scholarly journals Pediatric Palliative Oncology Patients: Demographics, Treatment and End-of-Life Experiences of a Vulnerable and Understudied Population (TH340D)

2018 ◽  
Vol 55 (2) ◽  
pp. 580-581 ◽  
Author(s):  
Erica Kaye ◽  
Courtney Gushue ◽  
Samantha Demarsh ◽  
Jonathan Jerkins ◽  
Jennifer Snaman ◽  
...  
2021 ◽  
Author(s):  
Philippa McFarlane ◽  
Mary Miller ◽  
Matthew Carey ◽  
Angela Halley ◽  
Sophie Wilson ◽  
...  

2010 ◽  
Vol 24 (7) ◽  
pp. 731-736 ◽  
Author(s):  
Felicity Hasson ◽  
W George Kernohan ◽  
Marian McLaughlin ◽  
Mary Waldron ◽  
Dorry McLaughlin ◽  
...  

2018 ◽  
Vol 66 (12) ◽  
pp. 2360-2366 ◽  
Author(s):  
Ashwin A. Kotwal ◽  
Emily Abdoler ◽  
L. Grisell Diaz‐Ramirez ◽  
Amy S. Kelley ◽  
Katherine A. Ornstein ◽  
...  

2020 ◽  
Vol 37 (12) ◽  
pp. 1009-1015
Author(s):  
Laura K. Sedig ◽  
Jessica L. Spruit ◽  
Trisha K. Paul ◽  
Melissa K. Cousino ◽  
Harlan McCaffery ◽  
...  

Background: Cancer remains the leading cause of death by disease for children in the United States. It is imperative to optimize measures to support patients and families facing the end of a child’s life. This study asked bereaved parents to reflect on their child’s end-of-life care to identify which components of decision-making, supportive services, and communication were helpful, not helpful, or lacking. Methods: An anonymous survey about end-of-life experiences was sent to families of children treated at a single institution who died of a malignancy between 2010 and 2017. Results: Twenty-eight surveys were returned for a 30.8% response rate. Most of the bereaved parents (61%) reported a desire for shared decision-making; this was described by 52% of families at the end of their child’s life. There was a statistically significant association between how well death went and whether the parental perception of actual decision-making aligned with desired decision-making ( P = .002). Families did not utilize many of the supportive services that are available including psychology and psychiatry (only 22% used). Respondents felt that additional services would have been helpful. Conclusions: Health care providers should strive to participate in decision-making models that align with the preferences of the patient and family and provide excellent communication. Additional resources to support families following the death of a child should be identified for families or developed and funded if a gap in available services is identified.


PLoS ONE ◽  
2019 ◽  
Vol 14 (5) ◽  
pp. e0217039 ◽  
Author(s):  
Melissa J. Armstrong ◽  
Slande Alliance ◽  
Angela Taylor ◽  
Pamela Corsentino ◽  
James E. Galvin

2013 ◽  
Vol 45 (2) ◽  
pp. 395-396
Author(s):  
Jessica Keim-Malpass ◽  
Jeanne Erickson ◽  
Howard Charles Malpass

2018 ◽  
Vol 33 (5) ◽  
pp. 509-513 ◽  
Author(s):  
Casey M. Hay ◽  
Joseph L. Kelley ◽  
Robert P. Edwards ◽  
Kathleen M. Pombier ◽  
John T. Comerci

Super-utilizers account for many emergency department visits (EDV) and hospitalizations. Among Medicare/Medicaid patients, 5% to 10% account for >50% of spending. Little is known about super-utilization in gynecologic oncology. Charts of 64 gynecologic oncology patients with ≥3 EDV and/or admissions over 12 months were reviewed retrospectively. Cancer type distribution was 47% ovarian, 23% cervical, 23% endometrial, and 6% vulvar. Treatment at index visit was 61% chemotherapy, 16% no treatment, 8% recent surgery, and 6% radiation. Mean visits was 5.7 (SD 3.9, range 3-28). Most common presenting complaints were gastrointestinal and pain. Patients near end of life were more likely to be admitted. EDV frequently occurred outside standard work hours (63%). EDV/admissions resulted in total variable expenses of $1 462 581 ($982 933 direct expense, $479 648 service expense). Interventions to decrease super-utilization could target symptom management, off-hour support, patients on chemotherapy, and end of life. Approaches could include multidisciplinary resources, palliative care teams, extending office hours, and earlier initiation of hospice.


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