scholarly journals Dignity Therapy and Life Review for Palliative Care Patients: A Qualitative Study

2017 ◽  
Vol 54 (4) ◽  
pp. 530-537.e1 ◽  
Author(s):  
Dean Vuksanovic ◽  
Heather Green ◽  
Shirley Morrissey ◽  
Sharelle Smith
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
Life Review ◽  
Dignity Therapy

scholarly journals Patients’ priorities in a reminiscence and legacy intervention in palliative care

2019 ◽  
Vol 13 ◽  
pp. 263235241989262
Author(s):  
Michaela Hesse ◽  
Simon Forstmeier ◽  
Gülay Ates ◽  
Lukas Radbruch
Keyword(s):  
Palliative Care ◽  
Well Being ◽  
Life Review ◽  
University Hospital ◽  
Self Awareness ◽  
Growing Up ◽  
Philosophy Of Life ◽  
Dignity Therapy ◽  
And Coping ◽  
The University

Background: Reminiscence is used in a range of different interventions in palliative care, for example, Dignity Therapy or Life Review. However, literature has focused mainly on the methodology, and little has been published on patients’ priorities and primary concerns. Objective: This study looks at themes emerging in a reminiscence intervention with patients confronted with a life-limiting disease. Interviews were audiotaped and transcribed verbatim. Transcripts were analysed using thematic analysis. Setting/subjects: Seventeen patients who were receiving palliative care at the University Hospital Bonn participated in interviews reviewing parts or phases of their lives. Results: Patients expressed satisfaction and a sense of well-being with the intervention. Major themes emerging in the interviews were the factors involved in the development and expression of personality, such as character-forming influences, self-image, self-awareness, and philosophy of life. Talking about personality was entangled with influences from growing up, qualification/job, partner/spouse, children, resources, twists of fate/crossroads, and coping. Conclusion: The topics emerging from the interviews differed from the scope of guiding questions in common reminiscence methods like Life Review or Dignity Therapy. The underlying motivation of patients seemed to be the search for identity and continuity in one’s life.

scholarly journals Audiobooks from terminally ill parent for their children – a qualitative evaluation

2021 ◽  
Author(s):  
Henning Cuhls ◽  
Michaela Hesse ◽  
Gülay Ates ◽  
Lukas Radbruch
Keyword(s):  
Palliative Care ◽  
Young Children ◽  
Terminally Ill ◽  
Qualitative Evaluation ◽  
Life Review ◽  
Main Theme ◽  
Young Parents ◽  
Dignity Therapy ◽  
Limited Life

Abstract Background Improving the quality of life is one of the main objectives of palliative care. Biographical approaches are often used in combination with leaving a legacy in a range of different interventions such as Dignity Therapy or Life Review. This study presents an evaluation of audiobook biographies for palliative care patients with young children. Methods Young parents diagnosed with a life-limiting disease could participate and create an audiobook for their young children. The audiobook itself was recorded over several days and edited by qualified radio journalists. After providing informed consent participants were interviewed twice over the course of the intervention regarding expectations, concerns, motivation, and experiences. Interviews and notes were transcribed verbatim and were analyzed using content analysis. Results The data were collected from February 2017 till September 2020. Fifty-four patients with ninety-six children at a mean age of seven years were included and created an audiobook. The main theme of all interviews were the children. Within this field identified main topics were legacy, motivation, usage, benefit, aims, difficulties and worries in descending order. All patients would recommend the intervention.Conclusion Creating an audiobook as a legacy to their children seemed to help the diseased parents to cope with their limited life span.

scholarly journals Dignity Therapy and Life Review for Palliative Care Patients: A Randomized Controlled Trial

2017 ◽  
Vol 53 (2) ◽  
pp. 162-170.e1 ◽  
Author(s):  
Dean Vuksanovic ◽  
Heather J. Green ◽  
Murray Dyck ◽  
Shirley A. Morrissey
Keyword(s):  
Palliative Care ◽  
Randomized Controlled Trial ◽  
Controlled Trial ◽  
Life Review ◽  
Randomized Controlled ◽  
Dignity Therapy

scholarly journals Audiobooks from terminally ill parent for their children – a qualitative evaluation

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Henning Cuhls ◽  
Michaela Hesse ◽  
Gülay Ates ◽  
Lukas Radbruch
Keyword(s):  
Palliative Care ◽  
Young Children ◽  
Terminally Ill ◽  
Qualitative Evaluation ◽  
Life Review ◽  
Main Theme ◽  
Young Parents ◽  
Dignity Therapy ◽  
Limited Life

Abstract Background Improving the quality of life is one of the main objectives of palliative care. Biographical approaches are often used in combination with leaving a legacy in a range of different interventions such as Dignity Therapy or Life Review. This study presents an evaluation of audiobook biographies for palliative care patients with young children. Methods Young parents diagnosed with a life-limiting disease could participate and create an audiobook for their young children. The audiobook itself was recorded over several days and edited by qualified radio journalists. After providing informed consent participants were interviewed twice over the course of the intervention regarding expectations, concerns, motivation, and experiences. Interviews and notes were transcribed verbatim and were analyzed using content analysis. The contents of the audiobooks are not part of the evaluation. Results The data were collected from February 2017 till September 2020. Fifty-four patients with ninety-six children at a mean age of 7 years were included and created an audiobook. The main theme of all interviews were the children. Within this field identified main topics were legacy, motivation, usage, benefit, aims, difficulties and worries in descending order. All patients would recommend the intervention. Conclusion Creating an audiobook as a legacy to their children seemed to help the diseased parents to cope with their limited life span.

Happiness at the end of life: A qualitative study

2021 ◽  
pp. 1-7
Author(s):  
Tan Seng Beng ◽  
Wong Ka Ghee ◽  
Ng Yun Hui ◽  
Ooi Chieh Yin ◽  
Khoo Wei Shen Kelvin ◽  
...  
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
End Of Life ◽  
Terminal Illness ◽  
Terminally Ill ◽  
Social Connections ◽  
Targeted Interventions ◽  
Pain And Suffering ◽  
The University ◽  
Eudaimonic Happiness

Abstract Objective Dying is mostly seen as a dreadful event, never a happy experience. Yet, as palliative care physicians, we have seen so many patients who remained happy despite facing death. Hence, we conducted this qualitative study to explore happiness in palliative care patients at the University of Malaya Medical Centre. Method Twenty terminally ill patients were interviewed with semi-structured questions. The results were thematically analyzed. Results Eight themes were generated: the meaning of happiness, connections, mindset, pleasure, health, faith, wealth, and work. Our results showed that happiness is possible at the end of life. Happiness can coexist with pain and suffering. Social connections were the most important element of happiness at the end of life. Wealth and work were given the least emphasis. From the descriptions of our patients, we recognized a tendency for the degree of importance to shift from the hedonic happiness to eudaimonic happiness as patients experienced a terminal illness. Significance of results To increase the happiness of palliative care patients, it is crucial to assess the meaning of happiness for each patient and the degree of importance for each happiness domain to allow targeted interventions.

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