Initial findings from a prospective, large scale patient reported outcomes program in patients with gynecologic malignancy

Author(s):  
Rachel C. Sisodia ◽  
Stephanie Alimena ◽  
Winslow Ferris ◽  
Aashna Saini ◽  
Lauren Philp ◽  
...  
2020 ◽  
Vol 159 ◽  
pp. 76
Author(s):  
R. Clark Sisodia ◽  
A. Saini ◽  
W.B. Growdon ◽  
A.J. Bregar ◽  
A. Goodman ◽  
...  

2021 ◽  
Vol 67 (4) ◽  
pp. 4-7
Author(s):  
N. G. Mokrysheva ◽  
E. V. Kovaleva ◽  
A. K. Eremkina

The most important and effective way to organize nationwide the healthcare, as well as monitoring and routing for patients with endocrine diseases, is the creation of an unified medical record (Endocard). The Endocard is also aimed at maximizing the opportunity for professionals and researchers on various scientific issues. Registries are the potential informational and analytical platform to achieve this goal. They include the basic information on the epidemiological and clinical features of the most severe diseases such as diabetes mellitus. Given the lack of large-scale epidemiological data on the parathyroid glands pathology — primary hyperparathyroidism and hypoparathyroidism — the registers of these diseases that collects a common dataset and clinician and patient reported outcomes are of particular interest.


2019 ◽  
Vol 184 (Supplement_1) ◽  
pp. 521-528
Author(s):  
Daniel I Sack ◽  
Susan I Woodruff ◽  
Cameron T McCabe ◽  
Michael R Galarneau ◽  
Peggy P Han

Abstract The survival rate of those injured in combat in overseas contingency operations is higher than in previous conflicts. There is a need to assess the long-term psychosocial and quality of life outcomes of those injured in combat, yet surveying this population presents inherent challenges. As part of a large-scale, longitudinal examination of patient-reported outcomes of service members injured on deployment, the present manuscript evaluated the effectiveness of three postal strategies on response rates: (1) mailing a study prenotification postcard, (2) mailing the survey invitation in a larger envelope, and (3) including a small cash preincentive ($2). Evaluation of these strategies yielded mixed results in this population. Neither the prenotification postcard nor inclusion of a $2 cash preincentive significantly increased response rates. However, use of a larger envelope to mail the survey invitation significantly increased the response rate by 53.1%. Researchers interested in collecting patient-reported outcomes among military populations, including those with combat-related injuries, may find that increasing the visibility of recruitment materials is more effective for improving response rates than attempting to cognitively prime or offer prospective participants preincentives.


Sign in / Sign up

Export Citation Format

Share Document