scholarly journals Reduced health-related quality of life among Hodgkin's disease survivors: A comparative study with general population norms

1999 ◽  
Vol 10 (1) ◽  
pp. 71-78 ◽  
Author(s):  
J.H. Loge ◽  
A. Foss Abrahamsen ◽  
Ø. Ekeberg ◽  
S. Kaasa
Keyword(s):  
Quality Of Life ◽  
General Population ◽  
Comparative Study ◽  
Hodgkin's Disease ◽  
Hodgkin’S Disease ◽  
Health Related Quality ◽  
Population Norms ◽  
Related Quality ◽  
Health Related

scholarly journals Assessment of health status and health-related quality of life in survivors of Hodgkin's disease in childhood

1999 ◽  
Vol 83 (S12) ◽  
pp. 32-38 ◽  
Author(s):  
Charmaine S. Van Schaik ◽  
Ronald D. Barr ◽  
Sonja Depauw ◽  
William Furlong ◽  
David Feeny
Keyword(s):  
Quality Of Life ◽  
Health Status ◽  
Hodgkin's Disease ◽  
Hodgkin’S Disease ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

scholarly journals EQ-5D-5L Derived Population Norms for Health-Related Quality of Life for Hong Kong General Population

2018 ◽  
Vol 21 ◽  
pp. S89
Author(s):  
EL Wong ◽  
AW Cheung ◽  
AY Wong ◽  
RH Xu ◽  
JM Ramos-Goni ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Hong Kong ◽  
General Population ◽  
Health Related Quality ◽  
Population Norms ◽  
Related Quality ◽  
Health Related

scholarly journals Measuring health-related quality of life in the general population and Roma communities in Romania: study protocol for two cross-sectional studies

BMJ Open ◽  
2019 ◽  
Vol 9 (8) ◽  
pp. e029067
Author(s):  
Elena Olariu ◽  
Marian Sorin Paveliu ◽  
Eugen Baican ◽  
Yemi Oluboyede ◽  
Luke Vale ◽  
...  
Keyword(s):  
Quality Of Life ◽  
General Population ◽  
Health Related Quality ◽  
Cross Sectional ◽  
Value Set ◽  
Population Norms ◽  
Related Quality ◽  
Health Related ◽  
Cross Sectional Studies

IntroductionThe importance of health-related quality of life (HRQoL) is increasing and many healthcare authorities recommend the use of measures that account for both mortality and morbidity. This study will determine, for the first time in Romania, value sets for EuroQoL-five-dimensions-3-level (EQ-5D-3L) and EQ-5D-5L questionnaires and their population norms (study 1). It will also compare the HRQoL (measured with EQ-5D-5L) of Roma communities in Romania with that of the general population (study 2).Methods and analysisCross-sectional studies of face-to-face interviews conducted in representative samples of the Romanian general population and Romanian Roma communities. 1614 non-institutionalised adults older than 18 years will be interviewed using a computer-assisted interview for study 1. Participants will complete EQ-5D-3L and 5L, 13 composite time trade-off tasks (cTTO), 7 discrete choice experiment questions (DCE) and sociodemographic questions. For study 2, 606 non-institutionalised self-identified Roma people older than 18 years will be interviewed using a pencil-and-paper interview. Participants will complete EQ-5D-5L and the same sociodemographic questions as for study 1. The 3L value set will be estimated using econometric models and the cTTO data. cTTO and DCE data will be used for the 5L value set. Population norms will be reported by age and gender. The ORs for reporting different levels of problems and the most common health states in the population will be estimated. For study 2, t-tests and analysis of variance will be used to explore differences between groups in HRQoL and for each EQ-5D.Ethics and disseminationEthics approval was given by the National Bioethics Committee of Medicines and Medical Devices Romania and Newcastle University’s Research Ethics Committee. Results will be published in peer-reviewed journals, presented at scientific conferences and on the project’s website. The EQ-5D-5L anonymised datasets will be deposited in a centralised repository. Two public workshops with local authorities, physicians and patients’ associations will be held.

Health-Related Quality of Life in Adults With Hodgkin's Disease

2009 ◽  
Vol 32 (6) ◽  
pp. E1-E17 ◽  
Author(s):  
Kristin Roper ◽  
Kathleen McDermott ◽  
Mary E. Cooley ◽  
Kristen Daley ◽  
Jacqueline Fawcett
Keyword(s):  
Quality Of Life ◽  
Hodgkin's Disease ◽  
Hodgkin’S Disease ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

PedsQL™ and EuroQol Most Responsive Measures To Change in Health-Related Quality of Life in Children with Hodgkin’s Disease.

Blood ◽  
2005 ◽  
Vol 106 (11) ◽  
pp. 1320-1320
Author(s):  
Robert J. Klaassen ◽  
Nicholas J. Barrowman ◽  
Ronald D. Barr ◽  
Murray Krahn ◽  
Joanna Hughes ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Hodgkin's Disease ◽  
Hodgkin’S Disease ◽  
Health Related Quality ◽  
Time Points ◽  
Related Quality ◽  
Health Related ◽  
Time Point

Abstract We evaluated four different health related quality of life measures to determine their ability to detect change over time. The four measures included the Health Utilities Index Mark 2 and 3 (HUI 2/3), the PedsQLTM 4.0 Generic Core and Cancer Module, the EuroQol and the Lansky Play - Performance Scale. Children with Hodgkin’s disease, their parents and the clinic nurse were all asked to complete the four measures at four time points: 2 weeks after the 1st course of chemotherapy, on the 3rd day of the 2nd course of chemotherapy, during the 3rd week of radiation and 1 year after diagnosis. At each follow up time point the respondents were asked to indicate whether the child’s HRQL had improved, stayed the same or became worse since the last measurement. 51 adolescents from 12 centres across Canada were enrolled in the study between May 1, 2002 and March 31, 2005. Two patients were excluded: one patient died shortly after the first time point, and the other patient failed to complete any of the questionnaires. The 49 patients included in the analysis had an average age of 14.7 years (8.9 - 17.9), with the two most common stages being IIA (39%) and IVA (18%). Complete data was available on 92% of patients at time 2, 89% at time 3 and 76% at time 4. Four of the 36 patients with complete follow up had relapsed (11%). The summary scores from the patients responses can be seen in the graph below. Figure Figure All measures showed a significant change between time 1 and time 4 (<0.05). When the change in child scores was analysed between the time points using the child’s self-reported change in HRQL, the PedsQL and the EuroQol showed significant change at all time points. Change in Measures According to Reported Global Rating of Change by Patient Time Period HUI2 HUI3 PedsQL PedsQL cancer EuroQol Lansky Improved 1 to 2, n = 7 0.022 0.011 0.015 0.046 0.001 NS 2 to 3, n = 15 NS NS 0.028 0.039 0.017 NS 3 to 4, n = 20 NS NS 0.011 NS <0.001 <0.001 Same 1 to 2, n = 16 NS NS 0.033 NS NS NS 2 to 3, n = 9 NS NS 0.039 0.006 NS 0.028 3 to 4, n = 1 NS NS NS NS NS NS Worse 1 to 2, n = 6 NS NS NS NS 0.033 NS 2 to 3, n = 0 NS NS NS NS NS NS 3 to 4, n = 1 NS NS NS NS NS NS All of the measures were able to detect change in a diverse group of children with Hodgkin’s Disease. The PedsQL and the EuroQol appeared to be the most sensitive to change.

Sign in / Sign up

Export Citation Format

Share Document