The burden of psoriasis: A study concerning health-related quality of life among Norwegian adult patients with psoriasis compared with general population norms

2000 ◽  
Vol 43 (5) ◽  
pp. 803-808 ◽  
Author(s):  
Astrid Wahl ◽  
Jon Håvard Loge ◽  
Ingela Wiklund ◽  
Berit Rokne Hanestad
Keyword(s):  
Quality Of Life ◽  
General Population ◽  
Adult Patients ◽  
Health Related Quality ◽  
Population Norms ◽  
Related Quality ◽  
Health Related

scholarly journals EQ-5D-5L Derived Population Norms for Health-Related Quality of Life for Hong Kong General Population

2018 ◽  
Vol 21 ◽  
pp. S89
Author(s):  
EL Wong ◽  
AW Cheung ◽  
AY Wong ◽  
RH Xu ◽  
JM Ramos-Goni ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Hong Kong ◽  
General Population ◽  
Health Related Quality ◽  
Population Norms ◽  
Related Quality ◽  
Health Related

scholarly journals Measuring health-related quality of life in the general population and Roma communities in Romania: study protocol for two cross-sectional studies

BMJ Open ◽  
2019 ◽  
Vol 9 (8) ◽  
pp. e029067
Author(s):  
Elena Olariu ◽  
Marian Sorin Paveliu ◽  
Eugen Baican ◽  
Yemi Oluboyede ◽  
Luke Vale ◽  
...  
Keyword(s):  
Quality Of Life ◽  
General Population ◽  
Health Related Quality ◽  
Cross Sectional ◽  
Value Set ◽  
Population Norms ◽  
Related Quality ◽  
Health Related ◽  
Cross Sectional Studies

IntroductionThe importance of health-related quality of life (HRQoL) is increasing and many healthcare authorities recommend the use of measures that account for both mortality and morbidity. This study will determine, for the first time in Romania, value sets for EuroQoL-five-dimensions-3-level (EQ-5D-3L) and EQ-5D-5L questionnaires and their population norms (study 1). It will also compare the HRQoL (measured with EQ-5D-5L) of Roma communities in Romania with that of the general population (study 2).Methods and analysisCross-sectional studies of face-to-face interviews conducted in representative samples of the Romanian general population and Romanian Roma communities. 1614 non-institutionalised adults older than 18 years will be interviewed using a computer-assisted interview for study 1. Participants will complete EQ-5D-3L and 5L, 13 composite time trade-off tasks (cTTO), 7 discrete choice experiment questions (DCE) and sociodemographic questions. For study 2, 606 non-institutionalised self-identified Roma people older than 18 years will be interviewed using a pencil-and-paper interview. Participants will complete EQ-5D-5L and the same sociodemographic questions as for study 1. The 3L value set will be estimated using econometric models and the cTTO data. cTTO and DCE data will be used for the 5L value set. Population norms will be reported by age and gender. The ORs for reporting different levels of problems and the most common health states in the population will be estimated. For study 2, t-tests and analysis of variance will be used to explore differences between groups in HRQoL and for each EQ-5D.Ethics and disseminationEthics approval was given by the National Bioethics Committee of Medicines and Medical Devices Romania and Newcastle University’s Research Ethics Committee. Results will be published in peer-reviewed journals, presented at scientific conferences and on the project’s website. The EQ-5D-5L anonymised datasets will be deposited in a centralised repository. Two public workshops with local authorities, physicians and patients’ associations will be held.

scholarly journals PCN144 Health-Related Quality of Life in Prostate Cancer – One Year Follow-up and Comparison with General Population Norms

2011 ◽  
Vol 14 (7) ◽  
pp. A461
Author(s):  
R. Roine ◽  
S. Bergius ◽  
N. Färkkilä ◽  
T. Muhonen ◽  
P. Räsänen ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Prostate Cancer ◽  
General Population ◽  
Health Related Quality ◽  
Population Norms ◽  
Related Quality ◽  
Health Related ◽  
One Year

scholarly journals Health-Related Quality of Life in Adult Patients with Common Variable Immunodeficiency Disorders and Impact of Treatment

2017 ◽  
Vol 37 (5) ◽  
pp. 461-475 ◽  
Author(s):  
Nicholas L. Rider ◽  
Carleigh Kutac ◽  
Joud Hajjar ◽  
Chris Scalchunes ◽  
Filiz O. Seeborg ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Common Variable Immunodeficiency ◽  
Adult Patients ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Common Variable

scholarly journals Health-Related Quality of Life in Adrenocortical Carcinoma

Cancers ◽  
2019 ◽  
Vol 11 (10) ◽  
pp. 1500 ◽  
Author(s):  
Rebecca V. Steenaard ◽  
Laura A. Michon ◽  
Harm R. Haak
Keyword(s):  
Quality Of Life ◽  
General Population ◽  
Adrenocortical Carcinoma ◽  
Treatment Options ◽  
Clinical Aspects ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
The Impact

Insight into the health-related quality of life (HRQoL) impact of adrenocortical carcinoma (ACC) is important. The disease and its treatment options potentially have an impact on HRQoL. For patients with limited survival, HRQoL research is of utmost importance. We will therefore provide an overview of HRQoL studies in patients with ACC. We found six studies that measured HRQoL in 323 patients with ACC (3 cross-sectional, 1 cohort, 2 trials), all indicating a reduced HRQoL compared to the general population. The FIRMACT trial found that HRQoL of patients with ACC was reduced compared to the general population, and that chemotherapy-mitotane further reduced HRQoL even though survival improved. Clinical aspects of the disease, including cortisol and aldosterone production and adrenal insufficiency have shown great impact on HRQoL in benign disease, even after the recovery of hormonal status. However, the impact of malignant adrenal disease and treatment options on HRQoL including adrenalectomy, radiotherapy, mitotane therapy, and chemotherapy have not been sufficiently studied in patients with ACC. Although the number of HRQoL studies in patients with ACC is limited, the existing literature does indicate that ACC has a large impact on patients’ HRQoL, with disease specific aspects. Further HRQoL research in patients with ACC is essential to improve patient-centered care, preferably by using an ACC-specific HRQoL questionnaire.

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