A practical example of an open disclosure process for people with intellectual disabilities in the Republic of Ireland

2021 ◽  
pp. 174462952110189
Author(s):  
Feabhra Mullally ◽  
Deirdre Corby

Literature pertaining to open disclosure predominantly refers to acute care settings; this is the case in, for example, the UK, Republic of Ireland, Australia, Korea and the USA. There is, however, a dearth of literature regarding open disclosure related to people with intellectual disabilities. A practice example of open disclosure is presented here, following a serious adverse event in an organisation supporting adults with intellectual disabilities. The aim of the process was to openly disclose in a meaningful way to adults with significant intellectual disabilities and communication difficulties. An apology pathway was developed by a multidisciplinary team based on individual communication needs. A suite of resources was developed including easy read-picture agendas and sign language to support increased understanding of the apology. Service users received the apology first, followed by meetings with their families. This practice example has positive implications for service providers for people with intellectual disabilities.

Author(s):  
Owen Barr ◽  
Bob Gates

This chapter provides an overview of the role of the independent care regulators across the UK and the Republic of Ireland. It provides information on arrangements for care regulators within the specific jurisdictions of Scotland, England, Wales, Northern Ireland, and the Republic of Ireland. This chapter outlines the role of the independent care regulators in both inspecting and supporting the development of quality in services. Nurses for people with intellectual disabilities need to have a rounded and balanced understanding of the role of these care regulators, as well as the standards and resources they provide, in order to maximize the quality of care provided to people with intellectual disabilities.


The Oxford Handbook of Learning and Intellectual Disability Nursing, 2nd edition, has been comprehensively updated throughout and brings together the contributions of leading practitioners and academics from the UK, the Republic of Ireland, and further beyond, in an authoritative text that provides essential facts and information on nurses working with people with intellectual disabilities. A unique aspect to this Oxford Handbook is the continuing attention given to differences in legislation and social policy across the jurisdiction of the constituent countries of the UK, as well as the Republic of Ireland. The landscape for the practice of nursing has never been so complex, and given this complexity of context and practice, the Oxford Handbook of Learning and Intellectual Disability Nursing continues to offer students and newly qualified practitioners alike up-to-date and concise, practical applied knowledge, as well as theoretical information, about working in a person-centred way with people with intellectual disabilities and their families/carers in order to promote their physical and mental health, improve their quality of life and their active involvement in decisions about their care, and support their access to general healthcare and community services. This handbook will be of use in the very many areas where nurses for people with learning/intellectual disabilities are located. It will also be of use to a wider range of other health and/or social care professionals, who often seek an authoritative text that provides essential facts and information on working with people with intellectual disabilities.


Somatechnics ◽  
2015 ◽  
Vol 5 (2) ◽  
pp. 174-196 ◽  
Author(s):  
Michael Feely

It is commonplace, in our historical moment, to assume the inherent characteristics of people we label intellectually disabled makes them vulnerable to sexual abuse or exploitation. Drawing on the findings of a qualitative research project regarding the treatment of sexuality within a service for adults with intellectual disabilities in the Republic of Ireland, I take a very different approach. I argue that, suspicions, fears, and allegations of sexual abuse and exploitation are best understood as produced in, and by, the material-semiotic assemblage that both service providers and service users inhabit. In the most reductive terms possible, I am going to suggest that suspicions and allegations of sexual exploitation are continually produced within the disability service because the two social species (‘normal people’ and ‘people with intellectual disabilities’) that inhabit this material territory, and share its spaces, understand intimate relationships with and amongst people with intellectual disabilities through very different discursive lenses.


Author(s):  
Owen Barr ◽  
Bob Gates

All citizens are required to act within the law and simultaneously are protected by the law. However, as a potentially vulnerable group, people with intellectual disabilities are sometimes identified specifically in law for their protection. More general legislation is sometimes highly relevant to people with intellectual disabilities and can impinge on the practice of the nurse for people with intellectual disabilities. This chapter presents a thorough overview of a range of primary legislation relevant for students and nurses for people with intellectual disabilities. Where appropriate, relevant legislation is outlined for each of the jurisdictions of the UK and the Republic of Ireland. Where a student finds an omission for the jurisdiction in which they are working, they will find helpful resources and may also find it useful to append their own notes to the sections within the chapter; the layout of the book has been designed for students to make relevant notes on.


2015 ◽  
Vol 17 (3) ◽  
pp. 33-45
Author(s):  
Julie A Lawrence ◽  
Linzi Brook

In this paper important issues, which involved vulnerable adults with Intellectual disabilities in transition from one rural location to another urban location, in England (UK) during 2014 are discussed. The notion of citizenship is discussed in relation to service users who had intellectual disabilities. This was originally embedded within the policy document Valuing People (DH, 2001). The use of a Total Communication approach by a Social Worker is also discussed, underpinned by the Human Rights framework and tenets of the Mental Capacity Act 2005. The outcomes from the transition process are highlighted, alongside the necessity to ensure that vulnerable adults are protected from abusive situations whilst living out their lives.


2017 ◽  
Vol 41 (S1) ◽  
pp. S597-S597 ◽  
Author(s):  
K. Courtenay ◽  
S. Jaydeokar ◽  
B. Perera

IntroductionPregabalin is a well-established anti-epileptic drug in the treatment of epilepsy. It is also indicated for the treatment of generalised anxiety disorder and neuropathic pain. In addition, it has mood modulating properties. In people with intellectual disabilities it is used to treat epilepsy. There is little evidence of the use of pregabalin in managing mental health difficulties in people with intellectual disabilities.ObjectivesTo describe the use of pregabalin in adults with intellectual disabilities.MethodA descriptive case series of adults with intellectual disabilities living in the community, under the care of a community psychiatrist, who are prescribed Pregabalin. Outcomes of treatment were measured using the health of the nation outcome scale for people with intellectual disabilities (HoNOS-LD).ResultsFourteen cases were identified in the community service of adults with Intellectual Disabilities. Twelve were men and two were women. The average age of the sample was 29 years. The range in duration of using pregabalin was from 3 to 72 months. Thirteen adults had a diagnosis of Autism of which three also had ADHD. The indications for using pregabalin and numbers were : anxiety (12); liability of mood (2); generalised anxiety disorder (1); epilepsy (1). The daily dose range was from 150 mg to 300 mg The mean change in HoNOS-LD scores was 32%.ConclusionsPregabalin is a useful treatment in people with intellectual disabilities who experience anxiety. It is especially effective among adults with ID and autism to modulate mood and anxiety symptoms.Disclosure of interestThe authors have not supplied their declaration of competing interest.


2005 ◽  
Vol 10 (9) ◽  
pp. 5-6 ◽  
Author(s):  
D Akbulut ◽  
J Dennis ◽  
M Gent ◽  
K A Grant ◽  
V Hope ◽  
...  

Wound infections due to Clostridium botulinum were not recognised in the UK and Republic of Ireland before 2000. C. botulinum produces a potent neurotoxin which can cause paralysis and death. In 2000 and 2001, ten cases were clinically recognised, with a further 23 in 2002, 15 in 2003 and 40 cases in 2004. All cases occurred in heroin injectors. Seventy cases occurred in England; the remainder occurred in Scotland (12 cases), Wales (2 cases) and the Republic of Ireland (4 cases). Overall, 40 (45%) of the 88 cases were laboratory confirmed by the detection of botulinum neurotoxin in serum, or by the isolation of C. botulinum from wounds. Of the 40 cases in 2004, 36 occurred in England, and of the 12 that were laboratory confirmed, 10 were due to type A. There was some geographical clustering of the cases during 2004, with most cases occurring in London and in the Yorkshire and Humberside region of northeast England.


2020 ◽  
pp. 186-201
Author(s):  
David Torrance

Many analysts of the politics of Northern Ireland have argued that there exists some form of ‘Ulster nationalism’, particularly among Ulster Unionists. After 1886, when Gladstone promised Home Rule for Ireland, Unionists fashioned an Ulster identity predicated on Protestantism and ‘loyalty’ to the British Crown. This was contrasted with the ‘disloyalty’ of Catholics in what would become the Republic of Ireland. This form of ‘nationalist unionism’ was more ethnic in character than the civic variety which existed in Scotland and Wales. It too contained contradictions, not least its suspicion of Westminster and paranoia as to the intentions of successive UK governments towards the constitutional status of Northern Ireland. At various points after 1921, some Ulster Unionists even toyed with the idea of Northern Ireland becoming a ‘Dominion’ (like the Irish Free State) or else pursuing some other form of ‘independence’ from the UK.


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