The Confidential Inquiry into premature deaths of people with intellectual disabilities in the UK: a population-based study

Literature pertaining to open disclosure predominantly refers to acute care settings; this is the case in, for example, the UK, Republic of Ireland, Australia, Korea and the USA. There is, however, a dearth of literature regarding open disclosure related to people with intellectual disabilities. A practice example of open disclosure is presented here, following a serious adverse event in an organisation supporting adults with intellectual disabilities. The aim of the process was to openly disclose in a meaningful way to adults with significant intellectual disabilities and communication difficulties. An apology pathway was developed by a multidisciplinary team based on individual communication needs. A suite of resources was developed including easy read-picture agendas and sign language to support increased understanding of the apology. Service users received the apology first, followed by meetings with their families. This practice example has positive implications for service providers for people with intellectual disabilities.

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The haematological features and transfusion management of women who required massive transfusion for major obstetric haemorrhage in the UK: a population based study

British Journal of Haematology ◽

10.1111/bjh.13864 ◽

2015 ◽

Vol 172 (4) ◽

pp. 616-624 ◽

Cited By ~ 36

Author(s):

Laura Green ◽

Marian Knight ◽

Frances Seeney ◽

Cathy Hopkinson ◽

Peter W. Collins ◽

...

Keyword(s):

Massive Transfusion ◽

Population Based ◽

Population Based Study ◽

Obstetric Haemorrhage ◽

The Uk

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Disparities in cancer‐related healthcare among people with intellectual disabilities: A population‐based cohort study with health insurance claims data

Cancer Medicine ◽

10.1002/cam4.3333 ◽

2020 ◽

Vol 9 (18) ◽

pp. 6888-6895 ◽

Cited By ~ 1

Author(s):

Maarten Cuypers ◽

Hilde Tobi ◽

Cornelis A. A. Huijsmans ◽

Lieke Gerwen ◽

Michiel Hove ◽

...

Keyword(s):

Cohort Study ◽

Health Insurance ◽

Intellectual Disabilities ◽

Claims Data ◽

Population Based ◽

Insurance Claims ◽

Insurance Claims Data ◽

Health Insurance Claims Data ◽

People With Intellectual Disabilities ◽

Health Insurance Claims

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Psychotropic Medication Prescribing for Neuropsychiatric Comorbidities in Individuals Diagnosed with Autism Spectrum Disorder (ASD) in the UK

Journal of Autism and Developmental Disorders ◽

10.1007/s10803-019-04291-8 ◽

2019 ◽

Vol 50 (2) ◽

pp. 625-633 ◽

Cited By ~ 4

Author(s):

Basmah H. Alfageh ◽

Kenneth K. C. Man ◽

Frank M. C. Besag ◽

Tariq M. Alhawassi ◽

Ian C. K. Wong ◽

...

Keyword(s):

Autism Spectrum Disorder ◽

Psychotropic Medication ◽

Population Based ◽

Autism Spectrum ◽

Spectrum Disorder ◽

Population Based Study ◽

Changing Trend ◽

Neuropsychiatric Comorbidities ◽

Medication Prescribing ◽

The Uk

Abstract Autism spectrum disorder (ASD) is a lifelong disorder. In the UK, risperidone is the only psychotropic medication approved for the management of the behavioural symptoms that may accompany autism. This is a population-based study aimed to provide an evaluation of the changing trend in the incidence and prevalence of ASD and to analyse the pattern of psychotropic medication prescribing in the UK. 20,194 patients with ASD were identified. The prevalence increased 3.3-fold from 0.109 per 100 persons in 2009 to 0.355 per 100 persons in 2016. Approximately one-third of the identified cohort was prescribed at least one psychotropic medication. Although the medications approved to manage the symptoms of ASD are limited, the prescribing of such medications is increasing.

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