scholarly journals End-of-life Experiences of Hospitalized Young Adults With Cancer (SA506-B)

2013 ◽  
Vol 45 (2) ◽  
pp. 395-396
Author(s):  
Jessica Keim-Malpass ◽  
Jeanne Erickson ◽  
Howard Charles Malpass
2021 ◽  
Author(s):  
Philippa McFarlane ◽  
Mary Miller ◽  
Matthew Carey ◽  
Angela Halley ◽  
Sophie Wilson ◽  
...  

2019 ◽  
Author(s):  
Rudolf Cymorr Kirby Palogan Martinez ◽  
Migliore H. Macuja ◽  
Paul Remson Manzo ◽  
Sarah J. Bujawe

This study, rooted on phenomenological approach, explored the experiences of post-stoke young adults. Seven (7) participants were gathered as co-researchers and were selected thoroughly based on the following criteria: 1) They are Filipino who had stroke at the age of 15-35 and 2) They are able and willing to articulate, participate, and share their life experiences. Further, the experiences of the participants were gathered and enhanced through the following methods: 1) Interview, and 2) Storytelling. Subsequently, three levels of analysis were done ensuing the process developed by Martinez (2013), grounded on interpretative phenomenology. Through the process of reflective analysis, three themes have emerged and are as follows: (a) “Sometimes, what is forbidden is pleasurable”: Dilemma of Needs and Wants(b) “I accepted it... my family is still accepting it”: Centrality and Ambiguity of the Family(c) “I become feeble but stronger”: Resilience in VulnerabilityThe themes represent a recurring pattern among the lives of the co-researchers from having the desire to change their old ways and habits but acting otherwise. Further, these patterns are reflected in the positionality of their family as both a burden that reminds them that they have a disease yet serves as the main reason they continue to fight. This also mirrors how they view stroke as something that defeated them but in the process taught them resilience in life. The insight of a “life in paradox”, then serves as the central essence of the study.Insights from the study suggest that the experience of the co-researchers is more than an individual experience of conflict resolution but a phenomenon of family’s contextualization. Studies that explore compliance among post stroke young adult as well as family involvement in rehabilitation is then suggested.


2010 ◽  
Vol 24 (7) ◽  
pp. 731-736 ◽  
Author(s):  
Felicity Hasson ◽  
W George Kernohan ◽  
Marian McLaughlin ◽  
Mary Waldron ◽  
Dorry McLaughlin ◽  
...  

2018 ◽  
Vol 66 (12) ◽  
pp. 2360-2366 ◽  
Author(s):  
Ashwin A. Kotwal ◽  
Emily Abdoler ◽  
L. Grisell Diaz‐Ramirez ◽  
Amy S. Kelley ◽  
Katherine A. Ornstein ◽  
...  

2020 ◽  
Vol 37 (12) ◽  
pp. 1009-1015
Author(s):  
Laura K. Sedig ◽  
Jessica L. Spruit ◽  
Trisha K. Paul ◽  
Melissa K. Cousino ◽  
Harlan McCaffery ◽  
...  

Background: Cancer remains the leading cause of death by disease for children in the United States. It is imperative to optimize measures to support patients and families facing the end of a child’s life. This study asked bereaved parents to reflect on their child’s end-of-life care to identify which components of decision-making, supportive services, and communication were helpful, not helpful, or lacking. Methods: An anonymous survey about end-of-life experiences was sent to families of children treated at a single institution who died of a malignancy between 2010 and 2017. Results: Twenty-eight surveys were returned for a 30.8% response rate. Most of the bereaved parents (61%) reported a desire for shared decision-making; this was described by 52% of families at the end of their child’s life. There was a statistically significant association between how well death went and whether the parental perception of actual decision-making aligned with desired decision-making ( P = .002). Families did not utilize many of the supportive services that are available including psychology and psychiatry (only 22% used). Respondents felt that additional services would have been helpful. Conclusions: Health care providers should strive to participate in decision-making models that align with the preferences of the patient and family and provide excellent communication. Additional resources to support families following the death of a child should be identified for families or developed and funded if a gap in available services is identified.


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