Bioethics and end-of-life care in multi-ethnic settings: Cultural diversity in Canada and the USA

Mortality ◽  
2002 ◽  
Vol 7 (3) ◽  
pp. 285-301 ◽  
Author(s):  
Leigh Turner
2020 ◽  
Vol 15 (4) ◽  
pp. 204-212
Author(s):  
Silviya Stoyanova Aleksandrova-Yankulovska

Although clinical ethics consultation has existed for more than 40 years in the USA and Europe, it was not available in Bulgaria until recently. In introducing clinical ethics consultation into our country, the Modular, Ethical, Treatment, Allocation of resources, Process (METAP) methodology has been preferred because of its potential to be used in resource-poor settings and its strong educational function. This paper presents the results of a METAP evaluation in a hospital palliative care ward in the town of Vratsa. The evaluation was based on Beauchamp and Childress’ four principles of biomedical ethics and involves implementation of specific instruments for clinical ethics decision-making. Research tasks emphasised analyses of ethics meetings in the ward. Data were processed by SPSS v.24 using descriptive statistical analysis. Altogether, 32 ethics meetings of an average duration 20.63 min were conducted on cases involving critically ill patients. Most of the participants (86.0%) expressed satisfaction with the ethics process. The principlist approach supported resolution of conflicts between autonomous patients and their relatives, clarified definitions of “medical benefit” and “social good,” and enabled assessments of the risk of unequal treatment. Even as the specific research tasks were achieved, further participant follow-up is necessary to identify any improvement in healthcare personnel’s ethical competence. METAP worked well in end-of-life care settings. Participants experienced several benefits, including improved team communication, better understanding of patient preferences, and confidence in the correctness of decisions. Despite the significant educational potential of METAP, the need for additional and ongoing ethics training of health professionals should not be underestimated.


2001 ◽  
Vol 94 (9) ◽  
pp. 458-461 ◽  
Author(s):  
Carol Raphael ◽  
Joann Ahrens ◽  
Nicole Fowler

2005 ◽  
Vol 15 (2) ◽  
pp. 135-148 ◽  
Author(s):  
Louise Robinson ◽  
Julian Hughes ◽  
Sarah Daley ◽  
John Keady ◽  
Clive Ballard ◽  
...  

In the UK, research continues to confirm that people with certain chronic illnesses, such as chronic lung disease and cardiac failure, represent the ‘disadvantaged dying’ compared to those with terminal cancer. But what is the situation for people dying with advanced dementia and what is the experience of their carers? Practical guidance for clinicians is scarce. In Standard 7 of the National Service Framework for Older People, which covers mental health, there is mention neither of how care should be provided nor of how patient choice should be ensured for people with dementia at the end of life. In the UK, 5% of the population aged 65 and over and 20% of those aged 80 and over have dementia similar prevalence figures are found in the USA. Current predictions suggest that the number of people with dementia will increase by 40% by 2026 and will double by 2050. The increased demand for end-of-life care for people with dementia will be associated with major social and economic costs, but what is the current standard of such care? How can the quality be improved? And how should future services be configured to cope with this increasing need? In this paper, we review current knowledge around end-of-life care in dementia, discuss the clinical challenges and ethical dilemmas presented to carers, consider the difficulties in delivering such care and suggest practical approaches to improve the quality of such care.


2017 ◽  
Vol 6 (2) ◽  
pp. 183-186 ◽  
Author(s):  
Hussna Abunafeesa ◽  
Ahmed F. Elsayem

2002 ◽  
Vol 46 (2) ◽  
pp. 204-219 ◽  
Author(s):  
JAMES L. WERTH ◽  
DEAN BLEVINS ◽  
KARINE L. TOUSSAINT ◽  
MARTHA R. DURHAM

2014 ◽  
Vol 23 (4) ◽  
pp. 173-186 ◽  
Author(s):  
Deborah Hinson ◽  
Aaron J. Goldsmith ◽  
Joseph Murray

This article addresses the unique roles of social work and speech-language pathologists (SLPs) in end-of-life and hospice care settings. The four levels of hospice care are explained. Suggested social work and SLP interventions for end-of-life nutrition and approaches to patient communication are offered. Case studies are used to illustrate the specialized roles that social work and SLP have in end-of-life care settings.


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