The Role of Altruism in Parental Decision-Making for Childhood Cancer Clinical Trials—Further Questions to Explore

2006 ◽  
Vol 6 (5) ◽  
pp. 52-52 ◽  
Author(s):  
Liva Jacoby
2019 ◽  
Vol 63 (8) ◽  
pp. 926-935 ◽  
Author(s):  
C. S. D'Amanda ◽  
H. L. Peay ◽  
A. C. Wheeler ◽  
E. Turbitt ◽  
B. B. Biesecker

2016 ◽  
Vol 50 (3) ◽  
pp. 149-156
Author(s):  
Lorna Awo Renner ◽  
Deborah McGill

Background: Developing countries such as Ghana have very poor childhood cancer survival rates. There is a need to determine reasons for late presentation and treatment abandonment which are major causes of poor survival. Understanding these issues could inform effective strategies for childhood cancer control in resource-constrained settings.Aim: To explore factors influencing parental decision-making for children with cancer in Ghana with regard to health seeking and retention in treatment, in order to provide information that will guide Public Health interventions for childhood cancer control.Method: This exploratory qualitative study was conducted based on an interpretative epistemology using a social constructionist approach. Purposive sampling of parents attending the Paediatric Oncology Unit, Korle Bu Teaching Hospital in Accra, Ghana was undertaken. Twelve semi-structured moderate interviews and two small focus group discussions with a total of seven participants were undertaken. Data analysis was through thematic content analysis.Results: Five major themes emerged. Knowledge and perceptions revealed a total lack of appropriate knowledge prior to diagnosis. Health-seeking behaviour was determined by interplay of individual and environmental factors. Orthodox medical treatment was largely perceived favourably. The impact of cancer on parents and children included psychological, physical and socioeconomic effects. Financial, spiritual and psychosocial support helped in coping. Parents recommended public education and health financing to address the major barriers.Conclusion: Broad social determinants and experiences influence parental decision making for children with cancer. This implies Health Promotion strategies with multi-sectorial involvement will be required for effective implementation of the National Strategy for Cancer Control.Funding: Funded by authorsKeywords: Childhood cancer, parent perspectives, Ghana


2007 ◽  
Vol 177 (4S) ◽  
pp. 170-170
Author(s):  
Pamela I. Ellsworth ◽  
Katherine Callaghan ◽  
Eileen Gray ◽  
Anthony Caldamone

2020 ◽  
pp. 146879412097993
Author(s):  
Maja Nordtug

In this article, I introduce and evaluate the use of messy map interviews. Based on messy situational maps, messy map interviews is an interview tool I have developed to facilitate understanding of elements pertinent to interviewees. I present and evaluate how the tool contributes to interview studies that aim to describe and analyse elements pertinent to interviewees. This is done by use of an exemplar of working with messy map interviews, exploring parental decision-making about human papillomavirus vaccination. Based on the results, the study shows that messy map interviews can help keep qualitative research loyal to what interviewees ascribe relevance to. Furthermore, the tool can potentially help nuance the analysis of how elements are understood by interviewees. The article concludes that messy map interviews can be a useful mapping tool that keeps interviewees’ perspectives in focus in interview studies.


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