Using the performance arts to address a “methods gap” in dementia research

Arts & Health ◽  
2021 ◽  
pp. 1-14
Author(s):  
Christine Novy ◽  
Roanne Thomas ◽  
Linda Garcia ◽  
Wendy Gifford ◽  
Pam Grassau
2005 ◽  
Vol 10 (2) ◽  
pp. 2-2
Author(s):  
Constance Dean Qualls
Keyword(s):  

2013 ◽  
Vol 3 (4) ◽  
pp. 317-320
Author(s):  
Elizabeth Beattie ◽  
Elaine Fielding ◽  
Maria O’’Reilly ◽  
Fred Graham ◽  
Christine Neville

Dementia ◽  
2021 ◽  
pp. 147130122199050
Author(s):  
Elizabeth L Dalgarno ◽  
Vincent Gillan ◽  
Amy Roberts ◽  
Jean Tottie ◽  
David Britt ◽  
...  

Background In the United Kingdom, there is a current priority for high-quality dementia care provided at home. However, home care or domiciliary care is an area where problems have been reported, in terms of a lack of consistency, coordination and appropriate responses to the specific needs of those with dementia. The views of informal carers, who often must respond to these problems when supporting relatives, are crucial in shedding light on the issues and in seeking to promote solutions. Methods This study explored the views of informal carers of those with dementia concerning home care, through a consultation using an electronic survey. The survey questions were designed by informal carers, through a public involvement group within an existing programme of dementia research. The survey elicited responses from 52 informal carers in 2017/18. The data were analysed qualitatively using framework analysis. Findings Carers’ views focused on the need for investment into meaningful personalisation, recognising the value of providing care and valuing formal carers, systemic failings of care coordination and provision and the importance of ongoing collaboration and care planning. Conclusion Based on a framework drawn from the views of informal carers themselves, this study articulated issues of concern for home care and its delivery for people with dementia. Attempts should be made to make dementia home care more consistently personalised, inclusive and collaborative with informal carers and key others involved. Further areas to explore include working conditions of formal carers and current models utilised in homecare provision.


2011 ◽  
Vol 24 (3) ◽  
pp. 382-390 ◽  
Author(s):  
Sebastian Voigt-Radloff ◽  
Rainer Leonhart ◽  
Matthias Schützwohl ◽  
Luisa Jurjanz ◽  
Thomas Reuster ◽  
...  

ABSTRACTBackground: The purpose of the study was to translate the Interview for Deterioration in Daily Living Activities in Dementia (IDDD) into German and to evaluate the construct and concurrent validity in people with mild to moderate dementia.Methods: IDDD data of two pooled samples (n = 301) were analyzed regarding ceiling and bottom effects, internal consistency, factor reliability and correlations with corresponding scales on cognition and activities of daily living.Results: We found minimal bottom (< 5%) and ceiling (≤ 2%) effects, good internal consistency (Cronbach's α > 0.7) and moderate to good factor reliability (0.66–0.87). Low correlations with cognition (Pearson coefficient: < 0.17) confirmed the differences between cognitive testing and activities of daily living (ADL). Minor correlations with other ADL scores (r < 0.2) indicated that different scores cover a different range of ADLs. The original two factor model could not be confirmed. A suggested four factor model distinguishing initiative and performance of basic and instrumental ADL demonstrated better indices of fit and higher correlations with corresponding scales.Conclusion: A four factor model of the IDDD can be used in dementia research for assessing initiative in and performance of basic and household activities of daily living. The findings suggest that ADL scales correlate only poorly and that further development of the IDDD is needed to cover a broader range of ADLs.


Author(s):  
MANOJ R. AGARWAL ◽  
JOSE FERRAN ◽  
KATHERINE OST ◽  
KENNETH C. M. WILSON

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