scholarly journals Older adult and family caregiver experiences with prescription medication labels and their suggestions for label improvement

Author(s):  
Yi Wen Tan ◽  
Sumithra Suppiah ◽  
Alexandre Chan ◽  
Gerald Choon-Huat Koh ◽  
Wern-Ee Tang ◽  
...  
Author(s):  
Justine L. Giosa ◽  
Paul Stolee ◽  
Sherry L. Dupuis ◽  
Steven E. Mock ◽  
Selena M. Santi

RÉSUMÉCette étude a examiné les expériences informelles des aidants familiaux en soutenant les transitions de soins entre l’hôpital et la maison pour les adultes âgés avec des conditions médicales complexes. En utilisant une approche basée sur la théorie ancrée qualitative, une série d’entretiens semi-structurés a été realisée avec la communauté et des gestionnaires de cas et de ressources, ainsi qu’avec des aidants naturels de patients âgés souffrant de fractures de la hanche et des accidents vasculaires cérébraux et ceux qui se remettaient d’une chirurgie pour remplacement de la hanche. Six propriétés qui caractérisent les besoins des aidants naturels de fournir des soins de transition entre l’hôpital et la maison avec succès ont été intégrées dans une théorie qui adressent (1) l’horaire des soins transitoires et (2) le passage émotionnel. Ces six propriétés comprennent : (1) l’évaluation des situations familiales; (2) des informations sur les pratiques; (3) l’éducation et la formation; (4) l’accord entre les aidants officiels et informels; (5) le temps de prendre des dispositions pour la vie personnelle, et (6) la préparation affective et émotionelle. Cette étude soutiendra le développement d’interventions mieux informées et plus pertinentes, qui offrent le soutien le plus approprié pour les patients et leurs familles pendant les soins de transition.


2019 ◽  
Vol 32 (2) ◽  
pp. 67-75 ◽  
Author(s):  
Julia Burgdorf ◽  
Alicia Arbaje ◽  
Jennifer L. Wolff

Family caregivers make important contributions to home health care for older adults, but knowledge of the specific roles they assume is lacking. We analyzed data from 1,758 community-dwelling Medicare beneficiaries aged 65+ receiving Medicare-funded home health care between 2011 and 2016, using linked National Health and Aging Trends Study and Outcomes and Assessment Information Set data. Most (86.7%) beneficiaries receiving home health care had an identified need for family caregiver assistance, and nearly 6 in 10 (57.9%) had identified need for caregiver assistance with five or more tasks. After examining significant associations between older adult characteristics and identified needs for caregiver assistance with specific tasks, we identified three profiles of older adults who demonstrate similar patterns of identified need for family caregiver assistance during home health. These profiles include: (1) older adults with greater functional impairment who more often had identified need for assistance with Instrumental Activities of Daily Living, advocacy, or Activities of Daily Living; (2) older adults with cognitive impairment who more often had identified need for assistance with medication administration or supervision; and (3) older adults with greater clinical severity who more often had identified need for assistance with medical procedures and equipment. Findings support calls to develop training interventions and strengthen the partnership between home health providers and family caregivers. These three profiles present a potential framework for the development of family caregiver training programs.


2014 ◽  
Vol 2014 ◽  
pp. 1-8 ◽  
Author(s):  
Jennifer R. Pharr ◽  
Carolee Dodge Francis ◽  
Christine Terry ◽  
Michele C. Clark

Ethnic minorities are expected to experience a greater demand for family caregiving than non-Latino Whites due to their projected population growth. Although the consensus of researchers on caregiving and culture finds that the caregiving experience differs significantly among cultural/ethnic groups, the question remains as to how cultural values and norms influence the caregiver experiences. We conducted an interpretative, phenomenological qualitative analysis of focus group transcripts from four groups (African American, Asian American, Hispanic American, and European American) for cultural influences on caregiving. Data were collected in Nevada between December 7, 2009, and August 20, 2010. Thirty-five caregivers participated in this study. We found commonalities among all of the cultural/ethnic groups in their experiences of the difficulties of caregiving. However, there were some significant differences in the cultural values and norms that shaped the caregiving experience. We categorized these differences as: (a) cultural embeddedness of caregiving, (b) cultural determinants of caregiving responsibilities or taxonomy of caregiving, and (c) cultural values and norms underlying the decision to provide care. The significance of this study is that it highlights the culturally perceived mandate to provide care in the African, Asian, and Hispanic American cultures.


Author(s):  
Elizabeth A. Luth ◽  
Paul K. Maciejewski ◽  
Veerawat Phongtankuel ◽  
Jiehui Xu ◽  
Holly G. Prigerson

2010 ◽  
Vol 6 (1-2) ◽  
pp. 51-72 ◽  
Author(s):  
Aloen L. Townsend ◽  
Karen J. Ishler ◽  
Beth M. Shapiro ◽  
Elizabeth Ford Pitorak ◽  
Carol R. Matthews

PLoS ONE ◽  
2015 ◽  
Vol 10 (6) ◽  
pp. e0129540 ◽  
Author(s):  
Chien-Ning Tseng ◽  
Guey-Shiun Huang ◽  
Po-Jui Yu ◽  
Meei-Fang Lou

2019 ◽  
Vol 7 (4) ◽  
pp. 1
Author(s):  
Marianne Fjose ◽  
Grethe Eilertsen ◽  
Marit Kirkevold ◽  
Ellen K. Grov

Objective: Studies focusing on the impact of caregiving for older adult home-dwelling patients with cancer in the palliative phase, particularly the burdens on different family caregiver groups, are limited. The objective of this study was to assess and compare caregiver reactions and social provisions among different family caregiver groups in Norway.Methods: The sample consisted of 58 family members caring for 26 home-dwelling older adult patients with advanced cancer. The Caregiver Reaction Assessment and Social Provisions Scale were used to assess the caregiver reactions and social support, respectively. The analyses were performed using descriptive statistics.Results: Significant differences were revealed between the family caregiver groups in the following three dimensions of the Caregiver Reaction Assessment: impact on schedule, lack of family support and impact on health. Significant differences were revealed between the family caregiver groups in the following two dimensions of the Social Provisions Scale: nurturance and attachment.Conclusions: In our study, children and children-in-law caring for widowed patients and spouses were the most vulnerable family caregivers. We recommend assessing the caregiver situation of all available family members caring for older adult patients with advanced cancer to identify the most vulnerable caregivers.


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