“Yarning” as a Method for Community-Based Health Research With Indigenous Women: The Indigenous Women's Wellness Research Program

AbstractThe shift towards legally plural multicultural and pluri-national citizenship regimes in the Andes formally recognised indigenous peoples’ community-based governance systems. These tend to emphasise participation, deliberation and service to the collective, but are often criticised for discriminating against women. We argue that recent constitutional reforms and legislation combining recognition of collective rights claims with institutional guarantees for gender equality have in fact amplified indigenous women's different strategies of ‘negotiating with patriarchy’, allowing them to further the transformation of their organisations and ‘custom’. Such strategies are necessary because of the intersections of race, class and gendered exclusions that indigenous women experience, and possible because of the diverse and dynamic nature of community governance systems. Despite systemic and structural constraints on the guarantee of indigenous peoples’ rights, the actions of organised indigenous women over the last two decades point to new ways of imagining more plural, less patriarchal forms of citizenship.

Download Full-text

Interdisciplinary community-based participatory health research across the industrial region of the Étang de Berre : The EPSEAL Fos Crau study

Revue d Épidémiologie et de Santé Publique ◽

10.1016/j.respe.2021.04.141 ◽

2021 ◽

Author(s):

Maxime Jeanjean ◽

Johanna Lees ◽

Barbara L. Allen ◽

Alison K. Cohen

Keyword(s):

Health Research ◽

Community Based ◽

Industrial Region ◽

Participatory Health Research

Download Full-text

The SMART Framework: Integration of Citizen Science, Community-Based Participatory Research, and Systems Science for Population Health Science in the Digital Age (Preprint)

10.2196/preprints.14056 ◽

2019 ◽

Cited By ~ 1

Author(s):

Tarun Reddy Katapally

Keyword(s):

Big Data ◽

Population Health ◽

Citizen Science ◽

Participatory Research ◽

Health Research ◽

Community Based Participatory Research ◽

Health Science ◽

Systems Science ◽

Community Based ◽

Science Community

UNSTRUCTURED Citizen science enables citizens to actively contribute to all aspects of the research process, from conceptualization and data collection, to knowledge translation and evaluation. Citizen science is gradually emerging as a pertinent approach in population health research. Given that citizen science has intrinsic links with community-based research, where participatory action drives the research agenda, these two approaches could be integrated to address complex population health issues. Community-based participatory research has a strong record of application across multiple disciplines and sectors to address health inequities. Citizen science can use the structure of community-based participatory research to take local approaches of problem solving to a global scale, because citizen science emerged through individual environmental activism that is not limited by geography. This synergy has significant implications for population health research if combined with systems science, which can offer theoretical and methodological strength to citizen science and community-based participatory research. Systems science applies a holistic perspective to understand the complex mechanisms underlying causal relationships within and between systems, as it goes beyond linear relationships by utilizing big data–driven advanced computational models. However, to truly integrate citizen science, community-based participatory research, and systems science, it is time to realize the power of ubiquitous digital tools, such as smartphones, for connecting us all and providing big data. Smartphones have the potential to not only create equity by providing a voice to disenfranchised citizens but smartphone-based apps also have the reach and power to source big data to inform policies. An imminent challenge in legitimizing citizen science is minimizing bias, which can be achieved by standardizing methods and enhancing data quality—a rigorous process that requires researchers to collaborate with citizen scientists utilizing the principles of community-based participatory research action. This study advances SMART, an evidence-based framework that integrates citizen science, community-based participatory research, and systems science through ubiquitous tools by addressing core challenges such as citizen engagement, data management, and internet inequity to legitimize this integration.

Download Full-text

Cooperative Agreement for AIDS Community-Based Outreach/Intervention Research Program, 1992-1998: [United States]

ICPSR Data Holdings ◽

10.3886/icpsr03023.v1 ◽

2001 ◽

Author(s):

Keyword(s):

United States ◽

Research Program ◽

Intervention Research ◽

Community Based ◽

Cooperative Agreement ◽

Outreach Intervention

Download Full-text

Critical Aspects of a Sustainable Clinical Research Program in the Community-Based Oncology Practice

American Society of Clinical Oncology Educational Book ◽

10.1200/edbk_238485 ◽

2019 ◽

pp. 176-184 ◽

Cited By ~ 2

Author(s):

Jennifer L. Ersek ◽

Stephanie L. Graff ◽

Francis P. Arena ◽

Neelima Denduluri ◽

Edward S. Kim

Keyword(s):

Clinical Research ◽

Patient Care ◽

Health Care Providers ◽

Research Program ◽

Improve Patient Care ◽

Care Providers ◽

Community Based ◽

Technological Infrastructure ◽

Community Based Research ◽

Research Programs

Increasing enrollment into clinical trials is a top priority across the field of oncology. Because the vast majority of those afflicted with cancer receive their care in the community, creating strong clinical research programs in the community-based setting is important. This article comprehensively outlines the most important elements of creating and sustaining a successful community-based research program. Establishing a clear mission and defining the scope of the research program in collaboration with key physicians and administrative leadership are critical to success. Standard operating procedures should detail operational processes. Ensuring sound financial planning and protected physician time are crucial for a healthy program. Providing mentorship opportunities to investigators and other team members will provide necessary guidance for junior investigators and long-term program stability. Prioritizing provider and patient volunteer engagement through education and awareness will potentially improve enrollment and research ownership. Incorporating administrative and clinical research staff and health care providers, including physicians, advanced practice providers, and pharmacists, will result in a multidisciplinary and unified approach and may also promote research as a routine part of patient care. Regular safety and scientific meetings will reduce regulatory complications and, most importantly, improve patient care. Other keys to a successful program include establishing a diverse trial portfolio, collaboration between different institutions, and ensuring appropriate technological infrastructure. Serial programmatic review provides opportunities to refine suboptimal practices and recognize successful strategies. Community-based research programs are critical to improve access to optimal cancer care. Implementation of successful programs is possible with a collaborative and multidisciplinary approach.

Download Full-text