2020 ◽  
Vol 30 (10) ◽  
pp. 1473-1481
Author(s):  
Tracy Curran ◽  
Naomi Gauthier ◽  
Susan M. Duty ◽  
Rachele Pojednic
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Exercise Training ◽  
Cardiac Rehabilitation ◽  
Congenital Heart ◽  
Rehabilitation Programme ◽  
Delphi Panel ◽  
Healthcare Team ◽  
Cardiac Rehabilitation Programme ◽  
Self Confidence

AbstractIntroduction:The aim of this study was to identify relevant content among four important domains for the development and structure of a paediatric cardiac rehabilitation curriculum for young patients with congenital heart disease using a consensus approach.Methods:A three-round e-Delphi study among congenital heart disease and paediatric exercise physiology experts was conducted. Round 1, experts provided opinions in a closed- and open-ended electronic questionnaire to identify specific elements necessary for inclusion in a paediatric cardiac rehabilitation programme. Round 2, experts were asked to re-rate the same items after feedback and summary data were provided from round 1. Round 3, the same experts were asked to re-rate items that did not reach consensus from round 2.Results:Forty-seven experts were contacted via e-mail to participate on the Delphi panel, 37 consented, 35 completed round 1, 29 completed round 2, and 28 completed the final round. After round 2, consensus was reached in 55 of 60 (92%) questionnaire items across four domains: exercise training, education, outcome metrics, and self-confidence.Conclusion:This study established consensus towards programme structure, exercise training principles, educational content, patient outcome measures, and self-confidence promotion. By identifying the key components within each domain, there is potential to benchmark recommended standards and practice guidelines for the development of a paediatric cardiac rehabilitation curriculum to be used and tested by exercise physiologists, paediatric and adult congenital cardiologists, and other healthcare team members for optimising the health and wellness of paediatric patients with congenital heart disease.

scholarly journals Evaluation and Cardiac Rehabilitation on a patient with a congenital heart disease

2021 ◽  
Vol 20 (Supplement_1) ◽  
Author(s):  
A Felix
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Pulmonary Artery ◽  
Cardiac Rehabilitation ◽  
Congenital Heart ◽  
Ductus Arteriosus ◽  
Interindividual Variation ◽  
Initial Assessment ◽  
Control Group ◽  
Developmental Outcome

Abstract Funding Acknowledgements Type of funding sources: None. Introduction Severe congenital heart disease (CHD) requiring surgical intervention occurs in 6 of 1000 live-born infants. Substantial improvements in surgical treatment and perioperative care have led to excellent long-term cardiac outcomes for most of these patients and, consequentially, to a significant increase in survival rates. Formal evaluations of preschool, school-aged children and adolescents born with complex CHD demonstrate a pattern of neurodevelopmental sequelae, which may appear alone, or in combination. Purpose F. is a 21 years-old patient with repaired complex transposition of the great arteries with ventricular septal defect, who have already undergone three surgeries: a) an initial palliative surgery (pulmonary artery banding and ductus arteriosus ligation) at the neonatal period; b) a corrective surgery (arterial switch and VSD closure) at the end of the first year of life and c) Pulmonary artery plasty for residual pulmonary stenosis at the age of 16 years-old. Now, he was admitted to our department for urgent wide-complex tachycardia treatment.  His initial assessment documented a subjectively impaired motor development, and subsequently, a formal assessment was performed. Methods The Bruininks-Oseretsky Test of Motor Proficiency, second edition (BOT-2) is an individually administrated test that resorts to a series of engaging, goal-directed activities to measure a wide array of motor skills in individuals ages 4 through 21. The BOT-2 uses a subtest and composite structure that highlights motor performance in the broad functional areas of stability, mobility, strength, coordination, and object manipulation. Results Patient"s performance in the four main motor skill areas will be report, namely: Fine Manual Control, Manual Coordination, Body Coordination, and Strength and Agility. Because Fabio completed all four parts of the BOT-2, a comprehensive score from all four areas, the Total Motor Composite, will also be reported. Fabio"s scores were compared to the ones of a control group of age and gender-matched individuals. This Patient started sessions of Cardiac Rehabilitation. The rehabilitation sessions are conducting for 1 hour three times a week for 1 year. This program still in progress, but we speculate that the will improve his motor abilities and developmental skills. Conclusion The risk of a poor developmental outcome varies according to the specific cardiac effect. In addition, there is significant interindividual variation in developmental outcome even among children with the same cardiac defect. Other factors may contribute to neurologic dysfunctions. These factors can be divided into three main categories and time-frames: prenatal, perioperative and post-discharge.

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