265 The experience of adult patients with cystic fibrosis (CF) of percutaneous endoscopic gastrostomy (PEG) feeding

Background: Percutaneous Endoscopic Gastrostomy (PEG) may cause complications when the management is inadequate and inappropriate. To avoid these complications, caregivers’ experiences and practices must be considered. Study Aim: This study aimed to evaluate the effect of nursing- based guidelines on caregivers’ knowledge and practices regarding adult patients with percutaneous endoscopic gastrostomy. Methods: A quasi-experimental design was used. The study was conducted in the medical and surgical departments in the National Cancer Institute, Cairo University, Egypt. Sample: The sample consisted of 30 patients with PEG and their caregivers. A Structured interviewing questionnaire, Self-Administered Structured Questionnaire for caregiver, Caregiver Performance observation checklist, and PEG-specific questionnaire were obtained for data collection Results: The majority of studied patients (86.7%) were suffering from oncologic problems, in post-test and following up, the majority (83.3%) of caregivers had satisfactory level (76.7) (90%) (70%) in knowledge, complication and management of PEG, respectively. During follow up, the majority (73.3%) (90%) of caregivers were well level as regarding nutritional management and care of PEG. There were statistically significant differences between pre/post and follow-up nursing-based guidelines for caregivers’ knowledge and practice regarding patients with percutaneous endoscopic gastrostomy. The results show an improvement in the patients outcomes and the level of caregiver coping with the care of PEG and overall Patient satisfaction at (χ2 = 3.844, 4.097) p<0.001 Conclusion: Nursing-based guidelines were helpful in the improvement of the caregiver's knowledge and practice regarding percutaneous endoscopic gastrostomy. Recommendations Periodic educational training programs regarding PEG were based on the best practice guidelines for caregivers of those patients.

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PERCUTANEOUS ENDOSCOPIC GASTROSTOMY(PEG) IN CYSTIC FIBROSIS(CF): ACUTE AND CHRONIC EFFECTS ON NUTRITIONAL AND PULMONARY PARAMETERS

Journal of Pediatric Gastroenterology and Nutrition ◽

10.1097/00005176-199910000-00058 ◽

1999 ◽

Vol 29 (4) ◽

pp. 497

Author(s):

D. Jackson ◽

B. Henshaw ◽

K. McDonald ◽

D. Nielson ◽

S. Alder ◽

...

Keyword(s):

Cystic Fibrosis ◽

Percutaneous Endoscopic Gastrostomy ◽

Endoscopic Gastrostomy ◽

Chronic Effects ◽

Acute And Chronic Effects

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Clinical Practice Guidelines for the Nursing Management of Percutaneous Endoscopic Gastrostomy and Jejunostomy (PEG/PEJ) in Adult Patients

Journal of Wound Ostomy and Continence Nursing ◽

10.1097/won.0000000000000458 ◽

2018 ◽

Vol 45 (4) ◽

pp. E1

Keyword(s):

Clinical Practice ◽

Percutaneous Endoscopic Gastrostomy ◽

Clinical Practice Guidelines ◽

Practice Guidelines ◽

Adult Patients ◽

Nursing Management ◽

Endoscopic Gastrostomy

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Percutaneous endoscopic gastrostomy in comprehensive preparing the patients with severe body mass defciency for lung transplantation

Transplantologiya The Russian Journal of Transplantation ◽

10.23873/2074-0506-2019-11-1-55-60 ◽

2019 ◽

Vol 11 (1) ◽

pp. 55-60

Author(s):

M. Sh. Khubutiya ◽

A. M. Gasanov ◽

E. A. Tarabrin ◽

T. E. Kallagov ◽

E. I. Pervakova ◽

...

Keyword(s):

Body Mass Index ◽

Cystic Fibrosis ◽

Enteral Nutrition ◽

Lung Transplantation ◽

Body Mass ◽

Percutaneous Endoscopic Gastrostomy ◽

Lung Diseases ◽

Comparison Group ◽

Waiting List ◽

Endoscopic Gastrostomy

Introduction. Currently, lung transplantation is an approved method for treating a wide range of end-stage lung diseases refractory to medical or surgical treatments when patient's life expectancy without transplantation makes no more than two years.The aim was to evaluate the efficacy of continuous nutritional support via percutaneous endoscopic gastrostomy in potential recipients of lung transplantation with a Body Mass Index under 16 kg/m2.Material and methods. The study was based on the analysis of 93 potential recipients with various lung diseases; 27 of them with diagnosed cystic fibrosis. The enteral nutrition results of the patients with cystic fibrosis whose Body Mass Index (BMI) was under 16 kg/m2 were assessed by the increment in BMI and compared between those (15) fed via gastrosomy and those (22) fed per os.Results. As a result of enteral nutrition via the gastrostomy in the daytime and at night, the majority of recipients (73.3% of cases) had the Body Mass Index (BMI) corrected from 0.1 to 4.91 kg/m2 during the first year, the mean BMI increment made 1.87 ± 0.4 kg/m2. After the BMI correction, 11 of the 15 potential recipients were included in the waiting list, and 6 of them (40%) underwent lung transplantation. In the comparison group, the BMI increment was 0.9 ± 0.3 kg/m2, also having reached a significant difference compared to the baseline (p = 0.04). However, the BMI increment in the main group was significantly higher than in the comparison group (p = 0.02).Conclusion. A statistically significant increase in BMI in a group of patients with cystic fibrosis and BMI under 16 kg/m2, has been demonstrated after percutaneous endoscopic gastrostomy, which allows extending the criteria for the inclusion in the waiting list for lung transplantation.

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