The reliability and validity of the International Spinal Cord Injury Quality of Life Basic Data set in people with spinal cord injuries from a middle-income country: a psychometric study of the Thai version

Spinal Cord ◽  
2020 ◽  
Vol 58 (9) ◽  
pp. 1015-1021
Author(s):  
Sintip Pattanakuhar ◽  
Luntarima Suttinoon ◽  
Tinakon Wongpakaran ◽  
Siam Tongprasert
Keyword(s):  
Quality Of Life ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Spinal Cord Injuries ◽  
Reliability And Validity ◽  
Middle Income Country ◽  
Data Set ◽  
Middle Income ◽  
Cord Injury

Preliminary psychometric analyses of the International Spinal Cord Injury Quality of Life Basic Data Set

Spinal Cord ◽  
2019 ◽  
Vol 57 (9) ◽  
pp. 789-795 ◽  
Author(s):  
Peter Wayne New ◽  
Denise G. Tate ◽  
Martin B. Forchheimer ◽  
Julia Maria D’Andréa Greve ◽  
Divya Parashar ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Basic Data ◽  
Data Set ◽  
Cord Injury ◽  
Psychometric Analyses

Physical Activity, Quality of Life, and Functional Autonomy of Adults With Spinal Cord Injuries

2013 ◽  
Vol 30 (4) ◽  
pp. 317-337 ◽  
Author(s):  
Camilla Yuri Kawanishi ◽  
Márcia Greguol
Keyword(s):  
Quality Of Life ◽  
Physical Activity ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Spinal Cord Injuries ◽  
Functional Independence ◽  
Cord Injury ◽  
Functional Autonomy ◽  
Using Data

This study aimed to perform a systematic review of studies that address the influence of physical activity on the quality of life and functional independence of adult individuals with spinal cord injury. The review was performed using data obtained from the MEDLINE, CINAHL, SciELO, LILACS, SPORTDiscus, Web of Science, Academic Search Premier, and PEDro databases using the following keywords: quality of life; functional independence; autonomy; independence; physical activity; activities of daily living; physical exercise; tetraplegia; paraplegia; spinal cord injury; physical disabilities; and wheelchair. Eleven studies met the inclusion criteria. Although there was a lack of consensus among the selected studies, the majority of them presented a strong correlation between physical activity and variables of quality of life and/or functional independence. Thus, physical activity appears to have an important influence on social relationships, functional independence, psychological factors, and physical aspects, which can enhance quality of life and independence in the performance of daily activities.

scholarly journals International Spinal Cord Injury Quality of Life Basic Data Set

Spinal Cord ◽  
2012 ◽  
Vol 50 (9) ◽  
pp. 672-675 ◽  
Author(s):  
S Charlifue ◽  
M W Post ◽  
F Biering-Sørensen ◽  
A Catz ◽  
M Dijkers ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Basic Data ◽  
Data Set ◽  
Cord Injury

scholarly journals Complex clinical and therapeutic rehabilitation approach of a patient with complete AIS/Frankel A tetraplegia post cervical spinal cord injury after accidental fall off a trailer and multiple complications occurring during disease progression - case study

2019 ◽  
Vol 10 (Vol 10 No. 4) ◽  
pp. 564-566
Author(s):  
Irina ANGHEL ◽  
Alexandra SPORICI ◽  
Magdalena LAPADAT ◽  
Gelu ONOSE
Keyword(s):  
Quality Of Life ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Respiratory Distress ◽  
Spinal Cord Injuries ◽  
Wide Spectrum ◽  
Burst Fracture ◽  
Fracture Dislocation ◽  
Cord Injury

Introduction: Spinal cord injury is a complex neurologic condition that embeds multiple complications, which are often debilitating for patients as the disease progresses. Materials and Methods: This paper presents a case of a 44-year-old patient with a longilin asthenic constitution and no previous medical history, who accidentally fell off a trailer resulting in burst fracture dislocation of C6/C7 associated with immediate loss and consciousness and onset of complete ASIA-A tetraplegia with C5 neurologic level. The patient received a complex nursing program, which included extensive debridement of the necrotic tissue, daily antiseptic wound dressing using Chloramine solution and silver sulfadiazine cream along with wide-spectrum antibiotic therapy with slow but favorable progression. During hospitalization the patient developed an episode of respiratory distress which responded favorably to Levocetirizine daily. Results: The complex neuro-muscular rehabilitation program along with the medical treatment and surgical debridement the patient received have improved of the clinical outcome with the shrinkage of the pressure point lesions, adequate respiratory function which permitted the mobilization of the patient with the wheelchair. Conclusions: Patients with spinal cord injuries are prone to a vast majority of complications including pressure sores complicated with necrotizing fasciitis and respiratory distress that could alter the quality of life. Proper monitoring and management of these kind of complications in the context of neuromuscular rehabilitation are necessary for the enhancement of the quality of life. Key words: spinal cord injury, tetraplegia, complications,

scholarly journals Reproducibility of the international spinal cord injury quality of life basic data set: an international psychometric study

Spinal Cord ◽  
2019 ◽  
Vol 57 (11) ◽  
pp. 992-998 ◽  
Author(s):  
Marcel W. M. Post ◽  
Martin B. Forchheimer ◽  
Susan Charlifue ◽  
Julia Maria D’Andréa Greve ◽  
Peter W. New ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Basic Data ◽  
Data Set ◽  
Psychometric Study ◽  
Cord Injury

scholarly journals Good validity of the international spinal cord injury quality of life basic data set

Spinal Cord ◽  
2015 ◽  
Vol 54 (4) ◽  
pp. 314-318 ◽  
Author(s):  
M W M Post ◽  
J J E Adriaansen ◽  
S Charlifue ◽  
F Biering-Sørensen ◽  
F W A van Asbeck
Keyword(s):  
Quality Of Life ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Basic Data ◽  
Data Set ◽  
Cord Injury

scholarly journals Long term outcome of functional independence and quality of life after traumatic SCI in Germany

Spinal Cord ◽  
2021 ◽  
Author(s):  
Florian Möller ◽  
Rüdiger Rupp ◽  
Norbert Weidner ◽  
Christoph Gutenbrunner ◽  
Yorck B. Kalke ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Functional Independence ◽  
Term Outcome ◽  
Long Term Outcome ◽  
Cord Injury ◽  
Over Time

Abstract Study design Multicenter observational study. Objective To describe the long-term outcome of functional independence and quality of life (QoL) for individuals with traumatic and ischemic SCI beyond the first year after injury. Setting A multicenter study in Germany. Methods Participants of the European multicenter study about spinal cord injury (EMSCI) of three German SCI centers were included and followed over time by the German spinal cord injury cohort study (GerSCI). Individuals’ most recent spinal cord independence measure (SCIM) scores assessed by a clinician were followed up by a self-report (SCIM-SR) and correlated to selected items of the WHO short survey of quality of life (WHO-QoL-BREF). Results Data for 359 individuals were obtained. The average time passed the last clinical SCIM examination was 81.47 (SD 51.70) months. In total, 187 of the 359 received questionnaires contained a completely evaluable SCIM-SR. SCIM scores remained stable with the exception of reported management of bladder and bowel resulting in a slight decrease of SCIM-SR of −2.45 points (SD 16.81). SCIM-SR scores showed a significant correlation with the selected items of the WHO-QoL-BREF (p < 0.01) with moderate to strong influence. Conclusion SCIM score stability over time suggests a successful transfer of acquired independence skills obtained during primary rehabilitation into the community setting paralleled by positively related QoL measurements but bladder and bowel management may need special attention.

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