scholarly journals P3.15-23 Data Mining the Internet and Crowdsourcing in Guiding Patient Decision-Making.

2018 ◽  
Vol 13 (10) ◽  
pp. S999-S1000
Author(s):  
S. Pathak ◽  
C. Sit
2016 ◽  
Vol 82 (5) ◽  
pp. 397-402 ◽  
Author(s):  
Hank Schmidt ◽  
Almog Cohen ◽  
John Mandeli ◽  
Christina Weltz ◽  
Elisa R. Port

Patient decision-making regarding breast cancer surgery is multifactorial, and patients derive information on surgical treatment options from a variety of sources which may have an impact on choice of surgery. We investigated the role of different information sources in patient decision-making regarding breast cancer surgery. Two hundred and sixty-eight patients with breast cancer, eligible for breast-conserving therapy were surveyed in the immediate preoperative period, and clinical data were also collected. This survey evaluated the scope and features of patient-driven research regarding their ultimate choice of surgical treatment. The two most common sources of information used by patients were written material from surgeons (199/268–74%) and the Internet (184/268–69%). There was a trend for women who chose bilateral mastectomy to use the Internet more frequently than those choosing unilateral mastectomy ( P = 0.056). Number of surgeons consulted, genetic testing, and MRI were significant predictors of patient choice of mastectomy over breast-conserving therapy. Multivariate analysis showed that the number of surgeons consulted ( P < 0.001) and genetic testing ( P < 0.001) were independent predictors of choosing mastectomy, whereas MRI was not. In conclusions, understanding factors driving patient decision-making may promote more effective education for patients requiring breast cancer surgery.


2005 ◽  
Vol 2 (3) ◽  
pp. 153-164 ◽  
Author(s):  
Douglas O. Stewart ◽  
Joseph P. DeMarco

Rheumatology ◽  
2017 ◽  
Vol 56 (suppl_2) ◽  
Author(s):  
Jennifer Liddle ◽  
Jane C. Richardson ◽  
Christian D. Mallen ◽  
Samantha L. Hider ◽  
Priyanka Chandratre ◽  
...  

2021 ◽  
Author(s):  
Szilvia Zörgő ◽  
Gjalt - Jorn Ygram Peters ◽  
Csajbók-Veres Krisztina ◽  
Anna Jeney ◽  
Andrew Ruis

Background: Patient decision-making concerning therapy choice has been thoroughly investigated in the Push/Pull framework: factors pushing the patient away from biomedicine and those pulling them towards Complementary and Alternative Medicine (CAM). Others have examined lay etiology as a potential factor in CAM use.Methods: We conducted semi-structured interviews with patients employing only biomedicine and those using CAM. The coded and segmented data was quantified and modelled using epistemic network analysis (ENA) to explore what effects push/pull factors and etiology had on the decision-making processes.Results: There was a marked difference between our two subsamples concerning push factors: although both groups exhibited similar scaled relative code frequencies, the CAM network models were more interconnected, indicating that CAM users expressed dissatisfaction with a wider array of phenomena. Among pull factors, a preference for natural therapies accounted for differences between groups but did not retain a strong connection to rejecting conventional treatments. Etiology, particularly adherence to vitalism, was also a critical factor in both choice of therapy and rejection of biomedical treatments.Conclusions: Push factors had a crucial influence on decision-making, not as individual entities, but as a constellation of experienced phenomena. Belief in vitalism affects the patient’s explanatory model of illness, changing the interpretation of other etiological factors and illness itself. Scrutinizing individual push/pull factors or etiology does not explain therapeutic choices; it is from their interplay that decisions arise. Our unified, qualitative-and-quantitative methodological approach offers novel insight into decision-making by displaying connections among codes within patient narratives.


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