Human Involvement Improves Yield of Electronic Data Capture of Heath-Related Quality of Life (HRQL) Surveys of Adult Spine Patients

2012 ◽  
Vol 12 (9) ◽  
pp. S54-S55
Author(s):  
Spencer G. Dauer ◽  
Thomas D. Cha ◽  
Joseph H. Schwab ◽  
Kerrie E. Flynn ◽  
Kirkham B. Wood
2017 ◽  
Author(s):  
Mark Oremus ◽  
Anis Sharafoddini ◽  
Gian Paolo Morgano ◽  
Xuejing Jin ◽  
Feng Xie

BACKGROUND The time trade-off (TTO) task is a method of eliciting health utility scores, which range from 0 (equivalent to death) to 1 (equivalent to perfect health). These scores numerically represent a person’s health-related quality of life. Software apps exist to administer the TTO task; however, most of these apps are poorly documented and unavailable to researchers. OBJECTIVE To fill the void, we developed an online app to administer the TTO task for a research study that is examining general public proxy health-related quality of life estimates for persons with Alzheimer’s disease. This manuscript describes the development and pretest of the app. METHODS We used Research Electronic Data Capture (REDCap) to build the TTO app. The app’s modular structure and REDCap’s object-oriented environment facilitated development. After the TTO app was built, we recruited a purposive sample of 11 members of the general public to pretest its functionality and ease of use. RESULTS Feedback from the pretest group was positive. Minor modifications included clarity enhancements, such as rearranging some paragraph text into bullet points, labeling the app to delineate different question sections, and revising or deleting text. We also added a research question to enable the identification of respondents who know someone with Alzheimer’s disease. CONCLUSIONS We developed an online app to administer the TTO task. Other researchers may access and customize the app for their own research purposes.


2016 ◽  
Vol 16 (10) ◽  
pp. S350-S351
Author(s):  
Ibrahim Obeid ◽  
Francisco J. Perez-Grueso ◽  
Vincent Challier ◽  
Louis Boissiere ◽  
Ahmet Alanay ◽  
...  

Sign in / Sign up

Export Citation Format

Share Document