State of Alaska epidemiology bulletin: Accuracy of race/ethnicity data for HIV/AIDS cases among Alaska natives

To create a better understanding of Hawai`i’s birthing population so that culturally appropriate strategies to prevent infant mortality could be developed, we undertook an analysis of population-based perinatal data collected in Hawai`i for the years 2000 and 2001. The data were collected by the Pregnancy Risk Assessment Monitoring System (PRAMS). In this system, a stratified random sample of women who delivered a live born infant are mailed a self-administered questionnaire two to six months after they deliver, with telephone follow-up for those who do not respond. A bivariate analyses of maternal characteristics of singleton infants and the prevalence of low birth weight (

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Racial and ethnic representation in epigenomic studies of preterm birth: a systematic review

Epigenomics ◽

10.2217/epi-2020-0007 ◽

2020 ◽

Author(s):

Ai-ris Y Collier ◽

Rachel Ledyard ◽

Diana Montoya-Williams ◽

Maylene Qiu ◽

Alexandra E Dereix ◽

...

Keyword(s):

Systematic Review ◽

Preterm Birth ◽

Black Women ◽

Preterm Births ◽

Synthesis Methods ◽

Cross Sectional ◽

Ethnic Representation ◽

Birth Data ◽

Race Ethnicity ◽

Ethnicity Data

Aim: We conducted a systematic review evaluating race/ethnicity representation in DNA methylomic studies of preterm birth. Data sources: PubMed, EMBASE, CINHAL, Scopus and relevant citations from 1 January 2000 to 30 June 2019. Study appraisal & synthesis methods: Two authors independently identified abstracts comparing DNA methylomic differences between term and preterm births that included race/ethnicity data. Results: 16 studies were included. Black and non-Hispanic Black deliveries were well represented (28%). However, large studies originating from more than 95% White populations were excluded due to unreported race/ethnicity data. Most studies were cross-sectional, allowing for reverse causation. Most studies were also racially/ethnically homogeneous, preventing direct comparison of DNA methylomic differences across race/ethnicities. Conclusion: In DNA methylomic studies, Black women and infants were well represented. However, the literature has limitations and precludes drawing definitive conclusions.

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Obstruction of Valid Race/Ethnicity Data Acquisition by Current Data Collection Instruments

Methods of Information in Medicine ◽

10.1055/s-0038-1634517 ◽

1998 ◽

Vol 37 (02) ◽

pp. 188-191 ◽

Cited By ~ 2

Author(s):

L. Rubin ◽

P. Dakis

Keyword(s):

Health Care ◽

Data Collection ◽

Health Planning ◽

Current Data ◽

Health Care Provision ◽

Care Provision ◽

Mixed Heritage ◽

Data Measurement ◽

Race Ethnicity ◽

Ethnicity Data

AbstractMethods of collecting race/ethnicity data affect the validity of conclusions based on them as do other factors such as lack of consensus and inadequate definitions for terminology; and misclassification or miscounting of patients. Current data collection instruments do not identify mixed heritage. We propose improving data measurement and collection by including a quantified multiracial/multiethnic heritage category for persons of mixed heritage; a don't know category; and a refuse to reveal category. The resulting problems affect all uses of racial and ethnic data, including health care provision, research, and health planning. More precise race/ ethnicity categories should be encouraged by such means as a 16-category checklist (with instructions to check all which apply) currently in development. The Methods section of all clinical, epidemiologic, and pharmacologic reports should include descriptions of racial measurement and reasons for including or excluding clearly defined populations.

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